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Frusteration
I have lived with seizures going on 4 years now. It took me almost 6 months to get diagnosed because my parents didn't believe what was going on (even though they heard the thrashing in bed at night and saw my bruises and how tired I was and how much pain I was in)
I am now 18 almost 19 and am in foster care. The hing is, I wasn't diagnosed with epilepsy. I was diagnosed with Psychogenic non Epileptic Seizures. Not a lot is known about my condition, although new research suggests that a lack of gray matter in the brain could be the cause. Its so frusterating because medical professionals don't always see my seizures as being real. For example 911 has been called many times when I've unfortunately had a seizure in public and when told it's not epilepsy they immediately start yelling at me to stop faking it.
Let me say I've been told by 5 different neurologists that there is no way I am faking this. They also told my mom that when she asked.
Unfortunately because of the severity of my symptoms I was laid off of my last job and am struggling to find employment that will work with me.
I just wish there were people out there who understood and that would work with me.
Any suggestions?
#SeizureDisorders
