Vestibular Migraine

Today I am featured as blogger on Chronic Migraine Awareness website. Please go support them as we try to raise awareness about these poorly understood and researched conditions.
chronicmigraineawareness.com/2023/03/07/mitas-story

#chronicmigraine #ChronicMigraineSyndrome #ChronicVestibularMigraine #Migraine #MigraineBrainFog #MigraineWithAura #VestibularMigraine #migraineawareness #ChronicPain #Pain #ChronicIlless #Raiseawareness #ChronicMigraines #ChronicHeadaches #OccipitalNeuralgia #Dysautonomia #Fibromyalgia #ChronicFatigue #Spoonie #SpoonieProblems #spoonielife #Support #resilience #creativecopes

I have a visual disability called oscillopsia, which in its simplest form manifests as bouncing vision. How I visually interact with the world directly correlates to my chronic migraine, so my eye doctor is a key member of my medical team.

🤓 Something new I’m trying out: Acuvue Oasys Max Daily Contact Lenses

💡 These lenses were specifically developed for “people with a digital lifestyle.” They are supposed to filter out blue-violet light from screens, fluorescent/LED lights, and the sun. Ideally, they can help migraine patients like me who regularly experience photosensitivity.

⚠️ So far, I’m cautiously optimistic. The lenses themselves are a little less wet than I was hoping for (which is important since I’m currently being tested for autoimmune conditions that can cause chronic dry eye), but they really do dim the world ever so slightly and looking at my computer hasn’t been as taxing lately. Ideally they’ll have a positive impact on my pain levels, but the jury is still out.

What about you?

#Migraine #IntractableMigraine #VestibularMigraine #ChronicPain #ChronicIllness #MentalHealth #Disability #RareDisease #Fibromyalgia

Mighty migraine fam, we’ve heard from so many of you about the importance of the relationship with your headache specialist or neurologist.

For some of you, your doctor is the only one who “gets” it. For others, doctor-patient communication is a frustrating experience. Share whether the above statement feels true or false to your medical care in the comments below.

#ChronicPain #ChronicIllness #IntractableMigraine #MigraineWithAura #HemiplegicMigraine #VestibularMigraine #Migraine #CheckInWithMe #mightywithmigraine #Fibromyalgia

I’d love to get your opinion, Mighty With Migraine fam. In the first decade or so of my chronically ill/disabled life, I used the term “I suffer from…” to describe my journey with migraine. Even on my personal website, my bio included the words “I suffer from migraine” for a long time.

But somewhere along the way, my relationship with my condition changed. I began to accept it more and gradually pivoted to saying “I live with migraine.” The nuance may seem subtle, but it was a big change for me. (The same can be said for how I talk about being disabled.)

I’m curious where you’re at in your own life. Do you prefer to use one wording over another? I’d love to know why.

Regardless, I’m here to reassure you that there’s isn’t a right or wrong answer to this question. It’s about personal preference at the end of the day.

#CheckInWithMe #mightywithmigraine #HemiplegicMigraine #Migraine #VestibularMigraine #ChronicPain #ChronicIllness #Disability #RareDisease #MentalHealth #Spoonie #Fibromyalgia #Endometriosis

We have thousands of first-person health stories on The Mighty — many more than the community even realizes! So we’d love to help connect you with some articles that interest you. Consider this post a human search engine!

Comment with a topic you want to read more about. This could relate to something you’re going through or need (like how to explain the spoon theory to your support system) or interested in (how chronic pain and mental health intersect).

If we can’t find an article that’s a good fit, we’ll pass your interests along to our Mighty editors so they can add it to our content wish list!

Happy reading, Mighties. 📚

#mightywithmigraine #ChronicPain #ChronicIllness #Depression #Spoonie #Fibromyalgia #Lupus #Disability #endometreosis #Migraine #ClusterHeadache #VestibularMigraine #MentalHealth