New here looking for advice
i did use this app around 5 years ago but can’t remember how it works so i don’t know if i’m posting in the right place for people to see or anything.
Anyway i’m looking to connect with people similar to me and i am also asking for some advice
i’m 19 i have hypermobility syndrome and have been experiencing pain for around 10 years. I do fit the criteria for eds but last time i brought it up to rheumatologist she told me a child can’t be diagnosed with it 😐and that my pain would go away after puberty . i am now an adult still experiencing symptoms but i am no longer under a rheumatologist or anything.
The advice i am looking for is around my SI joints which have become unstable. They are subluxating multiple times a day any time i move and are really uncomfortable and painful. i have been to the gp and he gave me an antidepressant used for pain relief and will refer me to the musco-skeletal team. He mentioned that there is an injection for this joint but doesn’t know if they will do it because i have hypermobility? any research i can find online doesn’t mention any other treatment options and i don’t know what to do. I can’t walk or sit up for long as the pain gets unbearable, ive tried a tens machine, heat and ice which barely touch the pain. Any advice would be greatly appreciated. #BackPain #JointHypermobilitySyndrome #EhlersDanlosSyndrome #Advice