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Keeping up w/ meds, pharmacy & insurance can be grueling. Yet over time I’ve embraced them. What is your relationship w/ your meds? Love? Hate? Both?

Recently I've had a change of perspective about all my meds, doctors, specialists, hospitals, psychiatrist, therapist, physical therapists, pain clinics, caseworkers, and the many types of treatments I get. I have come to be thankful that I have them all and no longer resent them, no longer resent how physically and emotionally draining they can be, no longer resent the days I have lost when I could be working…or playing! I stopped venting and complaining about them in the bulk of my conversations, and making them the focus of the (often limited) emotional energy I do have left many days.

It took awhile and some really tough and scary times…surviving two pandemics: being HIV+ in the 80’s, and many serious complications from it; and then decades later I got Covid that had me taken by ambulance to the ER with over a dozen symptoms, and having to learn how to walk again in rehab; heart surgery; multiple concussions; being in a coma for 4 hours after and accident; mental health hospitalizations…including the arrests I had during two manic episodes; and struggling with addiction. It took really stepping back away from it all and then suddenly I came to find a new perspective, came to the realization of how blessed, loved…and yes, lucky I am. I now choose to see all I deal with currently as tools, resources, and opportunities that keep me alive, help me heal, stay balanced, and I can now see how they are leading me to good health and having the opportunity to thrive.

Yes, I do have well over three dozen doctors, departments, and health care providers in my phone, and probably have seen or worked with over 20 this year, averaging 4-6 health appointments a week for most of the last year. And yes, I take 16 medications, and right now I have a few challenges that have created limitations every day, needing the assistance of mobility devices, needing rides most places and when I drive now using handicapped parking spaces. I stopped feeling sorry for myself and playing the victim and instead choose to smile and laugh during health appointments, joking about the crazy, big, obnoxious migraine glasses I wear everywhere and sharing how I can't wait to run a marathon with others who I meet that are also struggling with physical health limitations. But am I joking? Do I really see myself running, rock climbing, kayaking, going camping and getting back on my favorite hikes again? I choose to hold on to that hope and believe I can overcome the obstacles in my path.

I am realistic though. I also accept that this might be unlikely, and that I will have many of my current health challenges the rest of my life. Yet I give thanks every night for another day, the blessings I do have in my life, the relatively good health I do have in spite of it all. I choose to make sure to observe those around me at the hospital, when I go for (only) outpatient appointments, see how some are in worse shape than I’m in, hear the helicopters land at the hospital, and see the ambulances come to the ER, knowing how scary that can be! I observe other people at Physical Therapy with their head in a cage, or without a limb, I walk past the mental health ward that was my home (twice), am humbled when I read many posts of what others go through here in MHC and remind myself it COULD ALWAYS BE WORSE. With this new perspective, comes gratitude and appreciation…and I choose to smile.

Now to be honest this is a work in progress, I still can wake in the morning and feel sorry for myself after I get out of bed with four body parts hurting before my first step. I can get depressed due to having so many med changes recently. I have even called Mom in total fear before I went for a biopsy, while waiting for news from an ultrasound of something else, and having just found out a procedure I had recently might need to be repeated… and all of a sudden I realized how overwhelmed and scared I was, broke down and cried. Mom “caught me” as she has so often and uplifted & encouraged me. Then a funny thing happened later...I broke out laughing at the magnitude of it all, then walked out of the doctors with my cane and funky glasses and remembered it HAD been worse…but I’m still here!

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How do you feel when you see your pill bottles? Take your meds every day? Go to regular doctors appointments? I invite you to shift your perspective too… if you haven't already…because even if nothing changes with your health challenges, how you feel about them can make all the difference!

#MentalHealth #Depression #Anxiety #Disability #ChronicPain #ChronicIllness #Selflove #Selfcare #BipolarDisorder #BipolarDepression #ADHD #ObsessiveCompulsiveDisorder #COVID19 #Migraine #Headache #HIVAIDS #PeripheralNeuropathy #BackPain #Addiction #AddictionRecovery #IfYouFeelHopeless #Hope #CheckInWithMe #InsideTheMighty #MightyTogether #DistractMe #MightyMinute #MightyQuestions #conqueryourmind #RareDisease #BrainInjury

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We have reached 2,222 members🎉!! Thanks for being a part of this journey! (There is a special appeal to ALL members below.) Please read! 🙏🫶🤗Moshe

We are growing fast …just passed 2,200 members a few months ago and are at 2,222 today and growing strong! (If you are not a member yet please consider joining us!) This is really exciting to me, we have all put in the effort and as a community we have grown, flourished and have built a sacred place where I hope you all feel at home! You have shown you care for each other, are there for each other and trust each other. This makes me very happy and proud. I envisioned the group would be a place where members would empathize with each other, ask for support, and offer support to others. When we are operating smoothly this experience is so exciting to watch spread & expand.

