Back Pain

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    How herniated disc changed my world

    It was 3rd December 2021, I was on week off, I was happy and cheerful, was dancing in my room, but who knew that after few minutes my life would be changed and I will have to start living with constant pain. Okay, let's start from the beginning, I am a 22 year old girl , I have l5 S1 herniated disc and nerve compression according to my 4 doctors and 1 physiotherapist it is very minor and I should not be in so much pain but guess what? I am, I am in constant pain from last 15 months, I have constant pain in my lower back, hips, thighs and legs and no matter how hard I try to explain it to my doctors and to people who are close to me, they don't seem to believe it, however, the truth remains the same no matter whether someone believes it or not. Initially, I thought that it is something very minor and will go away on its own after some days but it didn't go away, instead it has made my life worse, I had so many dreams I wanted to study, i wanted to work but I couldn't do anything because of this pain, I was somehow working but I had to leave my job last month because the pain was unbearable. Honestly speaking I feel sad, very sad at times also I try to fight with this illness and my anxiety but sometimes I fail, sometimes, I am not strong not because I cannot be but because I don't want to be, sometimes, I feel like breaking, I feel like crying because, sometimes, I don't want to hold and want to be held!

    #TheMightyTakeaway #ChronicFatigue #BackPain #ChronicIllness #InvisibleIllness

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    It’s hard knowing that the chronic pain will get worse and you don’t know when it’ll be. It reminds me of a quote from The Fault in Our Stars- “There's no way of knowing that your last good day is Your Last Good Day. At the time, it is just another good day.” However, it’s even harder when a flare makes you face that reality even more.

    I believe my pain is getting worse. Flares are more often, longer lasting, more exhausting, more problematic. It’s a lot harder when I can’t really take painkillers for it.

    I got diagnosed with GORD/ gastritis/ hiatal hernia. The symptoms were getting worse, and long story short I had a gastroscopy where I received those dx’s. At the time, my reaction was one of relief. Relief that my symptoms have a physical recognised cause. Because I had just gone through ENT and cardiology where they couldn’t (they could prove the symptoms but not find a cause). Now it’s still relief, but also frustration. It could have been avoided if they had arranged a follow-up appointment when I first went to the doctors about it almost 10 years ago.

    Speaking of frustration, I found out that my cholesteatoma actually still appears to be of existence. I was told it was gone, but going over my medical notes it appears this wasn’t the case (besides, it has to be surgically removed to be permanently gone & it wasn’t). Where I keep losing my hearing, I tried mentioning it to the doctor but it got dismissed. Even though there’s things at stake, I’m too tired to fight and get another opinion. Not that I’d be able to anyway- the migraines have caused me to just want to shut down from everything & I only leave the house for appointments.

    I’m quite tired of all of it to be honest. It’s exhausting, and being in pain I have the physical exhaustion on top of it. Not sure what else to say or where I was going with this post, but yeah. I’m back?

    #ChronicPain #Pain #BackPain #Cholesteatoma #GastroesophagealRefluxDisease #HiatalHernia #Gastritis #ChronicMigraines #Migraine #exhaustion #MentalHealth

    21 reactions 2 comments

    Can't sleep

    I get tired of taking so much medication every single day of my life. Sometimes I forget or I don't take it on time. Then I pay the price with insomnia. Sigh. Then I know that everything in the morning will snowball due to me not getting enough sleep. The pain will be worse. The depression will be worse. I won't be able to function at work. I'll be too tired to try exercise at the end of the day for my mental health. I'll be too tired to cook or study. GAH! #Insomnia #ChronicPain #Depression #ADHD #Anxiety #SleepDisorders #CircadianRhythmSleepWakeDisorders #AnkylosingSpondylitis #Arthritis #BackPain

    9 reactions 4 comments
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    When your sick and tired of being sick and tired

    #Fibromyalgia #Fatigue #Pain #BackPain #ChronicFatigue #ChronicIllness #suffering #CognitivelyDisabled #Pyhsicallydisabled #FibromyalgiaSucks

    We are so sick and tired of being sick and tired. Not having energy to do life. Not haveing the ability to do life. Living codependent and not independent. We are so frustrated sad fed up miserable we are not able to do what others do. In some cases IT is a blessing you have no 9 to 5 cause you can’t work. You have no significant responsibilities cause your not reliable. You have no commute or co-workers to deal with. An ungrateful supervisor or boss to report to. On the flip side you can’t even handle basic vehicle maintenance cause you can’t be outside in the cold or you get a chill. Further you are not able to drive anywhere anyway cause the stress of driving and travel on your body causes severe fatigue pain and you don’t enjoy yourself being out in public.

