Coronavirus Disease 2019 (COVID-19)

I have a rare condition where my immune system treats food as a toxin so I am frequently starving.

I had planned on being better by Xmas, you know, mind over matter. That didn't go as planned & I'm actually worse. "Friends" pressured me to come over (to my home) because I had said I'd be better by Xmas. All of them couldn't keep themselves from cross-contaminating (my daughter doesn't eat like me & her diet is cheaper than mine so that's what I'll feed people). No one ever brings anything, it's all on me to fetch guest's food & feed. The one thing I asked of my "friends" is that they not kill me, it was too much to ask so I let them all know around Xmas time that I don't want landmines planted in my home & I don't feel safe with their visits. I've summarized here. Anyway, it all went badly.

Around the same time, I ended several other friendships. All one-way relationships. I couldn't keep up with their needs. Lots of cruelty sent my way because my illness is causing all kinds of inconveniences to people.

That theme continues where I'm pissing people off. One, I CONTINUE to be sick - which is just inconvenient to people. 2, I never know when it's going to be super bad, like in bed fetal-position bad wishing I would just die - which cuts off socialization abruptly. I'm not going to make promises I can't keep so I've been distant. I just ghost. No one hears me no matter what I say.

I have a LOT of anger. These people are well. They have true friends and family - of which we have none. They have cars. And 2 good feet (I have a foot needing surgery, complete 5th metatarsal fracture & it won't heal completely - I walk on this to buy friends their meals when they have a car & could pick something up). I'm often CALLED while I'm in urgent care or in a hospital. If I say where I am, they literally don't care & go on with their needs.

I've always been the one & told who is "super strong," "capable." I've always been sick but it got so much worse after I had COVID. It's been unrelenting since then. & Then I was diagnosed with a new condition, the rare one on top of a tough condition I've had since the beginning of time.

I have good habits all around. Fitness is my passion & despite a very low caloric intake, I still workout which is crazy (because most of the time my caloric intake is very low) but on days when I'm in a lot of pain, obv I can't. I'm trying to be tougher so that I can be me again.

How do I be less annoying to people? The Normals (can eat, can eat whatever they want, can eat out)?

I hate that I am inconvenient but I never ask for help & all through this, I've only helped them. Thank you.

I have had a rough two weeks. I got covid, than our power went out for almost three days due to extreme weather, and than I got food poisoning. I think that the physical illnesses sort of triggered my depression and anxiety. And my stomach still feels weird. Taking it easy and slowly increasing expectations.

This is the only way i know to let this beast go. Lyme rage, it’s real, it’s ugly and don’t get in the path of someone with it. I’ve had Lyme 38 years, the entire time I’ve lived across the river from Lyme CT. My husband has it, even my dog does. I’m the chronic one and the one that gets repeatedly reinfected. And hitting my head. I’m at around 30 or more concussions. Lyme and head injuries are not a good mix. Neither is a Candida die off, not the three B’s but systemic Candidiasis’. I’ve been on and off antibiotics since i was a kid. I’m 68 now, my gut has finally healed but my diet is killing me mentally, no dairy no sugar no wheat says the former carboholic. Candida needs sugar to live on. She begs for it relentlessly, Candy is an evil bitch. Chills, mood changes and horrific skin rashes that smell like death no matter how much i wash.

But today the thing I’m most angry about is what my psychiatrist told me. He’s affiliated with Yale the great Lyme disease deniers and torturers of Lyme patients especially women since the test rarely works on us. For 12 years i tried to convince him Lyme was real. He went with silence thankfully and not mocking and abuse. But 3 months ago he said all of your issues are likely due to the Lyme and i have an office full of patients like you.

Excuse me, could you repeat this again. You now believe persistent Lyme exists, no test needed, symptoms obvious.

i should be happy but I’m furious. My country has betrayed me. Used me as a guinea pig in their biological weapons experiments without my permission. Dropping ticks on us out of airplanes. But the ticks hopped on all the birds that landed on Plum Island and so a pandemic began. They were supposed to ask per their own manual Title 50, Google it.

My country stole my life, my career, my hobbies, my friends and family. All that’s left is my faithful and loyal husband with Agent Orange cancer. At least they admitted to that and pay him. Me they throw $2000/ mo at and expect me to pay for my own Lyme care.

