late diagnosis

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It hurts

The most heartbreaking thing about being diagnosed #Autistic late for me is how many benefits and possible support systems I might have missed out on when I was younger. And being ostracized for struggles and mannerisms out of my control. #LateDiagnosis #Disabled #Disability

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Being diagnosed late can be traumatic

Being diagnosed #Autistic later in life can be such a traumatic time because on one hand, yeah I now know who I am and why I am the way that I am but on the other hand.. the friends and family that would constantly tell me I was "too sensitive", "too emotional","too much", "too loud", "too quiet" etc, we're condemning me for things I can't control. For the way my brain fucking developed. The way I process life. It's also suddenly brought to light that while not much, the new fits and resources and help I could've gotten, I just had to do without. Do you know how isolating that is?

And for me it wasn't like a gradual thing. Everything sort of hit me all at once. #Autism #LateDiagnosis

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I am a mother with ADHD

I am a mother with ADHD
Overly permissive or too severe
I can never find what is in between
Routine I can never seem to adhere

Confusion is our normal way of life
The children never know what to expect
Why can I not be a more normal wife?
Maybe then everything could be perfect

But perfect is simply a fairy tale
This is something I easily forget
And yet I keep seeking this holy grail
This journey always causes me to sweat

I am trying to find a good middle
Finding it, though, is such a hard riddle

#ADHD #Adhdinwomen #LateDiagnosis #parentingwithadhd #neurodivergence #motherwithadhd #MentalHealth #ParentingWithMentalIllness

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Wellness Wednesday: Latent Autoimmune Diabetes in Adults (LADA)

Latent autoimmune diabetes in adults (LADA) is known by its unofficial name, type 1.5 diabetes. The body's own immune system attacks and kills the beta cells that produce insulin in the pancreas. However, the process of destroying all beta cells takes longer in people with LADA than it does in people with type 1 diabetes.

As you lose the ability to make insulin, your body is unable to control your blood sugar levels. You may not need treatment for many months or years after diagnosis like those with type 1 diabetes.

LADA usually begins after you turn 30, and doctors sometimes misdiagnose it as type 2 diabetes.

In fact, up to 15% of people who are diagnosed with type 2 diabetes actually have LADA. Being misdiagnosed puts people at risk for diabetic ketoacidosis (DKA) and other long-term complications.

Furthermore, if the person does not know they have autoimmune diabetes, they will not be screened for other autoimmune diseases, such as thyroid or celiac disease, which are more common in people with LADA than those with type 2 diabetes.

LADA symptoms are similar to those of type 1 or 2 diabetes. Usually if you don't get better within a few months of taking oral diabetes medications, your doctor might suspect LADA.

LADA is diagnosed with a blood test. Because LADA is an autoimmune disease, individuals with LADA usually test positive for at least one islet autoantibody (a protein produced by the immune system). Tests can be performed on your blood to check for autoantibodies to GAD, IA-2/ICA512, insulin, and ZnT8. These tests vary in cost depending on your insurance coverage.

LADA is usually managed initially through diet, exercise, weight loss, and taking a typical first-line type 2 diabetes medicine, such as metformin.

As LADA progresses, the pancreas gradually loses the ability to produce insulin. Insulin therapy is necessary, as with type 1 diabetes. It is important to monitor blood glucose levels frequently to determine when insulin therapy should be started.

As soon as oral treatments, exercise, and diet plans fail to control your blood sugar, speak with your healthcare provider about insulin therapy.

Sources: DiaTribe and EnM (Endocrinology and Metabolism)

#Diabetes #DiabetesType2 #DiabetesType1 #ladadiabetes #lada #ChronicIllness #prediabetes #Diagnosis #LateDiagnosis #AutoimmuneDisease

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Doomed, or empowered?

Late [Self] diagnosis of a condition that has been with you since birth can be both scary and empowering. I realized I had a similar learning to kids diagnosed with autism or adhd, among other conditions. For me, I found the process extremely cathartic. Once I realized why I am the way I am, I began to feel more in control of my life and where my future was headed. Has anyone else had a similar epiphany? #LateDiagnosis #AdultDiagnosis #SelfDiagnosis #Empowerment

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Navigators, let’s share some stories! How did you first realize you might be neurodivergent?

I’ll go first… ironically, I became a School Psychologist who evaluated students with learning differences and neurodivergent profiles. In just a few years, I realized my brain worked in similar ways and began questioning the possibility of being neurodivergent myself. It has evolved into a special interest of mine ever since! What’s your story? #wonderingwednesday #MightyQuestions #AskMe #Autism #ADHD #obsessivecompulsive #DevelopmentalDyspraxia #Dyscalculia #Dermatillomania #Anxiety #misseddiagnosis #LateDiagnosis #neurodivergent


#Autism Accepting Change

Every year there is an Anime Movie festival that, as a fanatic lover of all things anime, I attend most years.

This year however, due to finances, I (#Autistic #LateDiagnosis ) and my brother (also autistic and I am his #Carer #AutisticCarer ) so we decided to host our own festival.

Guy is excited to have his 2 best friends over, and I have a good Uni friend visiting for the fun.

Have probably over-catered the event but I get enjoyment from seeing others enjoy themselves, and I like baking and the prep.

The only issue I have is allowing someone in my room, which I have to do, that’s where my stigma lies.

Of course you can’t talk to anyone about it because explaining to them why you will HAVE to deep-clean your room and wash your bedding after them using it is both socially acceptable and down right rude.

Understandably so! I know I would be feel offence if I knew someone did after I left.

But it is something I will have to do to feel like I have reclaimed my space. Secretly and without discussion.