    At this point if IT were possibly you would like to work remotely like built websites or programming. Yet you have such brain fog or you are not able to focus and you have several fatigue issues with mental focus. So you can really just barely concentrate on your needs to do to keep you alive. You even forgot to pay you bills or get back to that email. In fact you don’t even know what day IT is until you look are your phone.

    Then you go to mindfulness classes or CBT sessions and chronic pain centres where they tell you you can get some relief if you change you thinking or if you meditate 🧘‍♀️ and or do stretches and physiotherapy movements. This is a journey to mental health and body recovery ❤️‍🩹. You continue to do so and when you go and do you feel good yet 1 to 2 hour sessions drain you drastically because your done for the rest of the day.

    Try going to watch your children at a sporting event for a few hours only. To spend the rest of the day on the couch with a heating pad.

    We know there is someone out there that this is speaking to. We know you are going through this too.

    HSP Highly Sensitive People are so sensitive that environmental and social interactions completely drain us. We would love to go and go like the rest of the world. However if your a HSP you have to hibernate and recharge before going out again.

    Please don’t give up there must be a cure there must be a way we can get better ❤️‍🩹.

    Once able to work 60 hours a week. Once able to work look after children and house with a partner. Now just barely managing us. There must be a way. Heck they are transplanting new nerves into people who are stuck in a wheelchair so they can walk. You can’t tell me that IT is not possible to cure this cause world governments came up with a vaccine 💉 for Covid there must be a way to correct Fibromyalgia.

    So if your still reading this and IT hits home cause someone you know has this Chronic Condition. Please please tell them do not give up.

    You matter you are important you are worthy you are not alone you are valued and loved.

    Please write ✍️ please post there are so many people who suffer from this.

    Please keep the faith God can heal anything.

    Please help our community so we can help others with this condition.


    16 reactions 2 comments

    Stress States and Working Life...

    How do you deal with levels of stress without stimulating a chronic pain flair up?

    I've had chronic back pain from scoliosis for for 15 years now. I'm off the meds and I'm doing a lot of work on myself with Cognitive Reprocessing Therapy, meditation and mindful movement excercises combined with physiotherapy.

    I can't work because I'm unable to cope with the stress of working as an Operating Department Practitioner (ODP). I left my profession because they couldn't make reasonable adjustments for my condition. So I walked away from my career.

    For the past 18 months I've been trying to wean off painkillers to figure out what to do about my pain, sometimes it's been so overwhelming that I've had panic attacks that have left me suffering from muscle spasms for months.

    I cannot keep going with this idea that I'm the only person going through this, how do we continue to feel our pain in a safe way without overworking the muscles of our backs when we feel our emotions.

    After 15 years of chronic pain it's hard to imagine a world where pain doesn't exist. That's not what I'm looking for, I just want to feel my pain sensations without having an immediate reaction of panic, fear and rage.

    Which brings me to the flip side of chronic pain, when I stopped taking my meds (co-codamol) I began feeling so much, so much that I didn't know how to feel, my pain become overwhelming but so did my emotions. I felt like a baby learning how to navigate states of newness again through this otherworldly state of being because my emotions were so viceral, so explosive. I didn't know how to behave , how to respond to people through these new sensations, it drove me to states of mind that have been described by the internet at psychosis.

    The thing that saved me from my mad mind was the ability to express what I was feeling through art. Painting, poetry, dancing and singing helped me find my way back to myself through my pain. This was about six months ago and at this time I'm trying to bring myself to a place where I can go back to work, safely. There is no room for creative self expression in a hospital...

    The level of self management involved in my day to reduce my pain is a heavy burdeon, I don't know how I will be able to cope without these practices...

    I can't just take a 30 min break and meditate or go for a walk to calm down my nervous system.

    How do people cope with pain and the stress of work when there is no space for us in the system to be able to feel, express and mend ourselves in the moment we need to.....

    Chronic pain, a disability?

    #ChronicPain #Scoliosis #Disability #worklifebalance #Psychosis #cognitivereprocessingtherapy #Stress #cocodamol

    3 reactions

    If you are on disability What age did you get put on disability ?

    I have been dealing with chronic back pain and migraines and ADHD for about 10 years! In the past 5 years is when the depression and anxiety happened. Last October I had to have my gallbladder removed and all summer my pain had been progressively getting worse. In October I asked my doctor if I could go on disability she said I was to young! I have gotten to where if I move to much I am not able to move for the next 3 days I have tingling in my hands I have pain in my hips down that shoot Down my legs my feet feel like nails are sticking through them my arms are aching and if I go to work I feel like I have been at the gym for 12 hours straight and can’t cook dinner I can either work or stay at home and clean the house and cook

    4 reactions 6 comments

    I'm new here!