However, to be honest, I have been very frustrated that there is less activity recently and as our membership grows steadily the number of comments & replies has actually diminished. Our old co-leader Chris is no longer with the group and we need to have others step up and make up for her commitment to regularly respond to posts and comments. This means a collective effort from everyone in the group! I have had numerous layers of serious physical & mental health challenges recently and have had to step back and focus on self-care. This is a time when you can all help me by checking in here and see if there are new posts and hopefully respond.

My last post about hobbies with the image of all the colorful people doing different fun things only got ONE response. And Laura made a great post about disability after that and it got only two responses. When new members have the courage to open up and introduce themselves we want them to feel welcome and supported. Please especially respond if you share some similar health challenges and hopefully offer acknowledgement and encouragement!

This is OUR group everybody and it functions best when members support other members. We all have our varied health histories and with them the knowledge and wisdom we’ve garnered along the way! PLEASE let’s share these with each other. This communal empathy and understanding makes us strong.

Offering your own posts provides more content for the group and can generate great conversations. Write about if you are struggling and need support, encouragement and/or information. Write about how great things are going and share things that are helping you. Pose a question to the group which can excite others to chip in. Or just share a great meme you have found. It can be really powerful for others to see your post as they can then empathize and relate! I would be happy to support your effort if you want to run things by me before you post, I can help finding memes or images if you like, and I will comment on your posts to get the responses going to best support your efforts. I’m here for you and really enjoy the whole process, so please reach out to me if you need assistance or encouragement. I have made well over 100 posts since I started the group and learned a lot along the way! (Please scroll down back in time to find my other posts, you might find some of them helpful😉)

I believe in the power we have as a group and the community we have built. I am so thankful you have joined us and we are all on this journey together!

In service,

Moshe Adler
@moshe222mhc
🙏💥🫶💜🤗💥🙏

P.S. ✡️Happy Rosh Hashanah✡️ -The Jewish New Year. May today mark a time of new beginnings for us all.🌦️⛅️🌤️☀️

#MentalHealth #Depression #Anxiety #Disability #ChronicPain #ChronicIllness #Selflove #Selfcare #BipolarDisorder #Bipolar1 #Bipolar2 #BipolarDepression #ADHD #PTSD #ObsessiveCompulsiveDisorder #COVID19 #Migraine #Headache #RareDisease #HIVAIDS #PeripheralNeuropathy #BackPain #neckpain #Addiction #AddictionRecovery #IfYouFeelHopeless #Hope #CheckInWithMe #InsideTheMighty #MightyTogether #DistractMe #TheMighty #MightyMinute #MightyQuestions #Concussion #BrainInjury

@laurascardigno @texassonrisa @xokat @sparklywartanks

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We are in need of a new co-leader for MHC to encourage, empower, & support our members. I make a APPEAL to current members - PLEASE read below!

We are currently looking for a new Co-Leader for the Multiple Health Challenges group. We are growning fast and just passed 2,200 members. This is really exciting to me, however to be honest, I have been very frustrated that there is less activity recently and as our membership grows steadily the number of comments & replies has actually diminished. Our old co-leader Chris is no longer with the group and we need to have others step up and make up for her commitment to regularly respond to posts and comments. This means a collective effort from everyone in the group! I have had numerous layers of serious physical & mental health challenges recently and not been as active as I would like in order to step back and focus on self-care. This is a time having another co-leader to pick up the slack is essential!

My last post about hobbies was actually first posted 16 months ago (when we had at least 1,000 less members) and it got over 200 ❤️ & 👍and 100 comments then! It got only ONE this time. And Laura made a great post about disability after that and it got only two responses as well. When new members open up and post to introduce themselves and then get very little response that is even worse. I fear that new members will see this and not be active moving forward. This is OUR group everybody and it functions best when members support other members. We all have our varied health histories and with them the knowledge and wisdom we’ve garnered along the way! PLEASE let’s share these with each other. Without this empathy and understanding this group is falling short of what I first envisioned when I started the group and what it’s capable of.

For a co-leader I am looking for someone to welcome new members, comment or respond to posts and other comments & replies, and make new posts to the group. It is important for the group to have distinctly different voices to support people because people might relate more to either of us. What is a really good situation is if we both respond to the same posts, welcome new members from different perspectives and provide voices for people that are accessible and relatable. There is a commitment needed that you monitor activities on the group regularly and can respond pretty quickly.

