Vestibular Migraine

Join the Conversation on
Vestibular Migraine
654 people
0 stories
32 posts
  • Explore Our Newsletters
  • What's New in Vestibular Migraine
    All
    Stories
    Posts
    Videos
    Latest
    Trending
    Post
    See full photo

    What’s something new you’re trying out to manage your migraine symptoms?

    I have a visual disability called oscillopsia, which in its simplest form manifests as bouncing vision. How I visually interact with the world directly correlates to my chronic migraine, so my eye doctor is a key member of my medical team.

    🤓 Something new I’m trying out: Acuvue Oasys Max Daily Contact Lenses

    💡 These lenses were specifically developed for “people with a digital lifestyle.” They are supposed to filter out blue-violet light from screens, fluorescent/LED lights, and the sun. Ideally, they can help migraine patients like me who regularly experience photosensitivity.

    ⚠️ So far, I’m cautiously optimistic. The lenses themselves are a little less wet than I was hoping for (which is important since I’m currently being tested for autoimmune conditions that can cause chronic dry eye), but they really do dim the world ever so slightly and looking at my computer hasn’t been as taxing lately. Ideally they’ll have a positive impact on my pain levels, but the jury is still out.

    What about you?

    #Migraine #IntractableMigraine #VestibularMigraine #ChronicPain #ChronicIllness #MentalHealth #Disability #RareDisease #Fibromyalgia

    20 reactions 12 comments
    Post

    Under Informed

    When I was diagnosed with Intercranial Hypertension my Neurologist told me I had Pseudotumor Cerebi, I asked him what it was and he explained, I asked him the risks and he didn't tell me anything except I need to lose weight. I went home and looked it up on my one and found it on the government medical library website, thank God I did. We planned on flying up to see my baby niece and in laws this year, little did I know the risks in flying with Intercranial Hypertension were. Once I saw that I decided I'm never flying again. I've had four spinal taps in the last year and 2 of them failed and caused me severe pain and the wort after effects. Is there anything that alleviates pressure besides a spinal tap? I'm afraid to get one again. I've lost 30 lbs already and still losing but still suffering. Stay strong everyone 💪🏽
    #wearethemighty #ChronicPain
    #ChronicIllness #RareDisease #IIH #iihwarrior #Migraine #Vertigo #VestibularMigraine #chronicmigraine #IntercranialHypertension #CheckInWithMe #checkupwithme #StayStrong #Pain #chronic #neurology

    2 comments
    Post

    Has the weather this month kicked your a** too?

    So nearly every day since the 3rd I have been dealing with a migraine of some kind and I feel like I'm going insane. I want to scream and through everything. It's not so much as the headache pain but more so the symptoms I get when I'm recovering from a migraine. Can't talk or walk straight, body is heavy, sensitivity to light and sound that also causes more migraines, extremely tired, brain fog, ibs and fibro acting up too. Body pain with these symptoms always particularly drive me up the wall. F*** global warming, screw the weather not being stable. How February treated you? #VestibularMigraine #Fibromyalgia #IrritableBowelSyndromeIBS #Migraine

    6 comments
    Post

    Have been having a migraine nearly every day since the 3rd. I feel really sad and alone. When I got sick I isolated myself from everyone and I regret it so much. I wanna be a part of the world again. #VestibularMigraine #ChronicVestibularMigraine #Fibromyalgia

    Post
    See full photo

    True or False: I feel like my doctor listens to and values my opinions.

    Mighty migraine fam, we’ve heard from so many of you about the importance of the relationship with your headache specialist or neurologist.

    For some of you, your doctor is the only one who “gets” it. For others, doctor-patient communication is a frustrating experience. Share whether the above statement feels true or false to your medical care in the comments below.

    #ChronicPain #ChronicIllness #IntractableMigraine #MigraineWithAura #HemiplegicMigraine #VestibularMigraine #Migraine #CheckInWithMe #mightywithmigraine #Fibromyalgia

    12 comments
    Post

    Aura symptoms, concerning or annoying?

    Hi Everyone!

    I have been recently starting my migraine treatment journey and have been more diligent about noticing and tracking aura signs.

    I've noticed that along with the aura and dizziness symptoms that I seem to have a ringing in my ears and hearing loss as well as an uncontrollable hand tremor.

    Do any of you have similar signs?

    Knowing other people experience the same thing is kind of comforting...

    Thanks!

    #Migraine #aura #VestibularMigraine #Tinnitus #Tremor

    7 comments
    Post

    Same time every day

    I have noticed that I have been getting the same pre migraine symptoms everyday. Has any one else experienced this? It's between 6pm and 8pm every day. I am a night owl, so that has always been the best time of day for me. I can't make sense of it. I'm come a long way on my migraine journey, but I am always searching for answers.
    #Migraine #VestibularMigraine

    Post
    See full photo

    Do you “live with migraine” or do you “suffer from” it?

    I’d love to get your opinion, Mighty With Migraine fam. In the first decade or so of my chronically ill/disabled life, I used the term “I suffer from…” to describe my journey with migraine. Even on my personal website, my bio included the words “I suffer from migraine” for a long time.

    But somewhere along the way, my relationship with my condition changed. I began to accept it more and gradually pivoted to saying “I live with migraine.” The nuance may seem subtle, but it was a big change for me. (The same can be said for how I talk about being disabled.)

    I’m curious where you’re at in your own life. Do you prefer to use one wording over another? I’d love to know why.

    Regardless, I’m here to reassure you that there’s isn’t a right or wrong answer to this question. It’s about personal preference at the end of the day.

    #CheckInWithMe #mightywithmigraine #HemiplegicMigraine #Migraine #VestibularMigraine #ChronicPain #ChronicIllness #Disability #RareDisease #MentalHealth #Spoonie #Fibromyalgia #Endometriosis

    21 comments
    Post
    See full photo

    What’s a topic you want to read a Mighty story about?

    We have thousands of first-person health stories on The Mighty — many more than the community even realizes! So we’d love to help connect you with some articles that interest you. Consider this post a human search engine!

    Comment with a topic you want to read more about. This could relate to something you’re going through or need (like how to explain the spoon theory to your support system) or interested in (how chronic pain and mental health intersect).

    If we can’t find an article that’s a good fit, we’ll pass your interests along to our Mighty editors so they can add it to our content wish list!

    Happy reading, Mighties. 📚

    #mightywithmigraine #ChronicPain #ChronicIllness #Depression #Spoonie #Fibromyalgia #Lupus #Disability #endometreosis #Migraine #ClusterHeadache #VestibularMigraine #MentalHealth

    10 comments
    Post
    See full photo

    What migraine type do you want to learn more about?

    Our Mighty editorial team would love to know what kind of migraine content interests you. Since there are so many types, we’d love your help narrowing it down:

    🧠 Abdominal
    🧠 Chronic (i.e., refractory migraine)
    🧠 Hemiplegic
    🧠 Intractable migraine (i.e., status migrainosis)
    🧠 Menstrual
    🧠 Migraine with aura (i.e., brainstem aura)
    🧠 Ocular/retinal
    🧠 Pediatric
    🧠 Silent (migraine without pain)
    🧠 Vestibular

    #mightywithmigraine #VestibularMigraine #HemiplegicMigraine #Migraine #MigraineWithAura #ChronicPain #ChronicIllness #RareDisease #Disability #Fibromyalgia #Endometriosis

    19 comments