    Hi, my name is Lala37. I'm here because
    I was diagnosed with diverticulosis but have chronic pelvic hip and lower back pain that no one knows why I’m in constant pain every day 4 months now and very depressed #MightyTogether

    1 reaction 1 comment

    I’m new here!

    Hi, my name is Nikki1966. I'm here because I struggle daily with BOD and PTSD , I also have chronic spine and back pain after a bad fall. I had surgery to replace discs in my neck 4 years ago but am still awaiting surgery on my lower spine but due to covid and NHS strikes I could be waiting 3 more years in which time it will get worse, this adds to my PTSD and BPD and puts strain on my partner too. I lost my mum 2 years ago on Xmas Day to vascular dementia but seem to only really be starting to grieve recently. I must sound like a lost cause at the moment but I’d really like to get out of the hole I’m stuck in and start living again! I seem to find any excuse not to go out or socialise and am now AMAZON and NETFLIX ETC best customer I think as I’m becoming very reclusive despite having 2 amazing dogs who seem to know I’m unwell and I have to push myself to walk them but always go alone and to places I know I will not meet people. I’m registered fully disabled and have enhances PIP and UC with the medical add one, I don’t have friends apart from my partner and his close friends but it’s a trial for me to mix and seem to get very hyper when I do. My kids are grown, one in london and one in Dubai so not close and both work so hard and long hours. Mt dad (81) lives with me but he’s a fall risk and is very deaf now with cataracts so is an added pressure. I’m hoping using this app might help me. if anyone would like to say hi I’ll reply and any help or advice how to get the best from Mighty I’d appreciate.thanks Nikki ( near Dundee, Scotland)

    #MightyTogether #BorderlinePersonalityDisorder #PTSD

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    While I'm not recovering, I live with chronic back pain due to scoliosis. I had a bad flare up last night and was feeling pretty discouraged, but this definitely made me smile. #ChronicPain #Scoliosis

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    Does IT get better ❤️‍🩹

    #Recovery #Striving #Surviving #thriving #Hope

    So this is for you out there we don’t know what your going through. Today we wanted to say hey IT is what IT is isn’t IT and NO IT is not ok and that is ok. You are allowed to show your feelings you are allowed to express yourself and share your feelings. This is all hard for all of us and we are all extremely tired and exhausted from everything that happened and is happening.

    The one message we would like to convey is you are not alone you matter you are important and yes you are worthy!

    This is a message of Hope don’t opt-out don’t punch out don’t give up you are so much more then what you are going through.

    You never know who your going to help or who will help you we are helping because people have helped us.

    ACT DBT CBT EMDR Mindfulness +++++++

    Sometimes IT takes so much just to find out what how why when where that you never new or was aware that people care.

    You know what get up get out of that toxic fish tank and get into a fight or flight for you as you are the only one that can save you. Sorry tough love we had to say IT.

    When you are surrounded by therapy and supports be IT a virtual therapist, peer group or even a volunteer commitment you change the equation of you.

    So if you can change the equation you can escape the loop. If you escape the loop you can do so many different things that are good for you.

    Look we know this is for someone out there…

    Maybe your drinking maybe your smoking maybe your coping just to get to tomorrow using or even being abused. We send our hugs cause you can survive and you can get out. We won’t lie IT is very hard. Sometimes you need a 6 month break that’s an option. Yes you are putting life on hold and yes things may fall apart but is not everything already falling apart if your in this situation? Personally this road has been travelled. The point is don’t give up don’t surrender don’t give in cause you never know who is out there.

    Someone needs to hear this message you perhaps or maybe a connection that is going through IT.

    We would like to send hugs big hugs cause you can do IT! Yes you can! God Said so with help. So that means you don’t have to do IT alone.

    We ask you to consider if you choose your present who can you help? If you choose to continue who will need you to be there for them in there time of need. A total stranger in a store a parking lot walking on a street or even in a support group. Someone somewhere needs you.

    We hope this helps someone know you are appreciated you are valued and yes you are missed.

    We send #Love #Support #Hugs }{ #ChronicDepression #suside #Anxiety #Addiction #ChrinicPain #Divergent #Diversity #ADHD #ASD #Autism #Fibromyalgia #BackPain #ChronicIllness #MentalHealth #illness

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