Join the Conversation on
108 people
0 stories
7 posts
Explore Our Newsletters
What's New in

I read on the Chrons/Colitis site that Wednesday is World IBD day. . #IBD is real #notalldisabilitiesarevisible

I dont hide that I have been challenged by U.Colitis since 1997. I may even wear my IBD support tee shirt tomorrow...
24 years is a long time to be dealing with this illness & its complications.
At least more people are aware of what it is now, than they were when I was first diagnosed.

See full photo

But you’re too young

▪️Well thank you for pointing out I am “too young” to park in handicap, my body and doctor say otherwise. I absolutely HATE parking in handicap and I never do unless it’s absolutely I may just leave in the middle of my grocery shopping with nothing because I just can’t keep going. But what you can’t see is waking up in pain, crying yourself to sleep, feeling like you’re going to faint when you stand up and feeling like you can’t do it anymore. What you can see is someone who looks relatively healthy. So next time you have a question about MY body I’ll give you a little education 💁🏻‍♀️▪️ #notalldisabilitiesarevisible #InvisibleIllness #ChronicPain #PosturalOrthostaticTachycardiaSyndrome #EhlersDanlosSyndrome

See full photo

Service dogs

So, I have a small service dog, and this is my first time posting here. I am a teen handler and was wondering if anyone else has an SD? If so share something about them, and if you’re feeling really comfortable list what their task is! I would love to chat with new people, so I’ll go first. This is Dobby and she alerts to blood pressure spikes and dips, disruption, disassociation, and learning more! #PTSD #ServiceDogs #BipolarDisorder #PanicDisorder #PanicAttacks #HarryPotter #MentalHealth #ChronicIllness #notalldisabilitiesarevisible

1 reaction 10 comments
See full photo

Living With Autoimmune Disease #notalldisabilitiesarevisible

At work people think that I am making excuses for being sick. They don’t know the battle I am facing every single day. People judge you for being lazy. They don’t know how it feels waking up in pain. People turn their back on you. They don’t understand a thing or two how painful it is. The pain doesn’t go away easily. There wil be good days but most of the time bad days. Living in pain almost your entire life is probably the worst to some without AI. I don’t wish this thing to happened to others, but please be compassionate to us. Understand how we deal with this pain almost every day. Life is too ahort not to enjoyed it, but for us with AI we simply learned to be thankful for all the good days that we’re not in pain.


Traveling #notalldisabilitiesarevisible

Today I was traveling home from my holiday, 9 hours in a car killed me but one thing made me smile at the services, the disabled toilet doors had a sign on them, “not all disabilities are viable” even tho I don’t use them I’m glad it’s there for people who do, who need them and get judged for it because they don’t look as they need it,


Invisible disabilities week

Hi I’m Steph & I have fibromyalgia.
You can’t see it. I have two normal looking arms, two normal looking legs and a normal looking back. I wear makeup, wash my hair, dress ok (I think) I even go to work. I can walk. Sometimes miles, sometimes steps. You can’t see my pain. You can’t see my chronic fatigue (no I’m not “just” tired) insomnia, restless legs, night sweats, irregular temperature gage, hyper sensitivity, allergies, anxiety, migraine, chronic pain, but I have them all.
Most people, even my friends and family, scroll past my fibromyalgia related posts because it’s deemed “negative” or “attention seeking” to bang on about something less favourable than a night out or a cute kid pic. Truth is that negativity is our reality and you can’t even see it to believe it.
We need you to believe us in order to raise awareness of our condition and the THOUSANDS of other invisible disabilities that aren’t seen but ARE real!
My disabled badge doesn’t prove my disability. I still get judged if I use it to park in a disabled space. I get judged for not being as bad as others, and then for being worse than some. Please help me, not necessarily by sharing this post or liking it even, but by believing me.
#invisibledisabilities #Fibromyalgia #IDW18 #makinginvisibleillnessesvisible #makingfibromyalgiavisible #notalldisabilitiesarevisible #dontjudgewhatyoucantsee #disabilitiesarentalwaysphysical #MentalHealthAwareness #InvisibleDisabilitiesWeek2018