Rare Disease

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Think of these like playlists, but for your health. Our editors have selected the best and most helpful of The Mighty just for you.
Navigating a Rare Disease Diagnosis
Recently diagnosed? You've come to the right place. Learn from others who have been where you are. You don't have to go through this alone.
Parenting Children With Rare Disease
Rare disease families have a unique bond. These stories will lead you through the entire emotional spectrum: from diagnosis to daily life.
Managing Health Care With Rare Disease
What's it like to navigate health care when you're constantly having to educate (and spell) your disease to others? Right this way.
The Reality of Living With Rare Disease
"It's not easy to treat something your physicians don't fully understand." This collection goes out to anyone who just nodded their head.
Rare Disease and Relationships
From friendship to marriage, these stories serve up advice & raw insights into relationships when there's a rare disease in the picture.
Supporting Someone With Rare Disease
It can be hard to know where to start when caring for someone with a rare disease. What do you say? What's actually helpful? We've got you!
Trials and Treatments for Rare Disease
The bitter truth: Rare disease treatments are hard to come by and the demand for clinical trials is high. These stories offer solidarity.
Where Rare Disease & Mental Health Meet
It may feel impossible to accept a diagnosis that most haven't heard of. Note to self: Your mental health is just as important to care for.
Charcot-Marie-Tooth Disease (CMT)
Named after three physicians, CMT impacts a person's motor & sensory nerves. Learn more from our incredible CMT community here.
Functional Neurological Disorder (FND)
FND, or conversion disorder, affects one's nervous system. From loss of balance to seizures, hear more from people who live with it.