spoonies

I’ve been dealing with chronic illness for a long while now that has largely been invisible. Today I got approved for sick leave and will be taking a break to focus on my physical and mental health for a couple of weeks. I feel weirdly guilty about all of this, but I’m trying to unlearn those feelings and look after myself. Being uncomfortable for so long really takes its toll and it’s ok to take a break. #MentalHealth #Spoonies #ChronicMigraineSyndrome #Eczema

What is something that is missing in today's world that you had growing up?

I feel respect is largely missing and is not taught at home like it was for me growing up.

This might be long, if so I apologize. I asked my best friend to drop me over at my son's while he visits his family, which he did. I took my son and long time gf a new phone that I had activated it already. They were renting a house with another couple. That couple had his grown son and his fiance move in because they needed a place. That started this person moving in or that one moving out. Not sure why but rent wasn't getting paid so they ended up getting a summons to court (I believe there were 7 names listed as living there). My son and his gf are the only ones who appeared. I mad sure and took them. The judge gave them two weeks to vacate. My son was like, why did we go since we still got evicted. I told him "you went to hold yourself accountable. That's respectable!" When I was explaining to mom she asked how much their rent was because she was going to offer to pay it. It was to much. So today when I got to their house my son was just getting to leave to take another load to my storage that had lots of room using his bicycle and a bicycle cart. It was 36 degrees and dropping. I texted my friend and asked if I could borrow his car so my son isn't getting his stuff in storage this way. Since they have to be out by noon tomorrow he would have had to work throughout the night. My friend says, no problem. When my son got back and came in to warm up I told him I'm borrowing the car. He had the new phone in his hands looking at it and he looks at me and says, "I'm not sure who you talked to that helped buy this phone but thank you. Plus helping to make sure we get our things in storage I really appreciate all that you do to help us out.

He has never really ever taken anything for granted because we never had much more than bill money. He has always shown me respect. I sometimes doesn't think he understands that when I became a mom I took on: what I call being a mom and it doesn't stop when you grow up. Different kids might need mom for different reasons. I talked about counting my blessings because I am grateful for every day. I could have easily lost my life when I was with my abusive ex. I'm grateful that I'm able to help each of my 3 grown children. I'm grateful I have an extremely supportive, the best friend ever and lover all rolled into one amazing man. Since I had to move out of my apartment I no longer have to wait out in the cold for public transportation. I'm very grateful for that. I'm not sure why I shared all this. Maybe I just needed to put it down in words. I hope everyone that reads this takes the time to think of 1 thing they are grateful for.

I've recently taken on a part time job at a department store. $13/hr. My friend asked me: why are you doing this to yourself?
(She may be right) but I need $ to live, and my $32/hr contract job (easy) has ended. So what's a Gal to do? 🤷
#Fibromyalgia #ChronicFatigue #hashimotos #ChronicDepression #ChronicPain #Spoonies

Hi all,

I'm brand new here, trying this out for the first time. I'm working on putting together a podcast made by and for people living which chronic illness and/or disability. The goal is to share real stories of how people adapt to their new lives, challenges they've faced, what they've learned, how they cope, and also interviewing professionals who work with people with chronic pain. This is specifically for people who used to live "normal" lives, but had to completely change their lives due to medical issue or trauma. The focus is not on any specific condition, but about how we deal with them.

Does this sound like something appealing to you? What topics would you like to see covered in this podcast? What would be most helpful for you? Also anyone good with computers interested in helping to create the podcast, please send me a message! #neisvoid #disabilitysupport #Spoonies #reimaginelife2 #Chronicpainwarrior