Eosinophilic Esophagitis

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    My therapist left me without providing a reason and gave me no time to digest the end of an 8-year relationship. I have overwhelmed my new therapist, who is trying to "pass me on." My psychiatrist and I disagree about inactive ingredients, I am allergic to Wheat, and he does not support me when Wheat is used as an inactive ingredient; he says it couldn't possibly be bugging me. There is a half-year wait for a new psychiatrist. I had to cancel a trip to see my mom because I was too scared to travel. My work has taken away all my responsibilities because I am unreliable and ill. My friends have said goodbye to me over the last few months because I appear to be dragging people down. I am unreliable because I cancel at the last minute, usually due to pain or anxiety. IOP has a long wait, and the ER doesn't consider me an emergency because I don't have an active plan in my back pocket. I am done. I give up. I don't want to be alive. I have no one. I wish to be dead. #CPTSD #Fibromyalgia #EoE . #Suicide I am scared.

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    My therapist left me without providing a reason and gave me no time to digest the end of an 8-year relationship. I have overwhelmed my new therapist, who is trying to "pass me on." My psychiatrist and I disagree about inactive ingredients, I am allergic to Wheat, and he does not support me when Wheat is used as an inactive ingredient; he says it couldn't possibly be bugging me. There is a half-year wait for a new psychiatrist. I had to cancel a trip to see my mom because I was too scared to travel. My work has taken away all my responsibilities because I am unreliable and ill. My friends have said goodbye to me over the last few months because I appear to be dragging people down. I am unreliable because I cancel at the last minute, usually due to pain or anxiety. IOP has a long wait, and the ER doesn't consider me an emergency because I don't have an active plan in my back pocket. I am done. I give up. I don't want to be alive. I have no one. I wish to be dead. #CPTSD #Fibromyalgia #EoE . #Suicide I am scared.

    68 reactions 17 comments
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    Therapy uncertainty 🤔 NEED ADVICE PLEASE

    WARNING: This post is not short!!

    So I finally had my intake appointment with a therapist that was recommended to me for help dealing with all the difficulties in my life. I have never went to a therapist before, but am very familiar with the way things are typically done since both my daughters have been seeing therapists for pretty much their whole lives. I wasn’t sure what to expect, but was hoping for the best because I really need someone that will provide me with support. However, by the time I left (two hours after arriving) I felt like I was in some type of shock. I drove to an area trail that I pass to get home and pulled into a parking space. Then I got out and started aimlessly walking down the trail trying to somehow process the things the therapist had said in an attempt to decide if it was logical and right or if it was not. After I was asked many questions about myself, my kids, my soon to be ex-husband and provided a bunch of life history and background info and part of mine and my kids health problems history (yet still only covering a portion of all that stuff that I am sure is relevant), she asked me how on earth with all that I have been impacted by and affected by have I managed to stay afloat and keep functioning. She then started telling me that it is very important at this time that I have a willingness to push my kids to the background and focus on myself. She said that if I don’t I won’t be alive for long to be here for my kids. She told me that she would recommend that I force my daughters to start becoming more independent and focus on myself and my youngest son who is only 13. She suggested me to see about a group home for my 19 year old (even though she is very high functioning and currently works at the same place I do and helps me to pay our apartments bills) or to have both of them move out and be roommates somewhere else. To give a bit of insight, my daughters are 18 & 19. My 19 year old has Aspergers, BPD, ADD, PTSD, OCD, depression, anxiety, and a host of physical health problems that include AMPS, Ehlers Danlos, EoE, food allergies, thyroid problems with a possible tumor on her pituitary, and vitamin deficiencies. She also can’t drive (from PTSD from a car wreck). My 18 year old has recently tried to commit suicide and spent a week in a mental health hospital because of severe recurrent major depressive disorder and anxiety caused from her being sexually assaulted twice in the past year and an array of chronic health issues that include CFS, Dysautonomia, EoE, malnutrition and disordered eating. She also can’t drive yet because due to her frequently passing out from her Dysautonomia her doctors won’t allow her to learn even though she already passed the test to get her permit. I was also told that since my stepson is technically my husband’s responsibility since he has full custody, that I shouldn’t continue to worry about him and just let dad handle everything for him. My stepson has been in my life since he was eight months old (now 17) and his biological mom has never been able to play much of a role in his life because of her severe mental health issues, so I am the only mom he has and knows. The therapist did have some good information about resources that may actually be helpful to me and my daughters, but I’m feeling uneasy about moving forward with her. I know my girls are old enough to be stepping out on their own, but they do not seem to me to be ready yet to take that kind of plunge with all their health difficulties. They lack knowledge of how to survive on their own and they lack in maturity also. Due to all the health issues they have never gotten to act or experience things like other healthy kids and teenagers have. What should I think about all this? Is the therapist giving good advice and I just don’t want to hear it, or is it bad advice and I should not go back? Any thoughts on this would be appreciated.
    Sorry the post was so long, but thanks for reading if you made it this far!! #Fibromyalgia #MyalgicEncephalomyelitis #Dysautonomia #EosinophilicEsophagitis #BorderlinePersonalityDisorder #HypothyroidismUnderactiveThyroidDisease #Migraine #Aspergers #amps #Abuse

