I’m new here!
Hi, my name is jenr8r. I have multiple rare medical conditions. I have EDS, Pure Autonomic Failure, and multiple brain injuries from PRES. now I am experiencing dementia symptoms and me and my whole family need help and support
Hi, my name is Serenity123. I'm here because
I've got severe depression and a wife in an advaced state of dementia. The current living system is unsustainable.#MightyTogether #Depression #Anxiety #OCD
Just venting, but why, as a grown ass adult can't you make arrangements for your own mother's funeral? My great aunt just died, and of course her cousin can't be reached. We're in New York, and he lives in North Carolina. He's known she hasn't been doing too well, but never gave 2 shits about her. She also has 2 grandchildren that live here in the Buffalo area, but haven't seen or visited her in the 5 years that she has been back living here because they can't benefit from her because she has no money to give them. Im sorry, but the responsibility of planning and paying for someone else's mother's funeral shouldn't be left to my mother who has my grandmother with dementia to worry about. Personally, I wouldn't even bother with anything, and let someone else deal with it. Im tired of ignorant ass people, even if they are family.
Hi, my name is shaijakel. I’m here to support caregivers, patients, and families through the emotional and practical challenges of caregiving.
With over 20 years of experience as a Certified Nursing Assistant, an associate degree in medical assisting, and a bachelor’s degree in behavioral science, I’ve spent much of my life walking beside others during their most vulnerable moments. I’ve seen the weight that caregiving places on the body, mind, and spirit—and I’ve felt it, too.
Now, as I pursue my master’s in clinical mental health counseling, I’m passionate about using my education and lived experience to uplift others. Whether you're navigating chronic illness, caring for an aging loved one, or trying to cope with burnout, you're not alone. My hope is that by sharing stories, reflections, and mental health tools, I can be a voice of empathy, strength, and validation for others walking similar paths.
#MightyTogether #Depression #Anxiety #Dementia #AlzheimersDisease
Hi, my name is NoahFence. I'm here because on May 20, 2025. I underwent a Brain Scan. The diagnoses are dementia. Multiple sclerosis and strokes. The left-side of my brain had "gross amount" of white tissues and damaged tissues. I just turned 37 on October 2nd. These past few years of substance abuse and being a domestic abuse victim had truly taken a toll on my body and now my overall health.
#MightyTogether #MultipleSclerosis #Anxiety #Depression #PTSD #Grief #Dementia
I'm a medical researcher developing new screening tests for early cognitive impairment and new treatments for #Stroke rehab, #AlzheimersDisease / #Dementia
Casually interested in #Parenting sensitive kids #SensoryProcessingDisorder , #Neurodiversity #NeurodevelopmentalDisorders #Addiction #blacklivesmatter #Dyspraxia #PolycysticOvarySyndrome #Scoliosis
Hi, my name is Fluffer59. I'm here because my husband is an alcoholic with dementia. Need to learn to navigate this diagnoses while keeping myself healthy & from derailing. I have had fibromyalgia for past 30 years.
I did this many years ago. Because my mom is a Narc, and she instilled this in me from a baby growing up that I would basically always need her to make decisions for me. But a few people outside of my family educated me on what they saw, and I corrected this over a 10-year span... but now my mom respects me as an adult and doesn't try to control me... but the connect that a child has with their mom I had to break those ties permanently. Because my mom abused that at an early age... So most of the time I treat her like she is a stranger even though she's my mom... my mom now has a mild case of dementia so she doesn't remember half of what she did to me when I was younger #BPD #BorderlinePersonalityDisorder #MentalHealth #PTSD #Bipolar #NarcissisticPersonalityDisorder
Hi, my name is parcel. I'm here because Been a Christian since 1990. Never had any real health problems. Happily married, then about 4 years my wife started to develop Dementia so now I look after her (She's 74, Im 74).
But since having a severe vertigo attack in Aug 13th (was bed ridden for 24 hrs). Was fine the next day. With some good an bad days. Was ok. Then on Dec 27 in 23. Woke up not feeling well. Haven't been the same since. I have a feeling in my mind, things are not rite. It's continous. Affects my cognitive an neurological functions. Now I feel like "I'm drowning" due to various health probs.Constant feeling something's not rite. Had various blood tests, CT scan, endoscopy front an back. Nuthin found. Have anemia an B12 deficiency, Now on various tabs. Have had some anxiety an depression. Really struggling to look after my wife at times, I have a hernia, some globus which gives me wind, burping, difficult to get to sleep at nite.
Don't wanna get up in the morning but I have to look after my wife. Very lill support, altho Alzheimers society helps a lot. Wife has various health issues. She used to be active, now she can't go out without me. So can't go out an leave her for long. Just feel like I'm in a living nightmare, I'm unable to wake up from. Slowly drowning.
Tried praying asking God to take it away. Feels like a curse or something has been put on me. She gets Attendance Allowance. We are both on pensions. Both with saving accs an a joint acc. Recently applied for Power of Attorney. Can't attend meetings unless I bring my wife (who has severe short term memory) Help me someone.
I always had a strong faith since getting saved. God has blessed us both beyond measure. Now it feels like life is a struggle. How long does this last, until there's a breakthro.
Every day I wake up, thinking it's gonna be different, but it's not. Time goes slowly, listen to a lotta praise music during day. Wife can look afterself quite well, she has a routine. Except for meals an meds, which I prepare.
No problem with driving, just gotta keep the car going so we can get the shopping in.
Just feels like I'm "losing it" sometimes, with no way to get on top of things. no time to recover, before something else occurs.Having to rely on support an advice by more authorities an organisations than ever before.Always tended to be self reliant, not now tho.
Since Dec 09 24 I now wake up feeling slightly out of it, with some residual affects of Vertigo. Which remains throughout the day. Limiting my everyday tasks even more. I have more burdens recently inc mistake by DWP. Applied for Carers allowance then got clobbered by a reduction in Pension Credit.They miscalculated total money in accs.Meaning I now have to pay full rent an council tax. When will it all end!Have been told Carers element will remove rent an council tax costs. (Thats now sorted.)
TBC
I really wish I didn't have to get out of bed sometimes, but I have another whocounts on me every day. Thank God for that, or I might not even be here. #Caregiving #Depression #Dementia #AlzheimersDisease