Complex Regional Pain Syndrome

Hi, my name is Itsawrap. I'm here because

#MightyTogether #Anxiety #Depression #Migraine #PTSD #EatingDisorder #CRPS

Hi, my name is Itsawrap. I'm here because

#MightyTogether #Anxiety #Depression #Migraine #PTSD #EatingDisorder #CRPS

Hi, my name is JuniperGal. I'm here because I need help. Mentally Physically Spiritually. Been in pain since I was 12. I've been through 22 surgeries, body casting at age 2 for 2 1/2 years the first time. 2nd time age 24 for a year & again at 26 for a year. Then metal brace for a year. First operation was a triple osteotomy of left pelvic area. After a year they realized it was nonunion. Revision of osteotomy. Then 9 dislocations of a hip and 2 of the shoulder. Years of chronic systemic metal ion poisoning. Then came the spine- Compression fracture of vertibre by just putting jeans on. Fell and broke my right shoulder. Fell again, 4 more vertibre compression fractures. Then a failed spinal fusion. Haven't walked since. At age 24 the pain Dr at Rush diagnosed me with Reflex Sympathetic Distrophy of left leg (now called complex regional pain syndrome). My most recent ER visit for falling flat on my back & hitting my head pretty hard. Was a joke. I also lost ability to move left foot (foot drop). They said my muscles were weak and I wasn't an emergency. My constant migraine was just a headache. No x-rays, CT scan, MRI, nothing I was told to call someone to drive me home. Second and third ER visit (my PCP told me to keep going back) accused of being in opioid withdrawal, searching for pain meds. My doctor said to try going to a different hospital ER. 8 hours later, dismissed as usual. FINAL visit; a doc recognized that I had a massive concussion and admitted me for more testing! A couple days later the doctor came in kinda laughing states "Well you're right, there's something wrong and boy your husband is going to be pissed.) " You had a stroke. Would I mind being discharged to a rehab facility. They also said I had sepsis, a hole in my heart, pneumonia, that the constant migraine, and hallucinations should get better soon. At discharge the lovely nurse decides I don't really need to go to rehab. What an idiot. So that brings us to the present 4 months of laying in bed (can't have any pressure on my pelvis)loss of all muscle 💪. Some tendons & ligaments have turned to bone like material.
Stay tuned in for Part 2. *. Fighting for my meds!

#MightyTogether #Depression #PTSD #EatingDisorder

Hi, my name (username) is Ikea. I'm here because as a Mental Health Coach specializing in Addiction, Substance Use, Recovery Coaching, and Grief Coaching, as well as Coaching for clients who are dealing with End-of-Life or Hospice Care and Chronic Illness, I think The Mighty will be a helpful resource to learn about different topics. Originally, I came here because I wanted to read about a blog on CRPS but found the website to be much more than what I thought it was going to be about.

#MightyTogether #BipolarDisorder #Fibromyalgia #Grief #PTSD #Migraine #Depression #Anxiety

Hi, my name is wellreadypooh69. I've been diagnosed with CRPS and have no support system to help me live with the pain.

#MightyTogether #ComplexRegionalPainSyndrome

Hi, my name is monique888. I'm here because

#MightyTogether #Anxiety #Depression #ComplexRegionalPainSyndrome

#ComplexRegionalPainSyndrome

Hi, my name is Jojomkstone. I'm here because

#MightyTogether #ComplexRegionalPainSyndrome

Hi, my name is Nennoa. I'm here because I am tired of living with this disease

#MightyTogether #ComplexRegionalPainSyndrome

I was diagnosed with CRPS last year in November. My life has been nothing but pain and hopelessness since. I'm 19 and will finish high school later this year (to give you an idea of my home situation), followed by a gap year due to my sudden chronic pain disorder and the fact that I'm of course struggling to adjust. The reason I'm graduating so late is a long, traumatic story I rather leave alone for now. When my family heard about my diagnosis a majority of them have been in denial that it's chronic. The pain meds I was prescribed don't work (I have a strong resistance to most meds), and these past few months have been spent doing school work, being bedridden, and being forced to try various workouts in hopes they'll somehow cure my CRPS. Long story short, none of these worked and just left me bedridden each time, but my family keeps throwing me into things I physically can't handle because of how extreme my pain is. I'm starting therapy again soon in hopes that can at least help a bit.

Here's my new hurdle: I may have POTS and my family refuses to even give it any thought. I deal with the feeling that my heart is racing, I often get dizzy, nauseous, extremely fatigued, headaches, brain fog, weakness in my legs, occasional digestive problems, occasionally blurred or blacked out vision for a few seconds, and occasional shakiness. CRPS and POTS are also often co-occurring. The only things that help? Laying down mostly, and occasionally salty snacks I think.

Here's my concern: I can't tell if this is POTS or just my CRPS combined with my lack of exercise. I'm not completely glued to the bed, so I doubt this, but I'm not sure. I really just want to know if I should push to get evaluated because this is getting debilitating and extremely disruptive, or if this is just my CRPS. Please share your thoughts if you'd like because I really am struggling here.