Rare Disease

When my daughter was first (mis)diagnosed with a rare disease in 2013, not only was I utterly devastated by the news that she had a progressive disease, but I was also shocked beyond reason by the realization that such a disease even existed in the first place. That moment was reality-altering. In fact, I remember very little from that day, except [...]

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Glenda McCoy

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Rare Disease

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How My Daughter's Rare Disease Opened My Eyes

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#52SmallThings #CheckInWithMe #Selfcare #MentalHealth #Disability #ChronicIllness #ChronicPain #RareDisease #Anxiety #Depression
#Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

52 Small Things 57m

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How does your health impact how frequently (or infrequently) you clean?

Hi, Mighties!

This week our self-care challenge topic is all about cleaning. Yup, that recurring responsibility we know all too well. 😬

When it comes to tidying and de-griming, we may find that our health conditions impact how and when we approach and tackle certain tasks — which is totally normal by the way, no judgment here!

For example, disabilities can make it hard to dust certain shelves, chronic fatigue can make untangling the vacuum an Olympic sport, or depression can turn us apathetic and numb to our surroundings.

What’s your relationship to cleaning and health?

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What is currently taking up more of your time and energy than you’d like?

We all have different levels of responsibilities, tasks, and daily chores that take up a portion of our day and brain space because, well... we just have to get them done. (Adulting is #fun!)

But, do you ever feel like there’s one or more of those things that take up much more time than it has to and could use a revamp or different approach?

For Mighty staffer @sparklywartanks , that “thing” is how long it takes her to send a detailed email. She could benefit from simplifying how often she rereads and contemplates her message so she feels more confident and can get her work done with less time and energy.

3 reactions • 3 comments

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52 Small Things 5d

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What are some ways you could simplify your living space?

Whether it’s finding a better system to store your food, or taking unused clothes or shoes to be donated; to readjusting your furniture so you can move around your home more comfortably, different actions can be taken to simplify your living space — especially if you find you want to make some changes but don’t exactly know where to start.

What would simplify your living space and make it more comfortable for you?

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Take a Mighty Minute

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@takeamightyminute

Mighty Minute 5d

How often do you get second opinions?

Living with health conditions often means seeing multiple providers for answers, support, and guidance. Deciding on a treatment plan can feel overwhelming, especially when symptoms are complex or unclear. Sometimes seeking second opinions can help you feel more informed, validated, and confident in the choices you make for your care.

Choose one

4 weeks left

Not often—I usually stick with one provider

Sometimes—if something doesn’t feel right

Often—I like to explore multiple perspectives

Always—I want as much input as possible

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52 Small Things 6d

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Something I own but never use is…

Simplifying our lives requires us to examine and reflect on the different aspects of our daily routines, habits, and surroundings; and take out, change, or adjust what we feel isn’t necessarily adding value to our day-to-day. That can even mean looking through our belongings to see what we have, but rarely (or ever) use.

As you take a look around, what can you find that you own that you don’t use or haven’t used in a really long time? What can you do with that belonging that will help simplify that "clutter"?

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#MightyMinute #CheckInWithMe #ChronicPain #ChronicIllness #Disability #RareDisease #MentalHealth #Anxiety #Autism #Parenting #PTSD #ADHD #BorderlinePersonalityDisorder #BipolarDisorder #ObsessiveCompulsiveDisorder #EatingDisorders #Depression #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

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Take a Mighty Minute

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@takeamightyminute

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Share a personal goal you have for the week.

Hi Mighties! 🫶

The start of a new week can be a great time to pause, reset, and think about what we want to prioritize in the days ahead.

What’s one personal goal you’d like to set for yourself this week? Why is that goal important to you?

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#MightyTogether #Migraine #RheumatoidArthritis #Blindness #Glaucoma #RareDisease #MitochondrialDisease #Gastroparesis #Fibromyalgia #MultipleSclerosis

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@cutekoala8175

MightyTogether 1w

I’m new here!

Hi, my name is CuteKoala8175.

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52 Small Things 1w

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What area of your life could use some simplification right now?

Life in general is complex and multifaceted, especially when you live with one or more health conditions. This doesn’t mean, however, that EVERY aspect of our lives has to be at the same level of complexity. It can definitely be beneficial to simplify one or more areas to add balance and a little bit of breathing room.

From cleaning to your weekend schedule to your weekly meal plan, what areas in your life could use a little makeover?

Mighty staffer @sparklywartanks says that area is her personal goals and time management. She’s found that because she has a lot going on she sometimes gets overwhelmed, procrastinates, or has a hard time sleeping.

2 reactions • 3 comments