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Calling all parents of kids with special needs and disabilities!

Hi there, I've just created a group for parents of children with special needs and disabilities.

I'd love you to join!

I have two adopted children, one of whom has special needs. We're in the process of an autism assessment at the moment.

I'd love to connect with other parents and caregivers with similar and different experiences. I've made it a closed group because I think it's important that we can share and encourage each other in privacy.

#SpecialNeedsParenting #SpecialNeeds #Autism #Parenting #SpecialNeedsParent #specialneedsmom #autismparent #disabledchild #raisingadisabledchild #Children #Child #autisticchild #Carer #ADHD #childmentalhealth #anxiousparent #parentanxiety

Please join... I would love to meet you and hear your story :)

Parents of children with special needs and disabilities | An Online Health Community

This group is a safe place for parents and caregivers of disabled children and children with other special needs to come together, encourage each other, and share insights, wisdom, thoughts and questions.
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Don’t forget us

Many families feel forgotten. Isolation is real and lonely especially when it comes to Autism. We can’t attend events, catch up with friends, celebrate birthdays and other special occasions, even within our own families. It’s not because we don’t want to but it’s because the safety risk, the meltdown risk, the anxiety…sometimes is just too much. Other times it’s just a bad day, there will be too many triggers, there will be too many people, too much noise and the specifics of the event may be too much-like not everyone enjoys the singing of Happy Birthday.

Eventually over time our friends dwindle and so do our invites. We start out with having an empty seat at the table but eventually someone hangs a coat off of it, or it becomes taken by someone new to the social circle.

We do not need constant invites.
We do not need offers to babysit.
But, we do need support even if we don’t ask for it.

What does support look like?

It’s the effort of just being there.

It’s a simple “you got this” text.
It’s a “I’m here” on Facebook messenger.
It’s a favorite thing-a bottle of wine, a coffee, chocolate chip cookies, or a book-left at your front door.
It’s a smile, “a don’t worry about it”, a virtual hug when you need it the most.
It’s listening without giving advice.
It’s an “I don’t understand but I would love for you to tell me”.
It’s a “I understand”.
It’s a “hope to see you next time”

It’s non-judgement.
It’s kindness.
It’s understanding.
It’s no expectations.

Please leave the empty chair for us at the table. Let it be a reminder that we want to be there. We love you, we miss you, and we need your friendship. #Autism #autismparent

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Autism parents and the quarantine// anyone else struggling?

I have a 5 year old in the spectrum. His routine has been greatly disrupted between school being cancelled (until most likely next year), his usual favourite places not being an option and activities being cancelled. Meltdowns are so much more frequent and I’m really finding it hard to get through a “normal” day. I have other children (1 and 3) who I am trying to parent as well and just feeling all around guilty not having the usual patience and time for them all that I normally do.

I am so exhausted. My husbands job is considered essential so it’s just me. I realize all of these changes are necessary but I’m just needing to rant I guess. My anxiety is through the roof and mom guilt is out of control.
Does anyone else feel the same right now? #Anxiety #Autism #autismparent #PPD #tired #Guilt

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This is my daughter, on Easter Sunday 2008. She picked out her own outfit. This was only a year after we learned that she is autistic, and that day I was in a good enough mood to laugh at her clothing choices. Other days I would have made her change. I was always afraid that someone would think I was a bad mom. Now she is 16 and I've learned the value of letting her be herself, even if that means she stands out a bit. She has so much to offer the world. #Flashback Sunday #Autism #autismparent #girlswithautism

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#autismparent #AutismAdvocacy #Kids #Podcasts">

No clue about what Autism is? Neither did we. Until we spoke with Jeramy Hope. He is dedicated to Autism Advocacy and is working hard to bring more awareness on the topic. This episode also has a special ending. Jenna Hope shared with us what to do if you've discovered you have autism.

What You Came Here For // Check out Jeramy's work to bring more awareness to the area of Autism on his blog: and Also check out that first article Jeramy mentioned about his initial grappling with the labels of Autism here:

Who We Are // Beyond the Pew is dedicated to exploring real life experiences of people who are taking their Christianity beyond the church walls.

Join Us // If you want to stay updated on new episodes follow us on Facebook: and on Instagram:

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It’s not THAT bad right?!?! #autismparent #autismmom #AutisticAdults #Autism

Using This as my journal this was this morning!
(Btw my son is 17 and considered severely autistic)
Welcome to my world
Spent All night repairing the side security screen door (Logan managed to push it off the frame😁🙄)
He’s 6’4”, 210lbs;)

Was SO happy to finally sleep
In my bed and not in the living room (with one eye open) so he doesn’t leave.

I recently taught him how to use his iPhone to make calls. He uses FaceTime
All the time now placing orders from his room to ask me to bring him a water!LOL!

He FaceTimed me this morning while I was sleeping, and YEP, “mom, water please” it wasn’t until my eyes could focus that I realized he was at the AIRPORT!😂😳😊

..and YEP, as you can door is again pushed right off the frame..

Thankfully not LAX but John Wayne, (which is closer) I kept it cool and said, “wow Logie! You at the Airport?”
“Yea, mom water please”
Me- “ok Logie on my way!”

We FaceTimed the whole time while I got dressed and drove there!
I pulled up to the terminal with perfect timing! He was just walking out, with his rolling back pack, I waved and pulled over, he waved, “hi mom... I love you mom..??” (Just to make sure I wasn’t mad;)

We went for breakfast and then home!

Welp he got that out of his system!
I’m actually very impressed and if it wasn’t for him “breaking out” I would have never known he could have done this!?
(I would have NO CLUE) how to take busses there🤔)

I asked if he got in any trouble in the airport and he said No, he CAN’T lie so I believe him;)

He just walked around got thirsty and too tired for the trek home😊❤️🤙✌️

It’s a good thing right?! It’s not me being a Terrible parent, it’s a good thing!!!

Btw, stay tuned for my book!
If it ever gets done...but I’m workin on it;)

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Sensory Friendly Theaters #Autism What are your thoughts? Good or Bad Idea?

I myself have not taken my son as I’m afraid if the next movie we want to see isn’t “sensory friendly” that he won’t understand that moving/ being vocal is frowned upon. Thoughts? #autismparent


How can I take care of myself when I'm already a caregiver!

I have been in a deep depression for several weeks. A couple months ago I found out that I am a carrier of genetic dementia, and I'm struggling to process it all emotionally. I'm not really functional now, but I am a stay at home mom of 3, including 2 teens with autism. Now my therapist has prescribed self care and bed rest only for 2-3 weeks, and no driving. But how can I do that with children who need so much from me 24/7? Even if I don't do the housework, knowing that it's piling up is just as much stress as doing it. And not taking my kids to their social skills groups will cause problems for them. How can I possibly manage being a caregiver when I'm the one who needs a caregiver? I'm so scared and angry and lonely. #alzheimers #Dementia #dominantlyinheritedalzheimersdisease #ChronicIllness #Caregiver #Autism #autismparent #CheckInWithMe #needhelp


What do you think and feel when professionals are giving you advice and training about how to help your child? #autismparent #SpecialNeedsParenting

What is helpful? What is not helpful? What hurts? What do you wish your child’s therapists and teachers could understand about your experience? Please post a quick video (under 5 minutes) or message sharing your thoughts! I’m looking for words of wisdom to share in a staff training. Please share!