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Late Night Thoughts- The Darker Side

Only made one other post. But, this is one of the things I wrote from one of the darker nights I had. I am fine and we are allowed to have bad nights. Your progress doesn't have to be linear. This is one where I'm sure we all know when it seems hopeless. Read if you like (trigger warning for self-harm/suicide references):

I don't know why I still feel this way.

Its nearing where I don't want to stay.

There isn't much more to say.

Those people that hurt me will never pay.

While I'm in this mental battle every day.

The one of two selves, hard to keep at bay.

Deep inside are like two wolves.

One howls for the end, the other for hope.

It's the darkness snuffing out the light.

But I still hear the cries of hope to fight.

I don't know what to do anymore.

I think it's time I grew my wings and soared.

I'm nearing the point where I'll write another note

This time it'll be the last thing I write.

It'll start like: "I'm sorry, I wish I was stronger, but I don't want to be here any longer."

I feel like it's all frayed at the seams.

Like in my constant recurring dreams.

What once was a stream, is now a raging flood.

Wish I were stronger and quicker.

If I was, maybe I would've been less sicker.

This is the end for me my friends.

I've never felt more alone inside my own head.

Its like an endless echo with nowhere to go.

It's a selfish thing that's true.

But fuck it I'm so tired of feeling dead.

#MentalHealth #Suicide #Depression #Insomnia #darkthoughts

(edited)
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Outlets#CPTSD #TBI #longtermdisabiloty

I went dancing tonight.An activity I adored before becoming a mother and spouse. Im trying to come down after a day of wonderful things.I figured writing might help me regulate.My son and I were celebrating a small accomplishment.I entered an ART show and the judging had some outside influence.I do not know how to take it,to be honest.Am I receiving this on my merit or because of the impression they have been given, my story,so to say.it is a series extremely personal and knew to express for me.True Authenticity, the same mask at every turn is my goal.Exposing myself, scariest and most exciting thing in my life.I am grateful,if he only knew.I am still in it, coping,learning to navigate my frustration, my lack of, executive function due to hypo insomnia,that is caused by inflammation and vascular pressure from a cerebral avm.it isn't something I do, whip around and exert,unless hypoadrenal state kicks in, but tonight,all good feelings.
Im physically hearing it now,thrombing and pressure,numbness in my fingers and my eye has been twitching all evening.All worth it,all of it.Im grateful and hopeful.I want more and I deserve it.I have steps but they get lost between "them".I felt alive today. Humor and lifes reflection.it was funny and had puposefully let me let it go.It felt needed.Harmless.I won't forget.I like moving again and my body needed it.

Home - Reflection

Arriva sulla Terra da un pianeta sconosciuto. La missione è farci riflettere.
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Dizzy from doctors 🥼

Hey. I’ll try to keep this short as it’s way too much if I go into details.
2 years ago began the start of the newest problems.
August 2024, they increased and got worst at a way faster rate.

Diagnosis:
Vitiligo
Recurrent staph/MRSA/cellulitis
Folliculitis/Eczema/Prurigo Nodularis
Anemia (most of my life)
Thickened endometrium
Hormone imbalances
Migraines
Spinal injuries
Mental health (ptsd/severe anxiety/depression)
Chronic swollen throat/tonsils/lymph nodes
Sinusitis
Chronic dry cough
Low BP
Recent deviated septum
Fatigue, malaise
Body aches/weakness
Carpal tunnel
Skin intolerance to hot/cold
Recurrent UTI’s
Fibromyalgia
Recurrent ear infections / ear staph
Eustachian tube dysfunction
Hearing loss
Uterine fibroids & cysts
Memory loss
ADHD
Severe Insomnia with nightmares
IBS/GERD
TMJ/Bruxism

Not yet diagnosed:
Raynauds (2 almost constantly blue toe nails, recently started in second, 1st has been present last two years off and on)
Chronic chills
Brittle nails
Hair loss (possibly medication related)

Recent testing:
A few genetic tests
Allergy testing
Several autoimmune panels

Current additional issues:
Oral thrush (due to long term antibiotic usage - close to four months now)
Ear pressure/fullness along with dark red/purple spot inside filled with liquid ? Also spots of white appearing pus that pop to drain
— can’t handle loud noise or cold air currently. Severe ear itching.
Eye itch and redness (not pink eye)
Muscle weakness and twitching - minimal long-term control in arm muscles

Pending:
Additional testing
Meeting hematology
CT of neck/throat/nose
Hysterectomy (paused until healthy)

Immediate Family history of:
Lupus (blood work shows low middle numbers not high enough to diagnose)
Celiac (ruled out by endo/colonoscopy)
Psoriasis
RA (ruled out by blood work)
Heart issues

All I can say is yes, I’m in pain. And yes, I’m exhausted. And frustrated. I’m not a crier and all I do is start crying all the time. I have 4 kids and I can’t be the best for them. I am failing everywhere in life and I just need to get this fixed or someone to finally step in and help because I can’t keep declining like this.

I am a veteran. I have little say in my health care. I can’t get a second opinion. Getting a rheumatologist seems to be impossible despite numerous doctors telling me I should see rheumatology. I’m feeling so defeated. If I could at least narrow things down it would help so much, so I could share my research with my doctors. I have several things on my list but I need to get a really good list. Please help if you can think of what may be causing all of this.

Thank you.

*** I would share many more pictures if I could 💕

#chronichealth #Pain #hurting #mother #Veteran #Desperate #pleaselisten #sick #someonegetmedrhouse #illeventakethegoofysidekickguy #ijustwanttofeelbetter #helpme #Genetics #hematology #labs #Skin #Dermatology #IBS #GERD #autoimmune #Disorder #PTSD #Fibro #Rheumatology

(edited)
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So done

The uncertainty of the misdiagnose, the stigma of an invisible disease, the disruption to "normal" life would be manageable on their own. But today I'm drowning in symptoms on top of all that, and the already isolated life I had feels a lot heavier on my tired shoulders.

Fibro fever, extreme joint pain, sensory overload, sore throat, migraine, insomnia (first time this severe for me)

My skin all over my body feels like I'm touching a low electric current. And when I do crash for a few minutes, I am dealing with the symptoms in a nightmare instead of the real world.

Tomorrow I'm asking for a much needed raise, but I can barely function. I am afraid for my livelihood.

I need a deep cushiony hug to last the whole night.

#Fibromyalgia

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Long Term Medication

Hi Everyone. I would be grateful for peoples input on long term anti depression meds . I have been on/off (mostly on) Mirtazapine for several years due to anxiety/ depression/ chronic pain.

I’ve always been a bit uneasy about it but they seemed to help and the real win was they definitely helped me sleep at night .

A few times I felt like I was doing well enough to stop and I wanted to be med free but each time I try this I crash badly . The withdrawal gives me terrible insomnia. This is even with a very gradual reduction tapering down to a tiny dose which I was feeling fine with (3.75mg down from 15) but as soon as I go to nothing at all my brain doesn’t like it.

Current attempt is 14 days in and the sleep has been terrible since about day 5. Not sure how long I’ll be able to keep going tbh.

I’m curious to know if anyone has had similar and how they overcame it ? Or perhaps I need to make peace with the scenario that I will need to take them forever more .

I recently read an article on the BBC (I’m in the Uk 🇬🇧) about a lady who experienced withdrawal symptoms for over a year which I found frightening.

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I'm new here!

Hi, my name is do_you_know. I'm here because
I am struggling to find support with everything that seems to be happening around me . I am a gay male with HIV who is a survivor of childhood sexual assault, alone with numerous other childhood trauma's. I suffer from many mental health issues and substance abuse. Somedays are a struggle!
#MightyTogether #Anxiety #Depression #ADHD #Grief #PTSD #Insomnia

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An impossible situation…,,abuse trigger warning mostly a vent…..and this is LONG!

I am in a horrible situation. Two years ago I was in a terrible mental state and my son obtained legal guardianship. It was a legitimate move in and of itself. However he lied to the court to make sure he was appointed. He reported that I was severely mentally ill - true fact. But he also reported that I was abusing thc as well. I had never touched the stuff. He was granted his request.

Fast forward to the present and I am in a much better state of mind in regards to thinking processes. I still struggle with my demons mostly resulting from CPTSD. The one and only coping skill I have been able to master is distraction. I live in an assisted living facility and I am the only one in my pod who isnt lost in the abyss of dementia. So there is no socialization possible for me. I spend my days doing various things online. I research a lot about my laundry list of physical and mental health challenges trying to learn ways to alleviate troubling symptoms. I do a little social media among my activities. The internet is my sole distraction coping mechanism.

The impossible situation started in the beginning of December. I started being hounded on social media about a financial grant available through the government for low income disabled people. A few days before Christmas I clicked on the link and the tumble into the abyss unfolded. I was the victim of a sophisticated identity theft scam. They didn’t get anything but my critical identification information before I realized it was a scam.

I took immediate action. 67 screenshots to document every communication. Unfollowing the 6 profiles involved. Reporting to the site administrators. Blocked their profiles. Deleted all messages involved. Changed all of my passwords and their recovery methods. Reported what happened to my son. I did everything I could think of to try to protect myself.

