Graves' Disease

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Heartbroken Depression #CPTSD

I recently learned that my daughter has been diagnosed with both Graves Disease and Thyroid Eye Disease, just like I’ve had for 40 years. She’s had an extremely rough time managing autoimmune illness for much of her adult life, putting a great strain on our off/on relationship. I’ve always been there for her, though we live a many hours apart, and I always will be. I am blind and no longer drive. She knows how much I love her. But her father and my divorce when she was around 10 devastated her. He wouldn’t allow counseling she so desperately needed. The therapist she ultimately got as an adult got their license at Walgreens, and agrees to blaming the parents for everything. Leaving it there, full stop. My heart is just breaking for her, knowing what she’s going through… her face and eyes are becoming distorted, and it is so very painful. Your body simply shuts down, muscle weakness, utter fatigue. Graves is a horrible disease. With her they are catching it relatively early, and I know there are new drugs for treatment that weren’t previously available. I just tried to listen. Stay positive. Supportive. Comforting. She finds reasons to blame me anyway. I let her vent. I know how frightened she is. All my trust is in God. I’m just so, so sad. She hasn’t been working and can’t work now for certain. She’s in for a world of hurt when she’s unable to handle it , I can’t help her, and she’s blocked me again. Thanks for listening.

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DreamingRoe

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@dreamingroe

MightyTogether 2mo

I’m new here!

Hi, my name is DreamingRoe. I have seizures and migraines that leave me feeling paralyzed and helpless. I also have Graves disease and stevens-Johnson syndrome both autoimmune diseases. so I am sick all the time it seems I'm here cause i have still have some hope, I guess. that I'm not alone. that I might get thru it. . . thanks for having me.

#MightyTogether #Anxiety #Migraine #PTSD

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TazGizmo

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@tazgizmo

RareDisease 8mo

Graves Disease, does anyone else have? #autoimmune #GravesDisease #thyroid #Anxiety #symptoms #ADHD

#RareDisease

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beeboy

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@beeboy

MightyTogether 10mo

I’m new here!

Hi, my name is Jamie, or Jam for short. I'm here to learn how to accept my graves disease and chronic pain. After years of being taught to ignore my symptoms and pain, to suddenly being told it's very serious and will never go away. I have no idea what I'm doing. I dont know how to go about my day to day life while trying to pretend I'm not in pain. I thought this was something that everybody did. In my mind, my pain was normal and something everyone felt. How am I supposed to even look at people when all I feel is shame that I feel this way and they dont
#MightyTogether #Anxiety #Depression

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Kay Of th North

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@kofthenorth

Dementia 1y

The Wicked Witch

My Grandmother has gotten more miserable as she has gotten older. Now she is at the point where no one wants to look after her. Not her own children and very few of her grandchildren. None of the local nursing homes will take her due to the reputation that she has made for herself. She’s a smoker and has a bad attitude overall. She figures that she can treat people however she wants and has no consiquences whatsoever. The technitian that came to connect her phone for her was met with a tirade of racist insults profanities and rudness of every nature. I’m angry with her. But at the same time how can I be angry with her? Its so hard to tell where she starts and the diseases that she has, ends. This woman was lovely to her grandchildren at one point in her life. But Its so hard to believe that they were the same person. So hard to believe that the woman that made us hot chocolate at family gatherings and cinnamon spread on toast for breakfast when we slept over at their house. Some people that knew her differently say that she has always been like that. So very rude. She says so many hurtful things to us. Its hard to care about this woman anymore. She always tells me how fat I am. And I can’t eat in front of her without her making a rude remark. She’s in the early to mid stages of dementia, and it makes it hard because I don’t recognize the woman in front of me anymore. She is family. But somedays I wonder if “family” really means anything anymore. #Dementia #Caregiving #GravesDisease

(edited)

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New2Graves

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@new2graves

MightyTogether 1y

I'm new here!

Hi, my name is New2Graves. I'm here for the paths that many have already taken as a guide through this, even though it will different for me. As my username suggests, I was recently diagnosed with Graves' disease. Like "fresh from the doctor's office" new, but has been researching on the condition online for a while.
#MightyTogether #graves 'Disease

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MyLabBlu

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@amyandblu

Autoimmunity 1y

New to this group

Hi there I’m new to this group and wanted to say hello. I have a Rheumatoid Arthritis and Graves Disease.

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Mighty Leader

Nina

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@sparklywartanks

Autoimmunity 1y

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What’s your most challenging autoimmune symptom to manage?

Autoimmune diseases can be tricky to navigate, especially when it comes to managing the consistently fluctuating or unpredictable symptoms they bring. (Don’t even get us started on how hard they can be to diagnose, too!)

In addition, some symptoms (or all of them, honestly) can heavily impact your productivity, mental health, and life as a whole.

What autoimmune symptoms do you find most challenging to manage and regulate? (Butterfly rash? Temperature regulation? Joint pain? Inflammation?)

📖 What to read more of what other Mighty members have mentioned? Check out this Mighty article by @erin-migdol here: The 23 Worst Symptoms of Autoimmune Disease We Don't Talk Ab...

#AutoimmuneDisease #ChronicIllness #ChronicPain #MentalHealth #CheckInWithMe #Disability #RareDisease #ChronicFatigue #Migraine #Insomnia #Fibromyalgia #HashimotosThyroiditis #GravesDisease #RheumatoidArthritis #Lupus #MultipleSclerosis #DiabetesType2
#Psoriasis #SjogrensSyndrome

The 23 Worst Symptoms of Autoimmune Disease We Don't Talk About (and How to Cope)

"It can feel very isolating..."

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Group Leader

Taryn This Is Me Trying

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@tarynvenske

This Is Trying 1y

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Gonna Need A Bigger Spork!

True story… when I was fresh home from hospital, unwashed, unable to stand due to being chronically thyrotoxic, wearing PJs and a cancer cap to cover my hair loss, a visitor uttered these words to me like they think it’s some sort of compliment 🤦‍♀️

#MakeMeLaugh #DistractMe #Spoonie #ChronicIllness #ChronicFatigue #MyalgicEncephalomyelitis #Fibromyalgia #HashimotosThyroiditis #Hyperthyroidism #GravesDisease