Rare Disease

Mighty staffer @sparklywartanks was recently having an interesting conversation about the definition of “normal,” especially as it relates to managing a mental health condition. It got her thinking about how she defines “normal” and how she learned to recognize the difference between her symptoms and her true personality.

She realized that her definition of “normal” has changed over time. Ultimately, she feels it’s her relationship with self-awareness that helps guide what “normal” means to her each day.

What are your thoughts? How do you define “normal” while living with a health condition? How does your relationship with your health shape that definition?

Feel free to share your insights below! 👇💭

#MightyMinute #CheckInWithMe #ChronicPain #ChronicIllness #Disability #RareDisease #MentalHealth #Anxiety #Autism #Parenting #PTSD #ADHD #BorderlinePersonalityDisorder #BipolarDisorder #ObsessiveCompulsiveDisorder #EatingDisorders #Depression #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

One distinct part of living with a health condition—especially a rare disease (diagnosed or otherwise)—is having to explain, and re-explain, what it’s like to manage it. Fluctuating, changing, unpredictable, and under-researched symptoms can make it difficult for others to fully understand how to support you or empathize with your experience.

What’s something that’s often misunderstood about living with your rare disease?

💌 Feel free to share with us below.

#RareDisease #ChronicPain #ChronicIllness #GeneticDisorders #MentalHealth #Disability #Migraine #SUNCTHeadache #StiffPersonSyndrome #MedicalZebra #EhlersDanlosSyndrome #Spoonie #MarfanSyndrome #EmptyNoseSyndrome #Syringomyelia #Neurosarcoidosis #BehcetsDisease #FunctionalNeurologicalDisorder

We're heading into the weekend, Mighties!

Depending on what your weekdays look like vs. your weekends, your routines may look different. What may have been a priority on weekdays may not be as important on the weekends or vice versa.

What do your routines look like on the weekends? Are they similar or different than your weekday routines? If they're different, how come?

#52SmallThings #CheckInWithMe #Selfcare #MentalHealth #Disability #ChronicIllness #ChronicPain #RareDisease #Anxiety #Depression
#Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

Depression often pulls the mind into the past while anxiety pushes it into the future. The present moment is where calm lives. Learning to notice where your thoughts go and gently bring them back builds emotional balance and mental strength. This simple awareness exercise can completely change how you experience stress and overwhelm. Try it today and tell me if you felt the shift.

Also, if you're going through a tough time right now, I want you to know that I post daily mental health videos about how to deal with painful thoughts. So if you or anyone you know is struggling and wants help, click on one of the links below or write me if you have any questions you want me to answer

www.instagram.com/thomas_of_copenhagen

www.tiktok.com/@thomas_of_copenhagen

~ Thanks to all. Thanks for all. ~

#MentalHealth #MentalHealth #Depression #Anxiety #BipolarDisorder #BorderlinePersonalityDisorder #Addiction #dissociativedisorders #ObsessiveCompulsiveDisorder #ADHD #Fibromyalgia #EhlersDanlosSyndrome #PTSD #Cancer #RareDisease #Disability #Autism #Diabetes #EatingDisorders #ChronicIllness #ChronicPain #RheumatoidArthritis #Suicide #MightyTogether

Mighties, let’s picture ourselves on a road trip right now. If your symptoms were in charge of the music, what song would they choose to play? What makes that song a good fit for today? 📻🎵

#MightyMinute #CheckInWithMe #ChronicPain #ChronicIllness #Disability #RareDisease #MentalHealth #Anxiety #Autism #Parenting #PTSD #ADHD #BorderlinePersonalityDisorder #BipolarDisorder #ObsessiveCompulsiveDisorder #EatingDisorders #Depression #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

When creating a routine that works best for you, your health, and your lifestyle, it’s important to take note of different factors that will impact how effective that routine will be for you.

Mighty staffer @sparklywartanks says the most important factors for her when it comes to creating new and effective routines is always taking into consideration how energy and sleep plays into that routine. Would she need to wake up or go to bed early? How much energy would this routine require to complete every day?

#52SmallThings #CheckInWithMe #Selfcare #MentalHealth #Disability #ChronicIllness #ChronicPain #RareDisease #Anxiety #Depression
#Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

Overthinking keeps the mind stuck in regret about the past and anxiety about the future. Reflection is the tool that brings you back into the present. When you ask better questions, you gain clarity, emotional control, and calm. This simple habit trains your brain to stop spiraling and start learning. Which question helped you the most? Save this for the next time your thoughts race.

If you want to learn more about this, check out my video by clicking on one of the links below.

www.instagram.com/thomas_of_copenhagen

www.tiktok.com/@thomas_of_copenhagen

~ Thanks to all. Thanks for all. ~

#MentalHealth #MentalHealth #Depression #Anxiety #BipolarDisorder #BorderlinePersonalityDisorder #Addiction #dissociativedisorders #ObsessiveCompulsiveDisorder #ADHD #Fibromyalgia #EhlersDanlosSyndrome #PTSD #Cancer #RareDisease #Disability #Autism #Diabetes #EatingDisorders #ChronicIllness #ChronicPain #RheumatoidArthritis #Suicide #MightyTogether

Keeping up with routines can be challenging. From balancing responsibilities and health symptoms, to time management and scheduling, it's not always easy to maintain regular routines.

What do you find is your biggest challenge when it comes to staying the course?

#52SmallThings #CheckInWithMe #Selfcare #MentalHealth #Disability #ChronicIllness #ChronicPain #RareDisease #Anxiety #Depression #Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie