Mitochondrial Disease

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Surrendering by Melanie R.

Surrendering by Melanie R.

And you should remember that the Lord your God led you…to know what was in your heart!

You endured tears only God saw!
You were tested and you passed!

The fire that came to destroy you only refined you.

The weight that came to crush you, only built your strength.

You didn’t give up-

through bloody bruises of pain,

scars of healing,

to your calling!

You didn’t run from the fire, you allowed it to shape you!!

You forgave when you could have fought back!!!!

You loved when your own heart was breaking!!!!

You showed up when you were bleeding inside!!!!

God saw the surrendering!

You prayed…

Heaven is declaring that you are the one that God will reveal!

Divine placement!

Proven!

Ready!

He will not forget your work to help His people!

Blessed is the one who perseveres!

Deuteronomy 8:2
Remember how the Lord your God led you all the way in the wilderness these forty years, to humble and test you in order to know what was in your heart, whether or not you would keep his commands.

Psalm 56:8
Record my misery; list my tears on your scroll—are they not in your record?

James 1:2-4
Consider it pure joy, my brothers and sisters, whenever you face trials of many kinds, because you know that the testing of your faith produces perseverance. Let perseverance finish its work so that you may be mature and complete, not lacking anything.

1 Peter 1:7
These trials will show that your faith is genuine. It is being tested as fire tests and purifies gold—though your faith is far more precious than mere gold. So when your faith remains strong through many trials, it will bring you much praise and glory and honor on the day when Jesus Christ is revealed to the whole world."

Isaiah 43:2
When you pass through the waters, I will be with you; and when you pass through the rivers, they will not sweep over you. When you walk through the fire, you will not be burned; the flames will not set you ablaze.

2 Corinthians 4:8-9:
We are hard pressed on every side, but not crushed; perplexed, but not in despair; persecuted, but not abandoned; struck down, but not destroyed.

Matthew 6:14-15
For if you forgive other people when they sin against you, your heavenly Father will also forgive you. But if you do not forgive others their sins, your Father will not forgive your sins.

Luke 22:42:
Father, if you are willing, take this cup from me; yet not my will, but yours be done.

#InsideTheMighty #PrimaryImmunodeficiency #MightyPoets #MitochondrialDisease #MightyTogether #ChronicIllness #ChronicPain

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Fly High by Melanie R.

Fly High by Melanie R.

Come on, we're ready to go,
To take the flight of faith…let trust flow.
Leaving the false security's nest,
in His hands, we can go…
we'll find rest.

Nested in the Tree of Life,
prayer roots run deep,
Though the winds and rain may come,
shielded by belief,
you'll be forever free.

So free!
So free!

He taught me to fly;
To reach new heights!
With visions clear and eagle's sights.

Higher than mountains,
higher than pain…
In His arms, I find peace,
freedom released.

Fly fly fly!

Higher than the firefly's twilight gleam,
He carries me close, a whispering dream.
In His embrace, my heart takes flight,
Soaring through shadows, chasing the light.

So, come on, let's take this flight
With His promises, we touch the sky,
And in His grace we take flight!

Fly high!
Fly high!!
Oh so high!

I love my Lord Jesus!

Colossians 2:6-7
So then, just as you received Christ Jesus as Lord, continue to live your lives in Him, rooted and built up in Him, strengthened in the faith as you taught, and overflowing with thankfulness.

Romans 4:20-21
Yet he did not waver through unbelief regarding the promise of God, but was strengthened in his faith and gave glory to God, being fully persuaded that God had power to do what He had promised.

#MitochondrialDisease #InsideTheMighty #PrimaryImmunodeficiency #MightyPoets #CheckInWithMe #ChronicIllness #ChronicPain

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Sanctified by Melanie R.

Sanctified by Melanie R.

My Lord, Our God, Our fortress
Stands watchful over all.

Rock of ages,
past and present,…
and time that’s yet to come.

His faithfulness forever
His plan for our lives complete.

Drawn up before the sands of time;
His blueprint plan for my life.

Many challenges rise
and through-
His loving grace abounds…

shielding us,
guiding us,
providing assurance!

