TogetherWeAreStrong

To say I was gutted is an understatement, I was so looking forward to spending time with all the lovely people I have been in contact this year, spending time in a safe community where no one judges anyone and with my best friend Jackie.

Three days before though I went in a flare my head was pounding, I was so dizzy I had to walk around the furniture to keep on my feet, my skin was sensitive to touch, like tap it and it feels like I have been stabbed with a hot iron.

It sparked off my IBS and the pain in my left leg was agony.

MS found all of my weak spots and kicked me to the kerb.

It is so difficult to plan anything when you have a chronic illness. This weekend away had been booked for over a year, so not only was it the cost but the heartbreak of not being able to go.

#stopms
#TogetherWeAreStrong

Isn’t it crazy to think you could be in a shitload of mental mess and not even know it? I was called narcissistic today. Instead of getting angry, I reflected. I wondered what could cause this person to think of me this way. I realized it’s my fault. I was never the type of person to express myself or facts about my mental illness. My friends think I’m the “go to” person to talk to. I’m their Buddha so to speak but I never yelled out to them. Never opened up. So my erratic behavior and anguish can sometimes come off as narcissistic? I realized that I’m not perfect but now that I’m trying to self-heal...I’m also realizing how much damage being silent can cause. I kinda wish I could turn back time and apologize to everyone I’ve hurt but I can’t. I can apologize which I’ve done but I can’t undo the hurt. The pain. That makes me so upset and triggers me...not being in control but I leave it and let it simmer within my faith. All I can do is receive the message and work on me. That’s all anyone can do...right?

#Anxiety #NarcissisticPersonalityDisorder #hopeful #TogetherWeAreStrong

Tomorrow at 12:00 noon I will be doing a Facebook live session for The Mighty for Rare Disease Day. It’s noon for the east coast and 9:00 am on the west coast. I hope everyone will tune in.❤️
#TogetherWeAreStrong
#PompeAwareness
#RareDiseaseDay2019