Back Pain

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    New here looking for advice

    i did use this app around 5 years ago but can’t remember how it works so i don’t know if i’m posting in the right place for people to see or anything.
    Anyway i’m looking to connect with people similar to me and i am also asking for some advice

    i’m 19 i have hypermobility syndrome and have been experiencing pain for around 10 years. I do fit the criteria for eds but last time i brought it up to rheumatologist she told me a child can’t be diagnosed with it 😐and that my pain would go away after puberty . i am now an adult still experiencing symptoms but i am no longer under a rheumatologist or anything.

    The advice i am looking for is around my SI joints which have become unstable. They are subluxating multiple times a day any time i move and are really uncomfortable and painful. i have been to the gp and he gave me an antidepressant used for pain relief and will refer me to the musco-skeletal team. He mentioned that there is an injection for this joint but doesn’t know if they will do it because i have hypermobility? any research i can find online doesn’t mention any other treatment options and i don’t know what to do. I can’t walk or sit up for long as the pain gets unbearable, ive tried a tens machine, heat and ice which barely touch the pain. Any advice would be greatly appreciated. #BackPain #JointHypermobilitySyndrome #EhlersDanlosSyndrome #Advice

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    Community Voices
    A

    What now?

    I had finally got to the point where I thought my chronic pain was somewhat stable. Of course, life likes to throw a spanner in the works.

    On Tuesday, my housemates wouldn’t take the bin out. It has to be taken down some stairs, and I had told them before I really shouldn’t be taking it down. Unfortunately, we got to late at night and nobody still has taken it out and the only person still up refused. So I took it out.

    Bad decision. My body gave in right near the end, and the bin fell on top of me. At the time, the pain wasn’t too bad. But the next morning, I woke up and couldn’t move, not even to grab painkillers. And I’ve woken up every day since then with restrictions on my movement. It always gets better by the afternoon/ evening to the point where I can move pretty much normally (not without pain, but when you live w/ chronic pain you’re used to it) just with a bit of a limp.

    And that stayed stable. Until tonight where I’m getting pain. It hurts to breathe, to bend down, to walk. But it’s not taking-painkillers-time pain (though I’ve taken some for my cold symptoms). It’s aching and slightly-painful pain. And I’m questioning- what’s the plan now? Because this was always something I was afraid of and I never planned for it.

    The joys of living with chronic pain/ permanent injuries.

    #ChronicPain #vertebrae #Injury #BackPain #Backinjury #chronicpainlife

    5 people are talking about this
    Community Voices

    I'm new here!

    Hi, my name is Nancyi. I'm here because I suffer with back pain having had 3 surgeries. I also have Reflux that has developed from stress. I also have an autoimmune disease affecting the skin that causes terrible itching and in some people blisters.
    #MightyTogether #CentralPainSyndrome #GastroesophagealRefluxDisease

    5 people are talking about this
    Community Voices

    How do you combat stress?

    <p>How do you combat stress?</p>
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    Community Voices

    An update on my teeth extraction #ChronicPain depression #PTSD #MentalIllness

    Hell so I got my tooth pulled like a week and a half ago an I was in such pain that I been using up my regular prescription for opiates , I am about to run out I say buy Sunday but I’m gonna try and stretch it and I just wanted to say that I don’t understand why I was prescribed Tylenol and ibuprofen for such a pain procedure I suffer from chronic back pain due to an injury I sustained at work and at first I use to suffer from severe chronic pain for like five years before I got a surgery that removed the severe part of it , either way the extraction it was pretty intense I was to the point I couldn’t even sit still I would squirm an punch the bed or floor I was rolling around on so I was using twice the amount of painkillers an taking the twice as frequently as I was supposed to and I took them with Tylenol and ibuprofen.
    I am going to suffer again from my back here when I run out but hopefully the tooth will be healed because it’s subsided but it still hurts .

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    Community Voices

    Hi! I’m new here!!

    And I fell around midnight. Apparently I was down in the kitchen sleepwalking when somehow I fell backwards into the wall. I’m afraid to tell my boyfriend. I have a fear that he will finally have had enough and leave me. ( it’s an irrational fear because he is always here for me and loves me. He helps me every day) Anyway, my tailbone is killing me as well as my right leg. I have been falling more and more often and that scares me. Can anyone relate? I know I haven’t mentioned my chronic illnesses yet and I will do that in another post, I just need to vent a little and for that I’m thankful 💜 #ChronicIllness #MultipleSclerosis #Anxiety #Depression #Nerve and joint pain #BackPain #ChronicPain #PTSD

    8 people are talking about this
    Community Voices

    Is it depression? Or am I being lazy?