Covering us through the night-
Sanctified In unity!

A shout of hopeful praise-
The bridge to salvation was laid

For God has summoned His faithful,
His chosen ones to follow.

God, our strength, and shield;
In love and faith, our spirits healed

With God our Father,
We embrace the future,
cast aside all our fears.

Only through the love and life of Christ-
we’re sanctified!

Thank you Jesus!

You saved my life!

It was You all the time-

I give you my life!

Sanctified!

Sanctification:
the process by which believers are set apart for God's purpose, made holy, and conformed to the image of Jesus Christ.

It is an ongoing work of the Holy Spirit in the life of a believer, enabling them to live a life that honors and glorifies God.

The process of sanctification involves:

Regeneration:
At the moment of salvation, the Holy Spirit regenerates a believer's heart, giving them a new nature that desires to please God.

Justification:
Through faith in Jesus Christ, believers are declared righteous before God.

Transformation:
As believers continue to grow in their faith, the Holy Spirit works to transform their thoughts, desires, and actions to align more closely with God's will.

#InsideTheMighty #PrimaryImmunodeficiency #MitochondrialDisease #MightyPoets #MightyTogether #CheckInWithMe #ChronicInflammatoryDemyelinatingPolyneuropathy #ChronicPain #ChronicIllness #

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Through the Valley by Melanie R.

Through the Valley by Melanie R.

The blood declares your future-
and can’t be over ruled!
Jesus’ sacrifice paid the way to victory.

If you see the shadow,
light is present.

We go THROUGH the valley…

We’re not in the fire to die;
We’re in the fire to shine!

You are almost there.

Not delayed-
Destined.

Let faith rise again.

Holy nation,
God’s special possession
to set others free!

The blood has spoken,
the cross has sealed it!

This is The hour!

Almighty God,
the ancient of days,
unmatched Majesty,
we come before you,

We know who You are-
You are the God who spoke the stars-
into existence
You hear the whispers
of our weary hearts.

Claim us!
Mark us!
We stand under the shadow of the cross!

Thank you Father!

Let those with ears to hear, hear and God bless you mighty warriors with divine healing over your body, mind, and spirit!

Amen and Amen!

#InsideTheMighty #PrimaryImmunodeficiency #MitochondrialDisease #ChronicIllness #ChronicPain

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Til’ We Meet Again by Melanie R.

Til’ We Meet Again by Melanie R.

Our hearts come together.
somber reflections,
As we mourn lives lost-
and what used to be,
a remembrance replaying on our heartstrings.

The pain of grief cuts so deep,
And bleeds each tear we cry…
So hard to be here in this moment to have to say goodbye.

For we know even in the depths of this sorrow,
Jesus holds them close,
holds hope for tomorrow.
For death is not the final end-
Not goodbye, til we meet again.

Lord promises restoration,
redemption, all things new.
A life of peace.
Hopeful mercy new.

And death no longer can take away
in the midst of grief;
sorrowful pain.
May we find strength to rise again;
to celebrate their lives again!

Holding onto hope's embrace,
And trust in God's unfailing
grace.

(In honor of Marge and Tom -
We love you!
Til we meet again!)

#Grief #MightyMoment #MitochondrialDisease #ChronicInflammatoryDemyelinatingPolyneuropathy #ChronicIllness #ChronicPain

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Fire! By Melanie R.

Fire! By Melanie R.

Forged in the fire for impact.
The test before the throne through the wilderness…into the wonder.
Stay faithful!!
Not to breakdown,…
but breakthrough.
Pass your test!
Take your place in the kingdom.
Holy fire to awaken!
We rise!
We endure!
We over come as pure gold!
Revived for glory!
Broken chains of shame!
Shaking thundering voice,
declaring that this will birth me!!!

The crushing that unlocked the oil-
To burn through the darkness,
and burn through the night.
Consecration-
and burned in our bones,
for His will, and processing light!

Fire!

Power clarity!
Marked by glory!
Reflecting the spirit in praise!
Fire!