Offering your own posts provides more content for the group. I can assist and support by offering to look at your new posts for feedback and editing before you post if you would like, will comment on your posts to get the responses going to best support your efforts, and I can help finding memes or images.

I look at potential leaders' history of posts and/or comments that have helped and supported others in the past. Willingness to be honest and open about your own health challenges is crucial to best support people.

You will get access to the Community Leaders group and your name will have a “Group Leader” tab next to it up top on your comments and responses so I think people pay attention especially to your activity and wisdom shared from your personal experience. Would you consider joining me on this journey? Let’s have a DM chat to discuss this! Thanks for considering taking on this role!

In service,
Moshe
@moshemhc

#Depression #Anxiety #MentalHealth #ChronicPain #ChronicIllness #Chronicpainwarrior #Disability #BipolarDisorder #BipolarDepression #BipolarIIDisorder #Bipolar1Disorder
#ObsessiveCompulsiveDisorder #ADHD #Schizophrenia #AspergersSyndrome #Autism #Dementia #Concussion #Addiction #AddictionRecovery #Cancers #TraumaticBrainInjury #BrainInjury #LossOfAParent #Grief #Suicide #ChronicFatigueSyndrome #DistractMe #HIVAIDS #MightyQuestions #DownSyndrome #IfYouFeelHopeless #Hope #Deafness #neckpain #BackPain #CongestiveHeartFailure #Migraine #COVID19 #PeripheralNeuropathy #LymeDisease #Diabetes #EatingDisorder #Headache #Stroke #Cancer #BorderlinePersonalityDisorder #Fibromyalgia #Disability #thankful #grateful #CocaineDependence #drugaddiction #Alcoholism #PTSD #EmotionalHealth #physicalhealth #PainAcceptance #Acceptance #relief #Selflove #Selfcare #MentalHealthHero #TheMighty #RareDisease #MightyTogether #RareDisease

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What are hobbies and healthy activities that have helped your mental health?

Typically when people think of self-care, they think of: getting enough sleep, exercising, eating well, taking a nap, meditating, taking a bath or shower, or even going to a spa. But what if a rock concert is more your speed? Or Rockclimbing? Bowling? Backpacking? Fishing? Gardening? Deep cleaning? We are each our own person. What works for you may not work for others, or vice versa. There is no “right” answer as to what hobbies can and do improve our mental health. By sharing what helps you, hopefully other members will be inspired to explore those or other new activities!

I like listening to or making music on my drum. Recently I’ve found listening to podcasts can be very enthralling…entertaining and even educating! At the beginning of Covid Stay at Home I got some Legos and making things with them was fun and a great distraction…so it was a new creative hobby …and using colored pencils filling in mandalas and tattoo flash in adult coloring books (yes, they have these! They can be quite intricate and challenging …or simple) These were surprisingly therapuetc and calming! I love taking the time to create something, finish it, step back, and see the end result of my efforts. It can make me feel really good…proud, accomplished and empowered!

What have you found works for you?

Here’s a quick check-in for if you’re feeling self-conscious about your preferences…

Q: Does [insert hobby here] help you when you’re down?
A: Yes!

Conclusion: Then you’re doing it right, my friends! I am so glad you have found things that help you. Keep exploring to find new hobbies to expand your possibilities and new ways that you can turn to when you’re down or need a boost!

Please share those hobbies activities below — let’s see who has similar ones, or maybe ideas people haven’t thought about but will help them too!

#MentalHealth #Depression #Anxiety #Disability #ChronicPain #ChronicIllness #Selflove #Selfcare #BipolarDisorder #Bipolar1 #Bipolar2 #BipolarDepression #ADHD #ObsessiveCompulsiveDisorder #COVID19 #Migraine #Headache #RareDisease #HIVAIDS #PeripheralNeuropathy #BackPain #neckpain #Addiction #AddictionRecovery #IfYouFeelHopeless #Hope #CheckInWithMe #InsideTheMighty #MightyTogether #DistractMe #mighty #MightyMinute #MightyQuestions #BrainInjury #Concussion #BrainFog #MemoryLoss

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Have things slowed you down or provided obstacles that have left you feeling that your dreams of your future may never happen? How have you adapted?

