UnknownDiagnosis

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    Weight issues #weightproblems

    So I’ve been struggling with my weight all my life I’ve never been small but I’m not big either, right now I eat under 1500 calories a day and I go for walks 3x a day for a minimum of 15 mins. I have ibs, I’m lactose intolerant and adhd. With the food I eat, I should be dropping weight with no problem.
    The thing is over the past 2 years I’ve gained up to 20 pounds. I started two years ago at 140 ( great weight) as of today I’m 166 (it’s okay)
    On the BMI chart I’m obese, like being 5 foot even doesn’t work with the chart and I know that.
    It’s just a little frustrating when I get all these tests done like my thyroid and it comes back normal.
    And no one can explain how me eating healthy ( living with a dietitian) and going for walks 3xs makes me gain weight
    Does anyone else struggle with this #weight #UnknownDiagnosis #frustrated

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    Pain management first appointment expectations

    So next week I have to go to my first appointment at a pain clinic. I have never been to one before but after 4 yrs of seeing 7 different drs no one can seem to figure out what is wrong with me. I am sort of really nervous and I don’t know what is really going to happen. I have been to many new drs in the past but for some reason this one is more nerve racking for me. Does anyone know what happens at your first appointment?/ will anyone walk me through what I should know about going? #Pain #UnknownDiagnosis

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    Feel like giving up -bad doctors appointment

    It’s been rough being shipped to different doctors and I feel like giving up. When someone walks in, hears your symptoms and says “I’m sorry I can’t help you” and walks out, after 4 minutes. I want to not exist. My body won’t work for me, you won’t help me, and I can’t do anything. I want to stop existing so much. #autoimmune #UnknownDiagnosis

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    I wish

    I wish I have someone to talk to. I wish I knew what's going on inside my head. I wish all the pain to go away. I wish I could have proper sleep.

    I wish I was normal.
    #UnknownDiagnosis #UnknownIllness

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    Whenever I go to the doctors I get depressed after.

    Went to a new Rheumatologist today. Barely asked any questions and didn't even look at the medical records and she decided it was fibromyalgia! I've already been diagnosed with that I was referred back to the Rheumatologist because all medications( which has been a lot) I've tried has no effect on me and my PCP believe its something else and that I need further work up. I honestly feel like its something else too. I know fibro can be severe but this feels different. I just don't get why they're not willing to do every test possible or explore it to make sure they're really isn't anything else. I'm so frustrated, tired, I'm not a hypochondriac, its not in my head, I'm not doing this to get opioids or disability. I just want my life back! #Fibromyalgia #fuckdoctors #InvisibleIllnesses #CheckInWithMe #UnknownDiagnosis #MedicalPtsd

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    And so it begins.

    Well I finally got my second 14 day event monitor today (the first one didn’t work, so they had to send me a new one). I’m not looking forward to wearing this for 14 days and recording every symptom.

    I’ve got my echo on Thursday and then I see the new cardiologist on the 3rd. I finally got fed up with the other one and requested a “second opinion” since I couldn’t outright say he and his office sucks and I won’t go back.

    I tried to go get my nails done last Sunday and had an anxiety attack in my car, so I cancelled the appointment. I have no idea why getting my nails done freaks me out. I’m going to try again tomorrow. Hopefully no issues arise, as I badly need them done 😂. #Tachycardia #UnknownDiagnosis #CheckInWithMe #Anxiety

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    Cuddles my best friend

    By request I am sharing a pic of my best girl friend Cuddles.Resued her 3 years ago.My emotional support . I'm in love. Please share a pic. of your support pet or stuffed animal.
    #Depression #RareDisease #sjogrens #Anxiety #Fibromyalgia # IBS #ChronicFatigue #Vertigo #SpinalStenosis #UnknownDiagnosis #InspirationalQuotes #Crafting #Nystagmus

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    Tired of pain

    Today is one of those days. I feel like someone has pins stuck in every micro square inch of my body. #ChronicPain #UnknownDiagnosis #autoimmune #Arthritis #non-StopPain

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    I'm new here. ❤️

    Hello 👋🏻

    I'm new here and I just wanted to introduce myself and try to make some friends.
    I am 32, I love to sing, listen to music, laugh, read and watch British TV.

    I don't have a diagnosis yet, but I have all the symptoms of Multiple Sclerosis, a mri that shows roughly 15 lesions on my brain and I'm fairly certain I just experienced an MS hug three days ago. Can someone please tell me how to avoid them? How to end them once they are started? I went to the ER but after waiting for hours in the waiting room, I went home. My hands and feet and half my face went tingly and eventually numb too, it was awful.

    Next test is a spinal tap I think. Do those hurt badly?
    I'm really hoping my pain tolerance will increase like it did with Fibromyalgia, have you guys found that to happen?

    Because I don't have any insurance, getting a diagnosis seems like it's been extremely hard. They don't see me, they see a number and I'm wondering if anyone has any advice for me on how to get the doctors to see _me_, to treat _me_, not a number.

    Essentially, I'm looking for friends and asking for help to navigate things. I feel scared sometimes and just not feeling so alone with this thing most don't understand would really help.

    Thank you guys for being here.
    Sending you all a gentle hug.

    #Fibromyalgia #MultipleSclerosis #UnknownDiagnosis #ChronicIllness #ChronicPain

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