    I am having trouble deciding if my inactivity stems from my depression or laziness. I don't want to clean the house. I sit in my bed all day watching TV. I am too scared to exercise and clean because I've got back problems and even the simplest chore or the very less strenuous causes my back pain to come back and I am afraid of really hurting myself. So what can I do? I am on medication for both depression and back pain. How do I get motivated? As far as the depression goes its triggered every day by my obsessive thoughts and negative thoughts as well. I tried using CBT a few times but I don't even have the motivation to do anything to help myself and do what my therapist tought me. Why am I like this and how do I stop this?
    #Depression

    12 people are talking about this
    Community Voices

    Undiagnosed neuropathic pain.

    I turned 26 this year and have been suffering from chronic pain since I was around 19

    Lots and back and forth with multiple specialists and doctors appointments has eventually lead me to a diagnosis for my hip pain - I have hip dysplasia that has somehow gone un-diagnosed since birth.. I have been told I need to have PAO surgery to correct this.

    However, alongside this hip pain I have been suffering from many neurological symptoms which seems to have been swept under the rug since my DHD diagnosis. I am still chronically ill underneath my hip pain and no one seems to be doing anything about it.

    My nuerological symptoms include the following:
    - Sickness/nausea
    - Dizziness
    - Hyperosmia
    - Neuropathic pain in my legs, arms, shoulders
    - Complete numbness/change of sensation in my shoulder blades and between T7-T12
    - Numbness that radiates down my left leg
    - Muscle spasms/ spacsticity in legs
    - Bladder issues
    - Chronic fatigue
    - Balance issues
    - Cognitive issues such as thinking and concentrating
    - Occassional blurred vision/ vision changes
    - Migranes

    I have been seen by and dismissed by numberous doctors and consultants, no one can seem to figure out what is wrong with me. Some of them have actually accused me of making my symptoms up.

    I have seen 2x Rheumatologists that investigated Arthrtitis and Lupus, both concluded that there was nothing wrong with me at all whatsoever.. I have a positive ANA and Anti-dsDNA but still no diagnosis. Discharged by both of them with no further action.

    I am currently under the care of an Orthopaedic Surgeon (for my hip) who seems to think my symptoms point toward Fibromyalgia but obviously this would be diagnosed by a rheumatologist and I have already been discharged by two.

    I am currently on a waiting list to see a neurologist. I have been on this waiting list since May and I am lead to believe I will be waiting quite a few months yet.

    I feel incredibly alone in my journey. Everyone I know who is my age have no idea what it is like to deal with chronic pain, let alone the burden of an undiagnosed illness. Every time I attempt to talk to anyone about my ailments, people are dismissive, don’t understand or are simply uninterested.

    Can anyone offer any advice ? I feel hopeless. I have no support. 😢

    #ChronicPain #DevelopmentalDysplasiaOfTheHip #DegenerativeDiscDisease #Fibromyalgia #MultipleSclerosis #MyalgicEncephalomyelitis #ChronicIllness #Migraine #Lupus #Arthritis #CervicalSpondylosis #AnkylosingSpondylitis #Neuropathy #PeripheralNeuropathy #AutoimmuneDisease #BackPain #ComplexRegionalPainSyndrome #Undiagnosed #RheumatoidArthritis #sjogrens

    6 people are talking about this
    Community Voices

    Working again

    <p>Working again</p>
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    Community Voices

    OMG

    So I ended up getting a migraine close to bedtime and I took 2 Excedrin extra strength which is the equivalent of 2 cups of coffee... but I also took Olanzapine, which is suppsed to make me sleep. And I guess both of them together is chaos. My arms HURT and I can't get comfy in bed. I started watching The Sandman on Netflix tonight and I got thru 4 episodes and its a fantastic show... but I was hoping it'd make me sleepy. no such luck.

    So about a half hour ago I decided well gosh I could certainly go for a sweet mini gherkin right about now and I just so happen to have a jar of them on my bed. So I nibbled that thing for 10 minutes... and 2 minutes after the last bite I threw up. I was hugging the toilet for over a half hour. My tongue hurts, my throat hurts, my tummy hurts... and crouching down like that killed my back. And I don't have any other painkillers.

    So between the caffeine and the pain right now, I clearly can't sleep. I keep yawning but when I lay down I'm tossing and turning not sure what to do with my arms. I hate it. This whole sleep thing is stupid anyways.

    But on the plus side I ppayed off the balance of my credit card 3 days early :) Its my first CC so I'm trying to be uber responsible and careful. I only use it to order food from DoorDash. Its an easy way to build up my credit.

    I slept most of yesterday. I threw up 4 times, washed 4 dishes, and even though the back pain was at 8, I managed to slowly walk to the gas station for smokes and iced tea. Of course when I got home from the walk I collapsed in my bed a sweaty, panting, hurting pile of bones. But today the percocet is going to be delivered. I just have to hold on a little longer. I'll be ok.

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