1 Peter 1:6-8
In this you greatly rejoice, though now for a little while, if need be, you have been grieved by various trials, that the genuineness of your faith, being much more precious than gold that perishes, though it is tested by fire, may be found to praise, honor, and glory at the revelation of Jesus Christ.

#ChronicIllness #ChronicInflammatoryDemyelinatingPolyneuropathy #MitochondrialDisease #InsideTheMighty #PrimaryImmunodeficiency #MightyPoets #MightyTogether #ChronicPain

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Chosen Soldier by Melanie R.

Chosen Soldier by Melanie R.

I am a chosen soldier
in the army of The Lord
Presence,
Spirit lifted
Sovereign Word,
my trusted sword.

I put on Ephesians armor;
Found ready,
as we stand.
Together He battles with us,
fight for good, and Glory land.

The breastplate of righteousness
adorned across my chest
Protects and helps guide us.
My heart source brightly cleansed.

The helmet of salvation
Covers and Keeps watch.
Shielding darts,
casts down arrows,
diffuses negative thoughts.

Washed robes of White.
Mercy’s priestly gown.
Anointed Oil of Righteousness,
Lamb Sheared without a sound.

Unblemished armor,
Clothed in strength.
Mercy’s knight-
Shield of faith;
provides a fortress to
Reflect His Holy Light!

Covered by King’s glory.
Truth belt buckled in.
Following His Story,
fueled this fire from within.

Yielded body
Willing forge.
Faithful soldier;
Unsheathed sword.

Marching onward
torrential battles…
crushing giants forThe Lord-

Designed to knock down strongholds,
Conquer fear, and destroy doubt.
Anoint us as we travel,
steadfast martyrs for the crown.

To God be the Glory!

#InsideTheMighty #MightyPoets #PrimaryImmunodeficiency #MightyTogether #MitochondrialDisease #ChronicPain #ChronicIllness #ChronicInflammatoryDemyelinatingPolyneuropathy
#RareDisease

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The Shepherdess Keeps Watch By Melanie R.

The Shepherdess Keeps Watch
By Melanie R.

In darkness deep and shadows cold;
shepherdess stands, brave and bold.
A chosen instrument of the Lord,
strengthened,
guided
by His Holy Word.
Thought of like David, last, but not least.
God’s proven strength.
Power to teach.

A guardian now,
for His flock;
for His kin.
Holy Spirit’s light flowing from within!

Faithful prayer and intercession,
She’s trained for this intention:
To watch and care,..
trust His way
The Lord's own sheep…
His legacy.

Filled with Spirit’s Holy Might.
From dawning day, through darkness;
She helps cover the night-

The shepherdess keeps watch-

No enemy gets by…

Leads us to pastures green,
calm waters clear-
But she’s ready to fight!

He carries us in His loving arms,
Protecting-
keeping His sheep from harm.

Isaiah 40:11
He will feed His flock like a shepherd.
He will gather His lambs with His arms;
And carry them in His bosom.

John 10:11-12
I am The Good Shepherd!
The Good Shepherd lays down
His life for His Sheep.

#MightyPoets #MitochondrialDisease #SjogrensSyndrome #AutoimmuneImmunodeficiency #ChronicIllness #ChronicInflammatoryDemyelinatingPolyneuropathy #ChronicPain

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Holy Mountain by Melanie R.

Holy Mountain by Melanie R.

I looked to the hills
where great mountains stand.
For all of my help
is from God’s righteous hand.
They reach to the heavens as they do declare,
the signs of His wonder-
His glory, and care.

The height of His Majest….

My Rock,
cornerstone.
Atop there with Him,
I feel comfort-

I’m home.

The Rock that was thrown down,
rejected,
then rolled…ooh..ooh…

Now holds me together,
shows mysteries unknown.

Mt. Tabor’s prominence;
Mt. Carmel stood tall-
proving…
there’s One God that reigns over all!!

In His holy mountain,
with Him by my side,
in hearing His word,
growing faith,
I abide.

The gush of the water
that came from the stone,
Rained living water;
restoring me whole!

Thank You Jesus!

