Back Pain

It’s hard knowing that the chronic pain will get worse and you don’t know when it’ll be. It reminds me of a quote from The Fault in Our Stars- “There's no way of knowing that your last good day is Your Last Good Day. At the time, it is just another good day.” However, it’s even harder when a flare makes you face that reality even more.

I believe my pain is getting worse. Flares are more often, longer lasting, more exhausting, more problematic. It’s a lot harder when I can’t really take painkillers for it.

I got diagnosed with GORD/ gastritis/ hiatal hernia. The symptoms were getting worse, and long story short I had a gastroscopy where I received those dx’s. At the time, my reaction was one of relief. Relief that my symptoms have a physical recognised cause. Because I had just gone through ENT and cardiology where they couldn’t (they could prove the symptoms but not find a cause). Now it’s still relief, but also frustration. It could have been avoided if they had arranged a follow-up appointment when I first went to the doctors about it almost 10 years ago.

Speaking of frustration, I found out that my cholesteatoma actually still appears to be of existence. I was told it was gone, but going over my medical notes it appears this wasn’t the case (besides, it has to be surgically removed to be permanently gone & it wasn’t). Where I keep losing my hearing, I tried mentioning it to the doctor but it got dismissed. Even though there’s things at stake, I’m too tired to fight and get another opinion. Not that I’d be able to anyway- the migraines have caused me to just want to shut down from everything & I only leave the house for appointments.

I’m quite tired of all of it to be honest. It’s exhausting, and being in pain I have the physical exhaustion on top of it. Not sure what else to say or where I was going with this post, but yeah. I’m back?

#ChronicPain #Pain #BackPain #Cholesteatoma #GastroesophagealRefluxDisease #HiatalHernia #Gastritis #ChronicMigraines #Migraine #exhaustion #MentalHealth

#Fibromyalgia #Fatigue #Pain #BackPain #ChronicFatigue #ChronicIllness #suffering #CognitivelyDisabled #Pyhsicallydisabled #FibromyalgiaSucks

We are so sick and tired of being sick and tired. Not having energy to do life. Not haveing the ability to do life. Living codependent and not independent. We are so frustrated sad fed up miserable we are not able to do what others do. In some cases IT is a blessing you have no 9 to 5 cause you can’t work. You have no significant responsibilities cause your not reliable. You have no commute or co-workers to deal with. An ungrateful supervisor or boss to report to. On the flip side you can’t even handle basic vehicle maintenance cause you can’t be outside in the cold or you get a chill. Further you are not able to drive anywhere anyway cause the stress of driving and travel on your body causes severe fatigue pain and you don’t enjoy yourself being out in public.

At this point if IT were possibly you would like to work remotely like built websites or programming. Yet you have such brain fog or you are not able to focus and you have several fatigue issues with mental focus. So you can really just barely concentrate on your needs to do to keep you alive. You even forgot to pay you bills or get back to that email. In fact you don’t even know what day IT is until you look are your phone.

Then you go to mindfulness classes or CBT sessions and chronic pain centres where they tell you you can get some relief if you change you thinking or if you meditate 🧘‍♀️ and or do stretches and physiotherapy movements. This is a journey to mental health and body recovery ❤️‍🩹. You continue to do so and when you go and do you feel good yet 1 to 2 hour sessions drain you drastically because your done for the rest of the day.

Try going to watch your children at a sporting event for a few hours only. To spend the rest of the day on the couch with a heating pad.

We know there is someone out there that this is speaking to. We know you are going through this too.

HSP Highly Sensitive People are so sensitive that environmental and social interactions completely drain us. We would love to go and go like the rest of the world. However if your a HSP you have to hibernate and recharge before going out again.

Please don’t give up there must be a cure there must be a way we can get better ❤️‍🩹.

Once able to work 60 hours a week. Once able to work look after children and house with a partner. Now just barely managing us. There must be a way. Heck they are transplanting new nerves into people who are stuck in a wheelchair so they can walk. You can’t tell me that IT is not possible to cure this cause world governments came up with a vaccine 💉 for Covid there must be a way to correct Fibromyalgia.

So if your still reading this and IT hits home cause someone you know has this Chronic Condition. Please please tell them do not give up.

You matter you are important you are worthy you are not alone you are valued and loved.

Please write ✍️ please post there are so many people who suffer from this.

Please keep the faith God can heal anything.

Please help our community so we can help others with this condition.

#Recovery

#Recovery #Striving #Surviving #thriving #Hope

So this is for you out there we don’t know what your going through. Today we wanted to say hey IT is what IT is isn’t IT and NO IT is not ok and that is ok. You are allowed to show your feelings you are allowed to express yourself and share your feelings. This is all hard for all of us and we are all extremely tired and exhausted from everything that happened and is happening.

The one message we would like to convey is you are not alone you matter you are important and yes you are worthy!

This is a message of Hope don’t opt-out don’t punch out don’t give up you are so much more then what you are going through.

You never know who your going to help or who will help you we are helping because people have helped us.

ACT DBT CBT EMDR Mindfulness +++++++

Sometimes IT takes so much just to find out what how why when where that you never new or was aware that people care.

You know what get up get out of that toxic fish tank and get into a fight or flight for you as you are the only one that can save you. Sorry tough love we had to say IT.

When you are surrounded by therapy and supports be IT a virtual therapist, peer group or even a volunteer commitment you change the equation of you.

So if you can change the equation you can escape the loop. If you escape the loop you can do so many different things that are good for you.

Look we know this is for someone out there…

Maybe your drinking maybe your smoking maybe your coping just to get to tomorrow using or even being abused. We send our hugs cause you can survive and you can get out. We won’t lie IT is very hard. Sometimes you need a 6 month break that’s an option. Yes you are putting life on hold and yes things may fall apart but is not everything already falling apart if your in this situation? Personally this road has been travelled. The point is don’t give up don’t surrender don’t give in cause you never know who is out there.

Someone needs to hear this message you perhaps or maybe a connection that is going through IT.

We would like to send hugs big hugs cause you can do IT! Yes you can! God Said so with help. So that means you don’t have to do IT alone.

We ask you to consider if you choose your present who can you help? If you choose to continue who will need you to be there for them in there time of need. A total stranger in a store a parking lot walking on a street or even in a support group. Someone somewhere needs you.

We hope this helps someone know you are appreciated you are valued and yes you are missed.

We send #Love #Support #Hugs }{ #ChronicDepression #suside #Anxiety #Addiction #ChrinicPain #Divergent #Diversity #ADHD #ASD #Autism #Fibromyalgia #BackPain #ChronicIllness #MentalHealth #illness