May 15, 2025
Hi, my name is ToastyPigeon3263. In the last few months (at age 29!) I was diagnosed with POTS, MCAS, HSD, and suspected reactive hypoglycemia. I'm still in testing for a BUNCH of GI issues. And I'm neurodivergent. It's been a whirlwind.
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I made another meme
Yep, I call Terrible trifecta Unholy trinity
#EDS #EhlersDanlosSyndrome #AutonomicDysfunction #MastCellActivationDisorder #TerribleTrifecta #ChronicFatigue #ChronicPain #UnholyTrinity
4 reactions #PTSD #Gastroparesis #Endometriosis #Sarcoidosis #ColonicInertia #Agoraphobia #MastCellActivationSyndrome #Grief #ChronicIllness #MentalHealth #SensoryProcessingDisorder Hi, my name is Abigail, but with most I go by Abby! :) I’m known as abbysgotguts (although they do not work lol) on my medical-focused social media accounts, mainly on IG. I have a non-profit called Angels Of Strength™️ that I started with my Best Friend Ali. Our non-profit’s website & applications have been on a pause/hold since Ali suddenly passed away (she also was sick since a child) on July 21, 2024. I have been trying to get it going again, it is just so painfully heart breaking to do it without her. But also, there’s NO WAY I’m letting our non-profit just fade into non-existence. It was our baby and made us both so happy. So I’ve been working on ideas/designs to use to give a HUGE upgrade to our website (have a big memorial page for Ali, change around our business cards we put in each Warrior Bag and Hospital Donation we give, but edit it so those who receive a package/donation from us, not only know us and our non-profit’s name, like the card has always shown, but I want it to be clear Ali has passed, but that this is ALL for her from now until, well, forever. Ali will be the center of it all! I vow to make Ali’s name, heart, and smile known, said and remembered forever - even hundreds of years from now when we are all gone from this Earth!!) so I can guarantee/promise that AOS will be up and running as fast as I can physically can (and also, tbh, how fast I mentally/emotionally can….as fast as my heart can handle.). So I made this account to learn more about grief, coping, Ali, my, and our AOS recipients health struggles to make everything that much more personal. I have been sick since a young child and once I hit puberty, all h€|| broke loose! I have good days, bad days, and currently, extremely absolutely horribly bad days. I’m an open book. I’m very open with any question or topic someone comes to me to talk or ask about. Ali also got very suddenly sick as a young child, and like me, seemed to get sicker over time instead of better, with less to no treatments for our diagnoses, mainly just live with it at home in our daily lives with a lot of hospital visits shoved in there….A LOT. I’ve followed The Mighty for a long time now, but I’ve decided to actually make my own account to focus on things I need to and learn a lot more about things I both need and want to for myself, my family, my friends, and honestly just for my own curious mind sometimes!! XOXO
#MightyTogether
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#PTSD #Gastroparesis #Endometriosis #Sarcoidosis #ColonicInertia #Agoraphobia #MastCellActivationSyndrome #Grief #ChronicIllness #MentalHealth #SensoryProcessingDisorder Hi, my name is Abigail, but with most I go by Abby! :) I’m known as abbysgotguts (although they do not work lol) on my medical-focused social media accounts, mainly on IG. I have a non-profit called Angels Of Strength™️ that I started with my Best Friend Ali. Our non-profit’s website & applications have been on a pause/hold since Ali suddenly passed away (she also was sick since a child) on July 21, 2024. I have been trying to get it going again, it is just so painfully heart breaking to do it without her. But also, there’s NO WAY I’m letting our non-profit just fade into non-existence. It was our baby and made us both so happy. So I’ve been working on ideas/designs to use to give a HUGE upgrade to our website (have a big memorial page for Ali, change around our business cards we put in each Warrior Bag and Hospital Donation we give, but edit it so those who receive a package/donation from us, not only know us and our non-profit’s name, like the card has always shown, but I want it to be clear Ali has passed, but that this is ALL for her from now until, well, forever. Ali will be the center of it all! I vow to make Ali’s name, heart, and smile known, said and remembered forever - even hundreds of years from now when we are all gone from this Earth!!) so I can guarantee/promise that AOS will be up and running as fast as I can physically can (and also, tbh, how fast I mentally/emotionally can….as fast as my heart can handle.). So I made this account to learn more about grief, coping, Ali, my, and our AOS recipients health struggles to make everything that much more personal. I have been sick since a young child and once I hit puberty, all h€|| broke loose! I have good days, bad days, and currently, extremely absolutely horribly bad days. I’m an open book. I’m very open with any question or topic someone comes to me to talk or ask about. Ali also got very suddenly sick as a young child, and like me, seemed to get sicker over time instead of better, with less to no treatments for our diagnoses, mainly just live with it at home in our daily lives with a lot of hospital visits shoved in there….A LOT. I’ve followed The Mighty for a long time now, but I’ve decided to actually make my own account to focus on things I need to and learn a lot more about things I both need and want to for myself, my family, my friends, and honestly just for my own curious mind sometimes!! XOXO
#MightyTogether
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3 comments
Hard to feel “mighty” when it’s midnight, you don’t have enough sick time not to go to work tomorrow, you landed in the hospital on Saturday, and you need to sleep but nausea has other plans. #EhlersDanlosSyndrome #POTS #MastCellActivationDisorder
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Today is my birthday. With all due respect, I request that no one wish me happy birthday, please. I’ve been in this rare chronic illness position for 7 years now, about to start year 8. I’ve never been much of a birthday person for myself. Especially not now. No idea why this particular one is hitting me so hard. 7 years no driving, working, going to do regular things. My parents house (which I’m grateful for) to medical appointments and back. That’s it. No idea why I’m writing on here. Kind of feels out of body. I’m can’t figure out if I’m sad, mad, numb or what. Thank you for listening. #DontWishMeHappyBirthday #CerebrospinalFluidLeak #PosturalOrthostaticTachycardiaSyndrome #MastCellActivationDisorder #ChronicVestibularMigraine #RareUntiIItIsNot
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Hi, my name is cdeevers. Hi, I’m Carolyn! I’m a writer, memoirist, and longtime advocate for people navigating hard things—chronic illness, trauma, and complicated relationships.
My own health journey has been anything but straightforward. After decades of misdiagnoses, I finally began piecing together answers about my conditions and how they connected to prolonged stress and trauma. Those experiences shaped not just my health, but also my writing.
I write personal essays, a blog, memoirs, and articles about resilience, faith, and the hidden costs of living through crisis—like my book-in-progress, Knock Knock, Neighbor Tales. My work combines raw honesty, a dash of humor, and a deep belief that our stories can help others feel less alone.
If you’ve ever felt unseen in your health journey or overwhelmed by what life has thrown at you, you’re in the right place. I’d love to connect, share, and learn from one another here.
#MightyTogether #PTSD #LymeDisease #NeuropathyHereditary #MastCellActivationDisorder
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Hi, my name is windowshop1. I'm here because I have MCAS (mast cell activation syndrome and I’m having some hard times navigating it).
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Humour helps me more than healthcare system #EDS #EhlersDanlosSyndrome #AutonomicDysfunction #POTS #Fibromyalgia #nephroptosis #MastCellActivationDisorder #Autism #PeripheralNeuropathy #Gastroparesis #ADHDInGirls #audhd
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