MCTD warrior - having it all, but not what you want.
I’m new here!
Hi, my name is andrea85_newyork. I'm here because I’ve been battling chronic fatigue for 3 years. I have recurring anemia, IBS, food allergies, insomnia, back pain and rosacea. I’m trying to find people who’d be willing to chat about what’s worked or hasn’t worked for them —- and general just speak to someone who understands what I’m going through :)
What is this thing called "Hope"? #seekingknowledge
What is this thing called hope? Yes, this is a serious question. What frame of reference do you use to explain something to someone who has never know or seen hope? We liken the situation to finding a single Waldo in a swarm of people who all look slightly like Waldo. But none ARE Waldo.
We are, at this point, 47 days into our 2 new Antidepressants, 21 days into our Antipsychotic and no change other than we sleep an added 1 to 2 hours a night. We are grateful for that. Our meds are increased every 2 weeks. I, since none of the other want to attend at this time, do video chat with at least 3 Doctors every week. The all tell me that hope will help us in this wait and see pattern we currently find ourselves stuck within.
We believe that everything in our universe has a counter balance. Night has Day. These are concrete, provable, repeatable facts available to establish what distinguishes Night from Day. Where "Hope" along with, it's 1st cousins the other emotions and "feeling" are all abstract concepts not grounded by facts.
What reference points does one use when trying to describe abstract concept of "hope" to one who has never seen or experienced it in their lifetime. How would you describe colours to a person who has never seen them? We have as little insight into what "hope" or any of the "emotions" are, at this point. What is this thing called "Hope" and where do we find it?
#SexualAbuse #SexualAssault #Childhoodneglect #DomesticAbuse #DID #raynauds #Fibromyalgia #MyalgicEncephalomyelitis #RheumatoidArthritis #DegenerativeDiscDisease #Hypertension #Trichiasis #irritableboweldisease #GeneralizedAnxietyDisorder #AnxietyDisorders #PanicAttacks #Agoraphobia #Insomnia #Rosacea #Claustrophobia #heartmurmur #ComplexPosttraumaticStressDisorder #Allergies #Dyslexia #OCD #Trichotillomania #cleithrophobia , #IntrusiveThoughts #SuicidalIdeation #haphephobia #EatingDisorder #MajorDepressiveDisorder #SocialPhobia #Acrophobia #Psychosis #DissociativeDisorder #audiohallucinations #visualhallucinations #intervert #raynauds
My Sensitive Skin Friends, I Need Your Advice!
I’m new to the Mighty, and wonder if anyone has had experience with losing their job due to missing time for medical appointments? I have GAD, depression, hashimotos, rosacea and Crohn’s. I’ve been trying to get everything under control for the past year, but still struggling to find the right treatment. I was recently let go from my job without knowing why, and am worried that this will happen again when I find another job. I feel like I’m not sick enough to be not working, but not well enough to work full time. Not sure how to handle multiple specialist appointments and testing with a new job, but I can’t not work forever. Any insights would be appreciated. Thanks
So over the last, let’s say 5-10 years especially, my symptoms have worsened.
The fibro pain, the ibsd, the anxiety. things just cycle around... system to system.
I’m always sick. but it’s always different!
My ears will burn and hurt. I have to put a cool compress and it is random. thought rosacea on my cheeks but I never get papules, just redness and burning... my face will be so hot.
I get asthma from certain environmental triggers, sure, mold is a huge one, pollens, grass, animals... but now from certain foods I’ve eaten my whole life.
bell peppers, cinnamon, chocolate, peanut butter, peppers in general.
thought it was GERD causing some of the asthma, which it might be... but then found MCAS and people, it was like reading my mother’s story!!!! and so many of my symptoms can be explained.
I go to meet with the specialist in a week. hoping to get some answers!!!
I think it was a very productive day. I did some cleaning, went grocery shopping with my mom, and though we ate very late, we all enjoyed the meal.
At night I spent some time playing board games with my mom and aunt until we went to bed.
It was a good day. Lately, I've been quite relaxed, resting and avoiding stress. I can tell it's working because my face doesn't look so red anymore due to rosacea.
#Anxiety #Depression #Medication #Selfcare
does anyone have a rash like this? I'm undiagnosed and frustrated that it's right on my face...
Battling Chronic Inflammation
Chronic inflammation is a major cause of other illnesses. Both physical and mental illnesses are triggered off by inflammation and often erupt as inflammation levels increase in the body.
I have struggled with chronic inflammation for as long as I can remember. The experience of battling chronic inflammation has been difficult, as I have struggled with a lack of public awareness. For years, I only treated symptoms and never the root cause. I grappled with a range of illnesses across the respiratory, limbic, digestive, and oral system. All of which have linkages to inflammation.
Among the illnesses I have dealt with, seasonal asthma, cluster headaches, hay fever, oral ulcers and acid reflux, irritable bowels, constipation, indigestion, eczema (on the body and scalp), rosacea, and depression, anxiety, social anxiety as well as Polycystic ovarian syndrome.
Inflammation for me, has been triggered off by an extremely poor and unhealthy diet, poor lifestyle choices, and a lifetime history of abuse, bullying, harassment, exploitation and abandonment as well as discrimination. A genetic predisposition for it exists as well, with relatives possessing a few of the illnesses I have listed above. PCOS exists in the female members of my family, and anxiety exists as well as cluster headaches, hay fever, oral ulcers, acid reflux, irritable bowels, depression, anxiety, and social anxiety.
Chronic inflammation is treatable and I take responsibility for not having treated it properly before. In this new stage of life, I want to put my health at first priority. In doing so, I pledge to treat my chronic inflammation.