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My Continued Thanks 💝

This is just a short post to show my gratitude for your patience, support and understanding while I have been experiencing health challenges that have caused me to not post as much as I would like to, and usually do. As I’m sure you’re well aware of, living with chronic health conditions brings many challenges and I know that you will all be able to relate to the feelings of wanting to do something and actually having the physical ability to do it. Thank you all so much, I hope to be back soon. 🧡💙
#FunctionalNeurologicalSymptomDisorder #FND #fndaware #FNDAwareness #Fndlife #ChronicIllness #ChronicPain #JointHypermobilitySyndrome #BackPain #MentalHealth #Anxiety #Depression #Migraine #Spoonie #Selfcare

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My little mascot…

Last night I really struggled to get some sleep. On Friday, while walking from a shop to a taxi, I lifted my left leg to take a step and I felt a twinge in my lower back. Then, when I went to lift my right leg to do the same, I nearly crumpled to the floor as an intense cramp went through the entire of my lower back. I managed to hobble my way to the taxi and got myself home.

I’ve been using heat pads and an anti-inflammatory gel and it’s given very little relief, but I persevered. Then, last night at around midnight I had a POTS episode whilst I was on my way to the bathroom before bed. I fainted and hit the floor hard, according to my mum. I’m just glad I wasn’t conscious when I hit the floor because I can only imagine the pain I would’ve felt.

After the episode, I really struggled to get up, get to the bathroom and get to bed. But I managed it. I took extra painkillers but I just could not get comfortable. I tried lying on my side with a pillow between my knees, I tried lying on my back with a cushion under the curve of my spine. Nothing was working. Eventually, I gave up and pulled out my laptop to do some more notes on my novel.

As usual, Loki was sticking to my side. Like he normally does when I’m unwell or in pain. He came up for lots of cuddles and fusses. Until he settled behind my fan, and slowly crawled up until his head was peeking at me from behind the screen. He looked so cute, I had to take a photo. My little mascot. Somehow… He always makes me feel better. And I feel like he really does love me back.

Anyway, I spent the night just tapping away on my laptop, listening to quiet music while I made my notes and tweaks. I just wanted to show you all how much of a good boy he is. Don’t worry - he was given lots of treats and belly rubs.

#chronicillnesswarrior #ChronicPain #POTS #AutonomicDysfunction #EhlersDanlosSyndrome #EDS #PosturalOrthostaticTachycardiaSyndrome #Jointpain #Fainting #BackPain #cramps #Pain #InterstitialCystitis #BPD #NAFLD #LiverDisease #FattyLiverDisease #Diabetes #Migraines #Cats #Animals #TherapyPet #TherapyAnimal #therapycat

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Do folks ever feel like you're on a totally different life schedule to everyone else?

Like some friends have started having children or gotten engaged. Or they've been promoted...

(You're beyond happy for them)

...You're also moving up, but it's just achingly slowly and at times quite lonely...

So you stop wanting to answer questions, like: 'How's life going these days?'😄

Because you know, the person likely doesn't want to actually hear that you're *STILL* doing your course and are awaiting blood test results for yet another frustrating & debilitating symptom 🤪

As you can tell very excited for my next age milestone 🙃

#Fibromyalgia #ChronicPain #ChronicFatigue #BackPain #FunctionalNeurologicalDisorder #IrritableBowelSyndromeIBS #MentalHealth #Depression #Anxiety #Insomnia #Asthma #AgoraphobiaWithoutHistoryOfPanicDisorder

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We have reached 2,222 members🎉!! Thanks for being a part of this journey! (There is a special appeal to ALL members below.) Please read! 🙏🫶🤗Moshe

We are growing fast …just passed 2,200 members a few months ago and are at 2,222 today and growing strong! (If you are not a member yet please consider joining us!) This is really exciting to me, we have all put in the effort and as a community we have grown, flourished and have built a sacred place where I hope you all feel at home! You have shown you care for each other, are there for each other and trust each other. This makes me very happy and proud. I envisioned the group would be a place where members would empathize with each other, ask for support, and offer support to others. When we are operating smoothly this experience is so exciting to watch spread & expand.

However, to be honest, I have been very frustrated that there is less activity recently and as our membership grows steadily the number of comments & replies has actually diminished. Our old co-leader Chris is no longer with the group and we need to have others step up and make up for her commitment to regularly respond to posts and comments. This means a collective effort from everyone in the group! I have had numerous layers of serious physical & mental health challenges recently and have had to step back and focus on self-care. This is a time when you can all help me by checking in here and see if there are new posts and hopefully respond.

My last post about hobbies with the image of all the colorful people doing different fun things only got ONE response. And Laura made a great post about disability after that and it got only two responses. When new members have the courage to open up and introduce themselves we want them to feel welcome and supported. Please especially respond if you share some similar health challenges and hopefully offer acknowledgement and encouragement!

This is OUR group everybody and it functions best when members support other members. We all have our varied health histories and with them the knowledge and wisdom we’ve garnered along the way! PLEASE let’s share these with each other. This communal empathy and understanding makes us strong.

Offering your own posts provides more content for the group and can generate great conversations. Write about if you are struggling and need support, encouragement and/or information. Write about how great things are going and share things that are helping you. Pose a question to the group which can excite others to chip in. Or just share a great meme you have found. It can be really powerful for others to see your post as they can then empathize and relate! I would be happy to support your effort if you want to run things by me before you post, I can help finding memes or images if you like, and I will comment on your posts to get the responses going to best support your efforts. I’m here for you and really enjoy the whole process, so please reach out to me if you need assistance or encouragement. I have made well over 100 posts since I started the group and learned a lot along the way! (Please scroll down back in time to find my other posts, you might find some of them helpful😉)

I believe in the power we have as a group and the community we have built. I am so thankful you have joined us and we are all on this journey together!