    1 reaction 27 comments
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    Needing input.

    What can I do about a verbally and emotionally abusive 19 year old daughter with autism, BPD, ADD, PTSD, depression and anxiety? I have two other children in my home besides her and they both have health issues too. One is disabled. I struggle with multiple chronic illnesses and I am going through a divorce from a narcissistic husband. I also do online college classes and work full time at a retail store. My daughter works there also. Most of the time when she goes through her “episodes” with her moods and emotions we will end up arguing, as the years have passed and she has gotten older her words and responses have become more illogical and mean during those fights and no amount of attempts at reasoning with her ever calms her. It has now reached a point where she started yelling and cussing me at work where both customers and coworkers could hear and see. The coworkers were shocked by it. They had never seen her be anything but bubbly and kind. I was stuck having to explain to one of them why she behaved that way after she stormed off. Not only was it really embarrassing and made me feel belittled by her hurtful words, it worried me that we would get in trouble or fired if one of the coworkers decided to report it to our supervisor. If anyone has any advice that could help me to cope with the ups and downs that come with these conditions, it would be really appreciated! #BorderlinePersonalityDisorder # #Autism #ADD #PTSD #Depression #Anxiety #EhlersDanlosSyndrome #Fibromyalgia #EosinophilicEsophagitis #Abuse #MentalHealth #howtocope #ChronicPain #Migraine

    16 comments
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    EoE symptom question

    Do any of my fellow EoE people have a continual scratchy, dry throat? This is a daily thing for me, some days more than others.
    #RareDisease

    1 reaction
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    Prayers are being answered!!🙏🏻 One step closer to freedom!! 🥳

    Just wanted to give an update. By the grace of God, my daughter and myself have both been offered positions at the company we were hoping to get hired by! The best part is that we will be able to work the same shift and the job itself is within our range of physical ability!!! With employment just around the corner, I am one step closer to being able to leave my current, bad situation!
    Thanks to everyone that “❤️” my previous post to show support. I really appreciate it! #Fibromyalgia #MyalgicEncephalomyelitis #Migraine #EosinophilicEsophagitis #IrritableBowelSyndromeIBS #Dysautonomia #BorderlinePersonalityDisorder #ic #hypermobileehlers-DanlosSyndrome(hEDS) #DegenerativeDiscDisease #amps #FoodAllergies #fragranceallergies #NarcissisticAbuse #Hope #freedom

    1 reaction 3 comments
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    I want to be free

