We need sleep but it hurts to lay down, it hurts to stand, it hurts to sit. If you lay on your back your si joints are going out of place, your side and your shoulders, hips and knees go out, your stomach and it’s your neck and shoulders!!! Very frustrating and so very tired and hurting so bad. I just want to sleep for longer than 3 or 4 hours at a time. #bendy #HEDS #Sleep #sotired #Everythinghurts
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what in the hall my body is attacking me my only crime is trying to have fun dang now my legs are melting like hot ice cream specially the left one
#ChronicIllness
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Anyone have any tricks for falling asleep when the pain is too much? I'm exhausted but can't get distracted/ comfortable enough, every position hurts 😭 #nosleeptonight #Everythinghurts
Are there book lovers here who've overcome tenderness and sensitivity in hands for reading? My CNS thinks pages are razor blades and book edges are sharp knives. Same for the edge of my computer keyboard. While I work this out with my medical team, have any of you found hacks to avoid this discomfort? I have some books I'd really love to dive into. I'm thinking soft gloves or a non-binding barrier between me and a book. #Fibromyalgia #Allodynia #protection #centralnervoussystem #ptsdembodied #Everythinghurts
So frustrated with the constant pain...everything hurts..including lots of clothing. I dont have the energy to find clothing that doesnt make things a lot worse. My two biggest issues right now are bras and tops (anything heavy or constricting doesnt work...but loose and baggy tends to pull too and hurt anyways. Please dont say no bra because that doesnt work for me, I need something in between.
Any and all suggestions of brands and places to purchase as well as what type of items work well for you.
#ChronicFatigue #Fibromyalgia #Migraine #myofascialpain #Everythinghurts #suggestionsplease
Ugh, today is one of those days, where my pain tolerance just isnt enough and I feel like Im talking myself 'off the edge' all day. I have little mantras or sayings that I often say quietly to myself or in my head to help me cope with pain when its really bad or just hasnt let up in a while.
Its just too much though when I cant breathe or think without being in pain. It doesnt help that I had another useless follow up appointment with my Dr where I asked him multiple times for literally anything to help and his answer as it always seems to be is lets wait and see.
I dont know how much worse it could be or why other people including my doctor dont get it. Everything hurts!! Pushing the handle to flush the toilet--hurts! Standing up--hurts! Breathing--hurts! Trying to get dressed, lean over, put food on a plate, wash my hands, etc..--hurts!!
My coping skills are never enough, I always seem to end up collapsed on the floor or curled up in bed just trying to convince myself that its okay and Ill survive.
How often do you find yourself having to 'talk yourself down' from dealing with the pain??
#icantdoit #Everythinghurts #Fibromyalgia #Lupus #Jointpain #Migraines #allpainallthetime
I have bipolar 2 disorder, raging codependency, and chemical addiction (sober now). I am drawn to men with active alcoholism, narcissists, and borderlines. The love of my life is a borderline and the back and forth is killing me. On a rebound from him, I wound up with a narcissist who used me for money. My BPD love rescued me from him. I have been moving for months. I am exhausted and bankrupt in every way. My #Everythinghurts #unstable #sobroken
#fibropain #Dercumspain #nervepain #Everythinghurts #Crying #Needpainrelief
#DistractMe
Some of my most difficult days are those I’m stuck somewhere in between, “Keep moving and doing! Don’t give in to this” and “God, I’m tired in this constant pushing...”
Anyone else?
#Fibromyalgia #ChronicIllness #tired #Somewhereinbetween #dontgiveup #Everythinghurts
I’m so tired. Praying for a restful night...for all of us. ♥️ #Fibromyalgia #Insomnia #exhaustion #Everythinghurts #Jointpain
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