UnknownDiagnosis

So next week I have to go to my first appointment at a pain clinic. I have never been to one before but after 4 yrs of seeing 7 different drs no one can seem to figure out what is wrong with me. I am sort of really nervous and I don’t know what is really going to happen. I have been to many new drs in the past but for some reason this one is more nerve racking for me. Does anyone know what happens at your first appointment?/ will anyone walk me through what I should know about going? #Pain #UnknownDiagnosis

It’s been rough being shipped to different doctors and I feel like giving up. When someone walks in, hears your symptoms and says “I’m sorry I can’t help you” and walks out, after 4 minutes. I want to not exist. My body won’t work for me, you won’t help me, and I can’t do anything. I want to stop existing so much. #autoimmune #UnknownDiagnosis

I wish I have someone to talk to. I wish I knew what's going on inside my head. I wish all the pain to go away. I wish I could have proper sleep.

I wish I was normal.
#UnknownDiagnosis #UnknownIllness

Went to a new Rheumatologist today. Barely asked any questions and didn't even look at the medical records and she decided it was fibromyalgia! I've already been diagnosed with that I was referred back to the Rheumatologist because all medications( which has been a lot) I've tried has no effect on me and my PCP believe its something else and that I need further work up. I honestly feel like its something else too. I know fibro can be severe but this feels different. I just don't get why they're not willing to do every test possible or explore it to make sure they're really isn't anything else. I'm so frustrated, tired, I'm not a hypochondriac, its not in my head, I'm not doing this to get opioids or disability. I just want my life back! #Fibromyalgia #fuckdoctors #InvisibleIllnesses #CheckInWithMe #UnknownDiagnosis #MedicalPtsd

Well I finally got my second 14 day event monitor today (the first one didn’t work, so they had to send me a new one). I’m not looking forward to wearing this for 14 days and recording every symptom.

I’ve got my echo on Thursday and then I see the new cardiologist on the 3rd. I finally got fed up with the other one and requested a “second opinion” since I couldn’t outright say he and his office sucks and I won’t go back.

I tried to go get my nails done last Sunday and had an anxiety attack in my car, so I cancelled the appointment. I have no idea why getting my nails done freaks me out. I’m going to try again tomorrow. Hopefully no issues arise, as I badly need them done 😂. #Tachycardia #UnknownDiagnosis #CheckInWithMe #Anxiety