Kidneyinfection

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Since you all loved the photo of him the other day… I present - Loki being cute.

As I said, you all loved my beautiful Loki the other day. Today, he’s been curling up around my feet cus my blanket was too warm for him. I’m feeling much better today - the antibiotics have done their job, as have the heavy painkillers.

Thank you all for wishing me well. I hope you all have a fantastic and easy week ahead of you!

#chronicillnesswarrior #POTS #EDS #NAFLD #LiverDisease #Diabetes #Migraines #InterstitialCystitis #ic #bladderdisease #BladderPain #ChronicPain #Kidneyinfection

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First day back..

Hi everyone, I go back to work tomorrow morning after over a month off and my anxiety is crazy high.. I work in an operating room so it’s a lot of pressure and I’ve only been there 3 months so I’m still new and haven’t made any friends. I’m terrified of messing up… Any advice to calm my anxiety??

#Anxiety #Depression #ObsessiveCompulsiveDisorder #PTSD #KidneyStones #Kidneyinfection

16 comments
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One day at a time

After being stuck in bed for almost a month fighting 4 kidney stones and a infection, I was finally able to make it to the gym. Never give up, there is a light at the end of the tunnel! 🤍

#KidneyStones #Kidneyinfection #IrritableBowelSyndromeIBS #NeverGiveUp #StayStrong #Anxiety #Depression #PTSD #ObsessiveCompulsiveDisorder #Gym

4 comments
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What do you do to treat a Hemiplegic Migraine? I was terrified.

I had one of the scariest experiences in my life on Sunday.

At about 3pm I was sat on my bed with my laptop watching Netflix like I usually do and all of a sudden it felt like the left side of my skull was being crushed. In seconds I reached a 9 out of 10 of the pain scale - I practically screamed. Then after about 10 seconds it died down to about a 5/10, so I went to get up to tell my mum what happened but almost as soon as I stood up I lost consciousness and hit the floor. I should note - I have Postural Orthostatic Tachycardia Syndrome so losing consciousness isn’t exactly a new thing for me. While lying on the floor where I’d fallen, my mum witnessed me passing out six times in five minutes, and for the entire time my head pain went between 5 and 9 out of 10. And the entire of my face and the right side of my body started to go numb.

Naturally, my mum was pretty scared. She called 999. The first responder paramedic that showed up just looked at me, pulled a face and said; “Have you ever heard of a migraine?” I couldn’t believe it. I told him REPEATEDLY that I have migraines all the time and that they were never as painful as the pain in my head at that time, nor did they ever come on that suddenly.

An ambulance arrived shortly after and they took me to the hospital. The doctor came to see me quickly and said I needed a CT scan of my head immediately because he thought I’d had a subarachnoid bleed - a bleed in my brain. The CT scan came back as completely normal but he said that about 5% of the time the scanner can’t get a view of the bleed. He also told me that my white blood cell count and my inflammatory markers were through the roof! I’d been experiencing right sided flank pain for a few days beforehand but I’d ignored it - I get pain all over my body sometimes so I figured it was nothing... Anyway, I was put on a strong dose of Gentamicin.

By Monday morning most of the right side of my body was feeling normal and my fever had dropped down too. The pain in my head had subsided - down to about a 3 or a 4. The doctors said that they wanted to keep me in for another day so I could receive more antibiotics.

And finally today, the pain in my head is completely gone. They’ve sent me home with ten days worth of antibiotics to clear the infection out of my kidneys. They said that the infection in my kidney had triggered a Hemiplegic Migraine. Which is apparently a very nasty and very painful migraine that tends to mimic a stroke with one sided weakness or numbness, slurring of speech, altered vision and extreme fatigue.

I was terrified. What do you do for this kind of migraine to make it less severe or go away?

Thank you all in advance. I just never want this to happen again...

#chronicillnesswarrior #POTS #EDS #BPD #NAFLD #InterstitialCystitis #Diabetes #Migraines #Pain #help #Kidneyinfection #HospitalStays

10 comments
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Kidney infection

Since a couple of days, I’m suffering a kidney infection. I have to take antibiotics but I’m not a fan of those because it’s such an attack on your body. I’m wording what would happen if I just stop taking them. My anxiety is so high #Anxiety #Kidneyinfection

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#CheckInWithMe

Had to miss my psychologist appointment today and call off work. Still have uti and in lots of pain. Tuesday saw my family doctor and ordered a kidney ultrasound. It came back normal. Yesterday called back to family doctor who sent phenzopryride to pharmacy. Still taking antibodics while on this new prescription. Not sure if experiencing side effects or interaction. I’m so dizzy my parents need to help walk me even just to bathroom and still have low left back pain where my kidney is . Very frustrated I had to miss work again. Only made it 2x this week #SideEffects #workstruggles #Anxiety #frustrated #ChronicPain #Undiagnosed #Kidneyinfection

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Extra pain, hospital stays and multiple ER visits

Right before thanksgiving I noticed I wasn’t digesting food, my back was hurting and I felt crappier then normal. I feel crappy and hurt every day so I didn’t think much about it. At my huge family thanksgiving I spent 90% of the time laying on my heat pad with my jacket over my face, drove home with the car seat heater on and slept like crap, ended up puking up the small plate of food I was able to eat. I went to the ER and found out I had a bad kidney infection. Not super surprising since I get UTIs a lot with interstitial cystitis, I’ve had 12 this year. Anyway, they started me in IV antibiotics and sent me home. Two days later I was back in the ER not being able to keep any meds down and suffering a migraine which I never get. They did another IV dose of meds. 4 days later I was back in the ER feeling worse then ever, but I was also retaining urine. They finally figured out they were treating the wrong bacteria. They catheterized me and admitted me to the hospital for IV meds around the clock. Catheters already suck, but they are 10x worse with IC and an infection on top of it. I was released from the hospital 6 days later last Tuesday. I ended up back in the ER Friday because I was peeing blood from my Foley catheter. I was in horrid pain and the ER just said to wait until I see my urologist the 12th, which is tomorrow. I’ve been in agony, my normal pain meds and even my stronger pain meds have barely touched the pain and nausea. When I just emptied my foley I saw chunks of red and brown inside the bag... it’s awful!! I’ve had this damn thing in about 12 days now and I’m praying I’ll feel much better after this comes out tomorrow. But it’ll only come out if I can pass the test where they place 600ml into your bladder through the catheter port and you have to pee out at least 300 or it has to stay... I’m praying it’ll come out because I doubt I can survive anymore days of this! I’ve had to double up on all my meds and nothings working so I get to tell my drs I’ll be running out early this month. That’s a nightmare I’m of itself! I hate this so much, I’m tired of puking, crying, screaming from pain and barely being able to move from the pain. I haven’t showered in days because I have a damn bag attached to me and it hurts too much to move... ugh I don’t even have the words right now! #InterstitialCystitis #Catheter #Kidneyinfection #PainManagement