The scammers are not the direct culprit in the situation I am now in. On December 22, my son came to my residence and physically stole my iPad, my iPhone, and my Mac book. Every device I have and paid for entirely on my own. I immediately called the police. They said that they were not familiar with guardianship rights so they were not going to charge him with theft. They believed that guardianship automatically made it a civil matter. I had lost my only grip on self help.

He had made demands as to how my living facility treats me as soon as the courts gave him his title. I am not allowed to leave the facility without him is a biggie. I am trapped in these four walls with no socialization. My family of origin and my friends live halfway across the country so I don’t get any visits with them. Without my electronics there is just nothing for me as far as coping strategies and a connection with the outside world.

Christmas Day he returned my phone and tablet. He had wiped them clean of the programs I had put on them while I put my recovery process in motion. He left no internet access. No browser. Deleted my email address. He left Four programs that he decided were ok. But they don’t function without a browser and email. He then went a step further and hijacked my Apple account and made him the owner. He changed my birth year to 2020 so Apple thinks my profile belongs to a 4 year old and I have no privileges to restore it. He put a pin on every possible avenue to function on my devices. The only thing I could do was talk and text - but he destroyed my contacts so there was nothing. He is the only entry in my texting program. He completely made me a prisoner of these 4 walls. My psychiatrist and therapist are both accessed through telehealth. They are not reachable without a browser. I couldn’t even wish my family a Merry Christmas because I have no contact information. He has done so many abusive things that are not appropriate to go into but I think you can imagine. His abuses run the whole gamut except he has not hit me or SA.

Now the rest of the story thus far. I am a physical and emotional prisoner to myself. I am left dwelling upon all the things that make me think and feel worthless and undeserving. My flashbacks are on overdrive. My thoughts race. Lots of dissociation (DID being only one of many mental health issues). I have always had SI but now it is relentless. The voices become deafening. I use a sleep tracker for insomnia and the longest I have slept has been 1 hour and 18 minutes per night. I lost6 pounds last week. I am having dire problems with my physical health as well. I can’t begin to list them all but just know they are debilitating in their entirety. I am at a point where I don’t know what is mental or what is physical. And I am so alone with it all. The only way I am able to reach out right now is one of my staff brought me her tablet to borrow for a few hours. I can’t touch base with my other programs because he somehow managed to change the passwords.

The staff here are outraged at the things he is doing. To my knowledge there have been four mandated reports of vulnerable adult abuse made. One of the administrators helped me fill out and file court documents to have my son removed as my guardian. They are doing what they can to help but he is taking liberties that are not just causing me harm but also violate my rights as a breathing human being. He is also committing medical neglect as a result of an entirely unrelated matter. As a result I am having stress induced triggers of MCAS, Dysautonomia, POTs, several heart conditions, brain fog, memory issues, can’t eat, rapid weight loss, can’t sleep, already extreme physical pain has become almost intolerable, constantly feeling like something terrible is imminent, stomach motility, IBS flare, migraines the list goes on…

For someone on the outside it might be hard to understand why this affects me so deeply. But incidents from my past are so disrurbing that even my own brain can’t comprehend. It has been a valiant struggle to cope day to day. Distraction is it for me at this point and my son ripped that away. On top of my struggles, I am heartbroken about the possibility of losing my son from my life altogether. I don’t think he even comes close to the realization of the depth of damage he is doing. He says that is protecting me. From what? The scam has already done whatever it is going to do. My info is out there. It does not matter if I am treated like a 4 year old and isolated from everyone and everything. This is insane and is just wrong.

I made arrangements with my phone carrier to get a new phone and a new Apple ID. My son found out because he has a track on my line. He inserted himself into my account violating the privacy policy and dismissed that situation. I pay my own bills and I am the only authorized person on the account. Yet again, he is getting away with violating his power and keeping me in the most alone place I have ever been. He has completely isolated me from the outside world by a series of actions. Then to top it off I feel guilty. The vulnerable adult charges almost guarantee that he will lose his job. He is an RN for a hospice service. If he is convicted he will lose his nursing license. As severely as I am suffering from what I have shared and by what I cannot share in this forum. I do not want him to pay that price. All I want is for him to restore what he has taken and to understand what his other actions and inactions are doing to his mother. He was not raised to treat any living thing with such disdain - especially not in the name of love and protection.

This post was mostly a vent to try and make sense of this mess. It has in fact helped me organize some of my thoughts. I have been working on this post for almost 3 hours now. Am I overreacting? Am I simply regressing into my pothole of mental problems?

Thank you for your time and consideration for reading to the end.

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Happy New Year? :/

I’m having trouble sleeping. New year, same nonsense, huh? I hope everyone is having a lovely day or night, wherever you are. If you’re awake and wish you weren’t like me, just know you’re not alone. Let’s take some deep breaths and hope for some sleep soon. #Insomnia

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