Isaiah 48:22
And they did not thirst
when He led them through the deserts.
He caused the water
to flow from the rock for them;
He also split the rock,
and the waters gushed out.

Stay Strong Mighty Warriors,
and God be with you all! 🙏💪🏻🏔️

#MightyPoets #InsideTheMighty #MitochondrialDisease #AutoimmuneImmunodeficiency #ComplexRegionalPainSyndrome #ChronicIllness #Dysautonomia #IrritableBowelSyndromeIBS #MultipleAutoimmuneSyndrome

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Gabbie’s Blog Post That I Found On The Sisters Of Life Website About Her Life Journey Because I Can’t Sleep (Her sister is a nun)

My Thoughts I miss you Gabbie, but I know you are in Heaven. I can’t imagine what it is like over there it must be beautiful. I mean what could be better than worshipping all day long and finally pain free Amen!
When I was twelve years old, I noticed that my left eye started to droop and my energy began to decline. I was sleeping 12 hours a night and taking three- to four-hour-long naps a day. I went to several doctors to determine what was going on. I was diagnosed with Kearns-Sayre Syndrome (KSS). KSS is a mitochondrial disease that affects my eyes, height, muscles, energy, and heart. My teenage years were difficult as I battled the burden of not being like everyone else. It was overwhelming.
I told my mom I wanted to go to Lourdes, France, to be healed. Lourdes is where Our Lady, under the title the Immaculate Conception, appeared to St. Bernadette in the year 1858. Many who pilgrimage there have been healed in the miraculous spring.
Our family of seven journeyed to France; however, I did not receive the instant healing I wanted. So much effort went into getting our family there, that I felt like I let everyone down when I was not physically healed. I was bitter and heart-broken. I thought God didn’t want me to be healed.
I tried giving Him the silent treatment. I took down all of my holy images of Jesus and stopped praying. I went to church with my family and prayed before meals, but I felt nothing. The way I saw it, God didn’t love me enough to heal me – to heal me how I wanted to be healed. I entered a dark place in my life, telling myself I was hopeless. Several times, I felt I did not want to carry on with my life; I wanted to end it. Little did I know at that time that I was being healed, just in a different way.
I can’t exactly tell you how I conquered my depression and anger. I wish I could remember the exact day, the exact moment my heart softened, but I can’t. I just know that my heart changed when I realized God didn’t want me to suffer. I started praying again and put my holy statues and pictures of Jesus back in their rightful places – back in my heart. I suppose that you can’t have light without darkness; I look back at this time in my life and thank God for never leaving me, even when I tried running from Him. I am grateful He had hope in me.
Even so, I definitely still had hard days when I wished and prayed for miraculous healing. In 2015, I experienced heart failure. It was the scariest day of my life when I heard those words, “Heart. Failure.” I had to prepare for serious heart surgery, and for the first time I was facing and fearing death. I was in the hospital for a month.
When I was in the hospital, Sr. Jordan Rose shared with me these two words: “Take Heart.” It says in Psalm 27: “Let your hope be in the Lord; take heart and be strong; yes, let your hope be in the Lord.” This means, “Have courage! Have hope!” I came to know that “my health may fail, and my spirit may grow weak, but God remains the strength of my heart. He is mine forever” (Ps 73:26) .
My experience of suffering has brought me closer to Jesus. I am strongly inspired and drawn to Blessed Chiara Luce Badano. Her words, “For You, Jesus…If You want it, I want it too”, remind me to trust and have hope in the Lord’s plan for me. When I look beyond myself, I can unite my suffering with that of others, and I can unite my heart with the heart of Jesus. I find myself praying throughout the day, “Jesus, I trust in You.” When I wake up, when I am anxious, when it’s quiet, in all things, I pray: “Jesus, I trust in You.”
This journey hasn’t been easy, but my family and friends have carried me through. In hard times, my family looks for the good. We are a family of hope.
Hope is believing something good is going to happen. If you are struggling to hope, I recommend reading Fr. Michael Gaitley’s book, 33 Days to Merciful Love. This book encourages you to hope like Mary did at the Cross, to believe in God no matter how dark life gets, and to praise God no matter what is happening.

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