In service,

Moshe Adler
@moshe222mhc
🙏💥🫶💜🤗💥🙏

P.S. ✡️Happy Rosh Hashanah✡️ -The Jewish New Year. May today mark a time of new beginnings for us all.🌦️⛅️🌤️☀️

#MentalHealth #Depression #Anxiety #Disability #ChronicPain #ChronicIllness #Selflove #Selfcare #BipolarDisorder #Bipolar1 #Bipolar2 #BipolarDepression #ADHD #PTSD #ObsessiveCompulsiveDisorder #COVID19 #Migraine #Headache #RareDisease #HIVAIDS #PeripheralNeuropathy #BackPain #neckpain #Addiction #AddictionRecovery #IfYouFeelHopeless #Hope #CheckInWithMe #InsideTheMighty #MightyTogether #DistractMe #TheMighty #MightyMinute #MightyQuestions #Concussion #BrainInjury

@laurascardigno @texassonrisa @xokat @sparklywartanks

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Today is the best I’ll ever feel again …

Knowing that everything "wrong" with me is progressive and knowing that means I'm simply going to get worse everyday. It leaves me hopeless. Why bother with meds that don't work and leave me with horrible side effects? Why go to PT? Why show up to dr appts? My future does not hold a cure or relief. What's the point … #RheumatoidArthritis #Lupus #ChronicPain #Autism #BackPain

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Today is the best I’ll ever feel again …

Knowing that everything “wrong” with me is progressive and knowing that means I’m simply going to get worse everyday. It leaves me hopeless. Why bother with meds that don’t work and leave me with horrible side effects? Why go to PT? Why show up to dr appts? My future does not hold a cure or relief. What’s the point 😭 #RheumatoidArthritis #Autism #Lupus #BackPain

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Frustrated tonight.

I had joined a group Bible Study. It is a BSF year long study of the book of John. I was so excited to go tonight. I need the connection with others. I need friends. But horrible, uncontrollable back pain ruined my plans. I am at home with the heating pad on my back, waiting for medicine to kick in. Then I will probably go to sleep early tonight because I am exhausted. Teaching kindergarten and chronic pain do not go together well.

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We are in need of a new co-leader for MHC to encourage, empower, & support our members. I make a APPEAL to current members - PLEASE read below!

We are currently looking for a new Co-Leader for the Multiple Health Challenges group. We are growning fast and just passed 2,200 members. This is really exciting to me, however to be honest, I have been very frustrated that there is less activity recently and as our membership grows steadily the number of comments & replies has actually diminished. Our old co-leader Chris is no longer with the group and we need to have others step up and make up for her commitment to regularly respond to posts and comments. This means a collective effort from everyone in the group! I have had numerous layers of serious physical & mental health challenges recently and not been as active as I would like in order to step back and focus on self-care. This is a time having another co-leader to pick up the slack is essential!

My last post about hobbies was actually first posted 16 months ago (when we had at least 1,000 less members) and it got over 200 ❤️ & 👍and 100 comments then! It got only ONE this time. And Laura made a great post about disability after that and it got only two responses as well. When new members open up and post to introduce themselves and then get very little response that is even worse. I fear that new members will see this and not be active moving forward. This is OUR group everybody and it functions best when members support other members. We all have our varied health histories and with them the knowledge and wisdom we’ve garnered along the way! PLEASE let’s share these with each other. Without this empathy and understanding this group is falling short of what I first envisioned when I started the group and what it’s capable of.

For a co-leader I am looking for someone to welcome new members, comment or respond to posts and other comments & replies, and make new posts to the group. It is important for the group to have distinctly different voices to support people because people might relate more to either of us. What is a really good situation is if we both respond to the same posts, welcome new members from different perspectives and provide voices for people that are accessible and relatable. There is a commitment needed that you monitor activities on the group regularly and can respond pretty quickly.

Offering your own posts provides more content for the group. I can assist and support by offering to look at your new posts for feedback and editing before you post if you would like, will comment on your posts to get the responses going to best support your efforts, and I can help finding memes or images.

I look at potential leaders' history of posts and/or comments that have helped and supported others in the past. Willingness to be honest and open about your own health challenges is crucial to best support people.

You will get access to the Community Leaders group and your name will have a “Group Leader” tab next to it up top on your comments and responses so I think people pay attention especially to your activity and wisdom shared from your personal experience. Would you consider joining me on this journey? Let’s have a DM chat to discuss this! Thanks for considering taking on this role!

In service,
Moshe
@moshemhc

#Depression #Anxiety #MentalHealth #ChronicPain #ChronicIllness #Chronicpainwarrior #Disability #BipolarDisorder #BipolarDepression #BipolarIIDisorder #Bipolar1Disorder
#ObsessiveCompulsiveDisorder #ADHD #Schizophrenia #AspergersSyndrome #Autism #Dementia #Concussion #Addiction #AddictionRecovery #Cancers #TraumaticBrainInjury #BrainInjury #LossOfAParent #Grief #Suicide #ChronicFatigueSyndrome #DistractMe #HIVAIDS #MightyQuestions #DownSyndrome #IfYouFeelHopeless #Hope #Deafness #neckpain #BackPain #CongestiveHeartFailure #Migraine #COVID19 #PeripheralNeuropathy #LymeDisease #Diabetes #EatingDisorder #Headache #Stroke #Cancer #BorderlinePersonalityDisorder #Fibromyalgia #Disability #thankful #grateful #CocaineDependence #drugaddiction #Alcoholism #PTSD #EmotionalHealth #physicalhealth #PainAcceptance #Acceptance #relief #Selflove #Selfcare #MentalHealthHero #TheMighty #RareDisease #MightyTogether #RareDisease

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