Raynauds Phenomenon

Create a new post for topic
Join the Conversation on
Raynauds Phenomenon
4.2K people
0 stories
249 posts
About Raynauds Phenomenon Show topic details
Explore Our Newsletters
What's New in Raynauds Phenomenon
All
Stories
Posts
Videos
Latest
Trending
Post
See full photo

Zen 🧘‍♀️

Went home unbelievably nauseous with a migraine since I opened my eyes and I’ve been having a heck of a couple weeks. Yet getting to enjoy this - zen - my GSD girls - nature - a book - quite . Did I mention it’s 75 with a slight breeze blue sky’s and suns out. Ideal for me. #MixedConnectiveTissueDiseaseMCTD #MentalHealth #RheumatoidArthritis #AutonomicDysfunction #ADHD #Anxiety #ChronicFatigue #RaynaudsPhenomenon

Most common user reactions 21 reactions 7 comments
Post

Mirror

Better at giving good advice than taking it. How can I naturally give sound advice , but I have a hard time using my own advice to help myself . Why do my words tend to help others but it just goes in and out a ear when it comes to me. #depresison #MentalHealth #AutonomicDysfunction #MixedConnectiveTissueDiseaseMCTD #RaynaudsPhenomenon #RheumatoidArthritis #Anxiety

Most common user reactionsMost common user reactionsMost common user reactions 9 reactions 4 comments
Post

Off Switch

Anyone know where the off switch is ?! Brain just keeps going and going it’s Friday afternoon (530pm) and I’m still wound tight - sitting out in nature for the last hour on my swing . Trying to settle . Where is that dang switch ? #MentalHealth #Anxiety #MixedConnectiveTissueDiseaseMCTD #RaynaudsPhenomenon #RheumatoidArthritis #AutonomicDysfunction

Most common user reactionsMost common user reactions 17 reactions 7 comments
Post

Lane Issues

Guidence needed: how to handle when someone asks you to stay in your lane when the only reason you feel a compulsion to act is because someone else is falling flat on there responsabies. So you agree shrink yourself (which triggers a childhood traums of always having to be presentable and on your A game but blend into the background and try not to be noticed) . As you watch things catch fire because your not stepping in to fix it. I know i am at fault - what to do. In my head its helping and being a team player.
There head im over stepping. Yet when i step back im just asked a million questions and being asked to give them validation on there decision. Its dumb. Why do i need to shrink myself - to make them feel valid but still have to hold there hand. If i decline im being petty and moody. What people don’t see is I’ve already shrunk myself due to medical I am not at the full capacity I once used to be. Sorry a bit off topic from your great post I read - #MixedConnectiveTissueDiseaseMCTD #RaynaudsPhenomenon #RheumatoidArthritis #MentalHealth #AutonomicDysfunction #Anxiety #ChronicFatigue

Most common user reactionsMost common user reactions 3 reactions 1 comment
Post

Cracked

Feeling …. Exactly that nothing . Have an inevitable cloud that’s been hanging around for the last couple of years. Getting harder to see the light in the lining. Stuck. Social life is non existent. Relationship is like a rock stuck in a stream. Work is driving me insane- not the work load but the people. Major communication issues in the place and my personality with my drive does not function well in the environment. Therapy helps some but spend more time talking about others than my own issues. Processing and handling things is an extreme high and I get worked up or it’s no existent and I’ve lost the ability to care. Body is the same , different days different pains . #MentalHealth #MixedConnectiveTissueDiseaseMCTD #RaynaudsPhenomenon #AutonomicDysfunction #ChronicFatigue #Anxiety #DepressiveDisorders #RheumatoidArthritis

Most common user reactionsMost common user reactions 11 reactions 6 comments
Post
See full photo

How does fatigue show up for you throughout the day?

Living with a chronic illness like CFS (Chronic Fatigue Syndrome) looks different for everyone. Symptoms can vary and fluctuate in severity throughout the day, not just from one day to the next.

How would you describe your fatigue? Does it follow a pattern you’ve come to recognize, or does it feel more random and unpredictable?

Share your experience with us in the comments below!

#ChronicPain #ChronicIllness #COVID19 #ChronicFatigueSyndrome #PostTraumaticStressDisorder #AutoimmuneDisease #Spoonie #Fibromyalgia #IrritableBowelSyndromeIBS #Migraine #Depression #RaynaudsPhenomenon

Most common user reactions 2 reactions 4 comments
Post

Realization

I’ve come to the realization that I’m going to need to up my therapy sessions from bi weekly to weekly. My insurance with cover it thankfully .

I started therapy to work on healing my inner child that needless to say wasn’t great time for me . That of what I remember. Mind you I can’t remember earlier than 15 and even what I remember from 15 to current is splotchy at best. Lots of blacked out moments . I see it in photos don’t recall it etc etc .

Then when I get there lately my current life I am living is becoming of subject. To be honest I think I’ve talked more about the gray hairs a 16 almost 17 year old step daughter is giving me and the household .

I’m not even sure what I’m working on at this point besides decompressing .

Trying to pull myself out of this stagnet rut I’m in . There’s no order .

#MentalHealth #Anxiety #MixedConnectiveTissueDiseaseMCTD #ADHD #RaynaudsPhenomenon #AutonomicDysfunction #POTS #Depression #RheumatoidArthritis

Most common user reactionsMost common user reactions 6 reactions 2 comments
Post

#RaynaudsPhenomenon
I have Raynauds probably most of my life but definately during long abusive marriage. I do all the right things--magnesium, wool everything, handwarmers, etc. But it has been awful this Spring in Anchorage. I walked into a nice reataurant to meet friends--with a parka, hat and mittens--in June!
I shivered through dinner with hands around hot tea.
It started, of course with exercise (which makes me cold) and a hot shower (which also always leaves my feet cold).
Then my partner wanted me to hurry. STRESS---bazinga!!

Post

Validation

For years I have lived with a “fibromyalgia” diagnosis and numerous strange symptoms that come and go. Recently things have escalated and changed and bloodwork revealed the probability of autoimmune disease; my PCP is guessing lupus or sjogrens. For all these years I have felt and seen the disbelief of people close to me and them thinking I’m just being “dramatic” or anxious. My ex husband went so far as to tell me to not tell anyone I have fibromyalgia because it’s embarrassing. When I recently received the lab results that I am not in fact “being dramatic “, I felt like throwing up my middle finger to everyone who turned their back and brushed me off. My mother even told me that she thought I was just having anxiety issues. My psychiatry nurse pointed out it is like I am validated now, even though having an autoimmune illness is definitely not something anyone wants. I feel like after all these years I am not just being a whiny butt. Now will come the hard part of waiting to see a specialist, it’s months to get in and that part sucks. I don’t have a lot of people in my circle and this does feel isolating so I’m here to try and be proactive, try and keep anxiety about the unknown and off the wall symptoms down and connect with others who are in the same boat. #autoimmune #ADHD #Undiagnosed #whatswrongwithme
#SjogrensSyndrome #SystemicLupusErythematosus #RaynaudsPhenomenon

Most common user reactionsMost common user reactionsMost common user reactions 10 reactions 4 comments