    Since realizing the situation I am in and finally seeing and accepting that my husband is not who I first thought him to be 15 years ago, I have concluded I have to find a way to leave. However, it isn’t possible if I don’t have an income to financially sustain me and my kids. Myself and my oldest teenage daughter have been searching endlessly for jobs and have turned in several applications. We even went for interviews and were told we were hired by one of them, but due to the need for us to work the same shift because of only one vehicle, they said they would need to figure out our scheduling and would email us with further information. That was over a week ago and we haven’t heard anything. So, I’m not real sure we actually did get the jobs. Without a job I can’t leave, because I couldn’t pay for somewhere else for us to live. I have managed to locate a few rental options in my tiny rural area, but that information is useless without income. I am feeling really trapped and hopeless. I don’t want to have to keep waking up day after day to a man that treats me and my kids (daughters especially) like we are dirt and valueless. Listening to the hateful things he says and walking on eggshells in the hopes of not setting off a nasty remark or angry outburst. I want to leave and yet my circumstances of being a stay-at-home mom with no income is now kicking me in the butt and forcing me into having to stay where I know I don’t need to be. The stress is badly affecting my symptoms and the symptoms of both my daughters (we are all three chronically ill). It also doesn’t help that my husband is now unemployed also (he has quit two different jobs in the past two weeks) so my current household is quickly running out of the little bit of money that we had and me and the kids are not sure what is going to happen. I think I must be living in a form of HELL, but for the life of me I can’t figure out what me and the kids did to deserve it! #Fibromyalgia #MyalgicEncephalomyelitis #amps #hypermobileehlers-DanlosSyndrome(hEDS) #EosinophilicEsophagitis #Dysautonomia #Migraine #BorderlinePersonalityDisorder #Depression #IrritableBowelSyndromeIBS #InterstitialCystitis #DegenerativeDiscDisease #FoodAllergies #fragranceallergies #Environmental Allergies #sleepingdisorder

    5 comments
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    Trapped

    I have, after almost 15 years of marriage and an escalation of issues, realized that my husbands bad attitude, mean words, and refusal to communicate or be concerned about feelings (mine and our 4 kids), is due to him being narcissistic. I have come to the determination that I would be better off not being in this marriage any longer. However, I am currently trapped. I have been a stay-at-home parent throughout the entirety of the marriage, therefore I have no income of my own that I could rely on to support myself and my kids if I left. I am looking into getting a job (even though he doesn’t know that yet), but I am really worried because I have Fibromyalgia and CFS, along with a laundry list of other health difficulties, so I am very worried that even if I can get hired somewhere that won’t be too strenuous on me, my bad symptom days could cause serious problems for me to wake up and get to my job everyday. I am working on obtaining my Bachelors in Community Health through an online program, but I am still a few years away from completing it due to me taking only one class at a time. I also have to worry about my two daughters. One is 19 the other will be 18 in a couple months and both still live at home and have a long list of chronic health problems themselves that I have to help them manage. The 19 year old even has Aspergers and was recently diagnosed with BPD to go along with the EoE, Ehlers Danlos, and AMPS that she has. The soon to be 18 year old has CFS, depression, EoE, and Dysautonomia. My oldest son is 16 and is actually my stepson, but to me he is just my child since I have been his mom since he was 8 months old. However, I know if I leave my husband, I won’t be able to take him with me since my husband is his legal guardian. My youngest son is 13, has ADHD and still has several years of school left. So, even though I feel it would be better for me to leave, I have to consider my kids and their needs. I don’t have family to turn to for help, nor friends either. The couple of friends I have are actually joint friends to both me and my husband, not just mine, and are struggling financially themselves so are not in a position of helping me even if I asked. I simply don’t know what to do. I am horribly unhappy and tired of being emotionally neglected and abused. I need a game plan, but am not sure what steps to take to create one. Any words of advice or simply understanding would be very appreciated right now. Thanks for reading! Sorry for the lengthy post! #narcissism #Fibromyalgia #MyalgicEncephalomyelitis #EmotionalAbuse #amps #EosinophilicEsophagitis #ADHD #Support #Dysautonomia #Aspergers #Feelingtrapped

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