Letting go of visions and dreams unachieved is very hard for me. I can often feel like a failure, or that I let people down, or that I’m weak and haven’t reached my potential and these thoughts have weighed me down …but instead of beating myself up I always try to live in the moment…. I’m proud of the journeys I’ve been on, of the things I have accomplished, and sometimes I just have to simply remind myself that I’m a survivor in many ways… and I have to honor that part of myself…give myself credit for hanging on, sometimes just fighting to get through the day…

Then the hardest part becomes trying to reach acceptance and ownership of the things that have changed how I live my life day to day, and accept the limitations I live with, the things I may never be able to do again, and yet find joy in the many possibilities for new things I can do, new chapters of my book that lie ahead and find hope and promise in those new dreams and visions. As my wise friend Chris always says…There is more good than bad and there always silver linings!

#Anxiety #Disability #ChronicPain #ChronicIllness #Selflove #Selfcare #BipolarDisorder #Bipolar1Disorder #Bipolar2Disorder #BipolarDepression #ADHD #ObsessiveCompulsiveDisorder #COVID19 #Migraine #Headache #RareDisease #HIVAIDS #PeripheralNeuropathy #BackPain #PTSD #Addiction #AddictionRecovery #IfYouFeelHopeless #Hope #CheckInWithMe #TheMighty #MightyTogether #MightyQuestions #DistractMe #Depression #MentalHealth

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Abuse recovery

I’m one week into my breakup with the most verbally abusive man I’ve ever been with. The neck grabbing, shirt grabbing, breaking my things in complete anger and yelling. How does one recover from this??? I know I need some serious help because I’m noticing a reliance of alcohol and medical weed, I’m debating on admitting myself into Shepherd Pratt which is an mental hospital which separates you by disorders. My parents are really telling me to just go to a psychiatrist and therapy but then I have to pay to go. You don’t have to pay anything supposedly. I don’t know. #Abuse #AbuseSurvivors #PTSD #HighlySensitive #Anxiety #BipolarDisorder #MightyQuestions #AbusiveRelationship #Selfharm #Therapy

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An Open Letter To Anyone That Is Struggling (Including Myself)

We all struggle at some point whether it be with mental illness or physical health problems. This is just a sad fact of life but the good news is that we are stronger than what is in front of us. Sure our health problems may never go away but don't let that discourage you from reaching your goals and dreams. You are just as special as anyone else and just as capable even if you have limitations. There is something that makes each of us unique.

If you're struggling with negative or anxious thoughts like I am then take a breath and acknowledge it. The more you acknowledge it the less power it seems to have over you. Sometimes our thoughts are misleading …. They can only be guided by emotion. This is okay so long as we are willing to work with it. Struggling does not make you less than, it makes you human!

We are all on this journey of life together and our struggles possess the ability to teach us things. Some lessons are hard to face while others come quite easily.

The point is, you are stronger and more capable than you give yourself credit for. I sometimes downplay my accomplishments but I shouldn't. Neither should you. If you got out of bed today-good. If you ate-good. If you went to work-good. Every little accomplishment deserves attention no matter how small. By celebrating our victories we validate ourselves and we deserve that. Our feelings and situations are valid even if others don't think so.

What I am saying is: YOU GOT THIS! Whatever life throws at you is not impossible to deal with. So go out there and shine like the brilliant person you are because that's what the world needs, more people like you. I believe in you…and yes I believe in myself…most of the time, but reading this post really invigorated and empowered me.

As always please stay safe and reach out for help if you need to.

~Amcron
@stillsearching1994

#MentalHealth #Depression #Anxiety #ChronicIllness #ChronicPain #Selfcare #Selflove #BipolarDisorder #Bipolar2Disorder #Bipolar1Disorder #BipolarDepression #ADHD #ObsessiveCompulsiveDisorder #COVID19 #Migraine #Headache #RareDisease #HIVAIDS #PeripheralNeuropathy #BackPain #PTSD #Addiction #AddictionRecovery #IfYouFeelHopeless #Hope #CheckInWithMe #TheMighty #MightyTogether #MightyMinute #DistractMe #MightyQuestions

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What is the most comforting thing someone can say to you...

If you could have a friend or loved support you best when you are depressed or in pain what would you like them to say? What would you like them to stop asking? Sometimes just listening, giving a hug or just being there can be so very helpful, but when you are struggling what can people say that would make you feel the most supported? How can they let you know they’ve got your back? What words would be the most comforting? What words have been the most hurtful? If you could have someone say (or not say) anything to make you feel better what would help you the most?

#MentalHealth #Depression #Anxiety #ChronicIllness #ChronicPain #Selfcare #Selflove #BipolarDisorder #Bipolar2Disorder #Bipolar1Disorder #BipolarDepression #ADHD #ObsessiveCompulsiveDisorder #COVID19 #Migraine #Headache #HIVAIDS #PeripheralNeuropathy #BackPain #PTSD #Addiction #AddictionRecovery #IfYouFeelHopeless #Hope #CheckInWithMe #TheMighty #MightyTogether #MightyMinute #DistractMe #MightyQuestions

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What are you grateful for? What can you be thankful for to keep you holding on during tough times?

Please let's all share our blessings in life that we are thankful for. In
dark and trying times (like right now), I try to always remember the things I am grateful for and remind myself that without any/all of them my life could be much less manageable

I am grateful for:

-Being alive!
-Being able to walk, even if I need mobility devices
-Having a roof over my head
-Having food on the table
-Having great doctors, nurses, my therapist, my shrink, numerous specialists and my clinic - and having the insurance to pay for them - as well as insurance to pay for my many medications!
-Having a strong network of family and friends and always being able to know that I am loved and supported ...and
-Having my relative health - things could always be worse!

What are you thankful for?

Maybe thank someone who you are grateful for and let them know how helpful they are and how much it means to you to have their support. Sometimes people don’t know how much they impact other’s lives!

#Depression #Anxiety #MentalHealth #ChronicPain #ChronicIllness #Chronicpainwarrior #BipolarDisorder #Bipolar2Disorder #Bipolar1Disorder #Stigma #BipolarDepression
#ObsessiveCompulsiveDisorder #ADHD #Autism #Dementia #Addiction #AddictionRecovery #BrainInjury #LossOfAParent #Grief #SuicideSurvivors #MyalgicEncephalomyelitis #HIVAIDS #longtermsurvivor #ChronicIllness #ChronicPain #MightyQuestions #DownSyndrome #IfYouFeelHopeless #Hope #Deaf #CongestiveHeartFailure #Migraine #COVID19 #PeripheralNeuropathy #LymeDisease #Diabetes #EatingDisorders #Headache #Stroke #help #BorderlinePersonalityDisorder #Fibromyalgia #thankful #grateful #EatingDisorders #CocaineDependence #drugaddict #PTSD #EmotionalHealth #physicalhealth #PainAcceptance #Acceptance #relief #Happiness #TheMighty #MightyMinute #MightyTogether #DistractMe #MightyTogether #mentalhealthwarrior #RareDisease #ChronicFatigue

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Surviving is just part of the journey…making the most of the time it gives you and realizing there can be good times despite the struggles is a gift!

It’s not all about survival, there is a lot of living to do along the way. Although at times I feel like I am just treating one ailment after another, all day every day (which is true right now) I’ve decided why take all the time and energy it takes to survive everything unless I don’t enjoy how the time given to me by surviving is ripe for good times too.

Recently I have mostly been homebound except to go to health appointments… doctors, PT & OT, clinics, therapy etc. and then only with a walker and the benefit of handicapped parking spots. But I try to continue to celebrate the gifts I have in life, be thankful for the blessings I have that make life just a little more bearable and remind myself of what I’ve been through, how I’ve survived and what I’ve learned from these experiences. If I consider all this, then I must be a very wise man 😉 I may have dropped out of college but I have a Masters degree from the School of Hard Knocks … the diploma is not needed, I know I have accomplished it and need no reminder…I’m still alive after all!

Tough times have given me the chance to tap into my inner strength and I’ve also grown along the way. I don’t have to wait to celebrate the good times when I am experiencing some right now despite what I’m going through!

Thank you all for the love, support, thoughts and prayers, I certainly couldn’t have done this alone!

#Depression #Anxiety #MentalHealth #ChronicPain #ChronicIllness #Chronicpainwarrior #Disability #BipolarDisorder #BipolarDepression #Bipolar2Disorder #Bipolar1Disorder #Stigma #ObsessiveCompulsiveDisorder #RareDisease #AspergersSyndrome #ADHD #Autism #Dementia #Addiction #AddictionRecovery #Cancer #TraumaticBrainInjury #BrainInjury #LossOfAParent #Grief #SuicideSurvivors #ChronicFatigue #DistractMe #HIVAIDS #longtermsurvivor #ChronicIllness #ChronicPain #MightyQuestions #DownSyndrome #IfYouFeelHopeless #Hope #Deafness #neckpain #BackPain #CongestiveHeartFailure #Migraine #COVID19 #PeripheralNeuropathy #LymeDisease #Diabetes #EatingDisorders #Headache #Stroke #help #BorderlinePersonalityDisorder #Fibromyalgia #thankful #grateful #EatingDisorders #CocaineDependence #drugaddict #PTSD #EmotionalHealth #physicalhealth #PainAcceptance #Acceptance #relief #Happiness #Selflove #Selfcare #MightyMinute #MentalHealthHero
#TheMighty #InsideTheMighty #MightyTogether #DistractMe

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