I want reparations, i want medical care. , i need a caregiver since you took away my pain meds I’m bedridden in pain. You destroyed my life and that of millions of people.

Why did things change? COvid.! Ironically Covid acts a lot like late Lyme. Fatigue cognitive changes, memory issues and the bonus hypoinflation of the lungs or shortness of breath. And long haulers are all over the place.

As far as I’m concerned the biggest war is right here in the USA and caused by them. I get nothing from them, I’m left alone because no one knows the truth unless they looked. It’s there but even the Drs don’t know. It’s so bad that they finally had to do something. There are now CDC guidelines in place for late Lyme. If you’re on Medicare you can get a full tick borne panel paid for by Medicare at a specialty lab, do it. But preferably please use the built in executioner when you’ve had enough. It will come to your head usually with unbearable pain and dare to say wouldn’t you be happier dead. My answer is no. Fuck you Lyme disease and Uncle Sam.

I’m forever a POW of the USArny’s biological weapons experiments gone horribly awry and i live in my cell alone waiting to die

Tell everyone it’s really real (even tho we knew it)

the emperor is indeed naked but the people aren’t laughing they’re crying

I have a mother who has circulation problems in her legs and kidneys Have stop functioning on their own. I have mix feelings on how to help her without getting too close. I discovered that my mother was a narcissist. It took me a while to realize this. It’s painful to know your existence was purely because she wanted to stay in this country. She raised me with unattainable demands of success. And I would have accomplished most of her ideals of the successful American life. If she had more faith -no patience. For years I walked into my adulthood feeling inadequate. Never good enough to be her picture of a perfect child. My brother and I never felt protected by our mom’. At first we sympathize with her as she made us feel like we were the only three in her life. She hardly ever spoke of her mother or father nor siblings. My father was an adulterer and abuser. Who tried to poison her when he found out she was pregnant with me. Funny thing,as my brother and I grew up and had siblings chat about trying to be good children for our mom’s. Because she had it ruff with family. That’s why she came to America to get away from them. From my father who ubuse her. Then came the story of my brother’s father. As teens we will say to protect our mother’s tainted reputation from church members judgments. We will say we had the same father. We just looked obviously different because he took after my mother. While I took on my father’s features. Until she fell in love and got married. Our step father tried in his dysfunctional ways to make us a family. She had no longer use for us. As her husband became her everything and we became the enemy. As the only purpose in her life was to make her suffer. For divorcing my father and living as a single liberated woman in the 70’s and 80’s. He fell for it and so did we as her children. She became more and more unbearable when I was a teenager as I started to see the hypocrisy in all of her actions. She will display affection only when she need something or for my brother and I to take the blame for her inability to read English. As we got blamed for all forms she sighed and deadlines she failed to finish. I grew increasingly tired of being her scapegoat. As I no longer was her heroine. She had no use for me anymore. I left and got married. My brother stayed another 20 years till he decided to m in with us. My brother and I have spent years in therapy. Trying to pick up the pieces of our puzzle life. My brother was diagnosed with bipolar and I with anxiety and depression. Both suffer from post dramatic trauma.

Now mom is a widow and at a home waiting for her. To make up her mind about getting her leg amputated due to an accident where she fractured her toes and was stubborn and did not drink her medication. Now social workers constantly calling me and telling of my mom’s needs. All of these things while I’m taking clases to align myself with a new job. As Covid changed everything. I also have my youngest son who is 32. Has disorganized schizophrenia. My son is not taking his medication. My oldest loosing yet another job again. He has two children and ask for help. Can I get a break? I know I have to be strong. I am tired physically tired mentally tired. For now I will practice self care. With talking to my therapist and my support group. Being patient with myself and dream of a vacation. Maybe then I will be rewarded with a short break.

Hi, my name is wistfulWoodrat. I've been diagnosed with ME/CFS, which I believe was triggered by COVID which I had in May 2023. I have been unable to get evaluated for long COVID or for COVID related damage. I am looking for community, for advice about monitoring/tracking, and for support in navigating the medical system.

#MightyTogether #covid-19

Hi, my name is Missingnormal. I'm here because
I was diagnosed with gastroparesis in 2016. I also was diagnosed with breast cancer that same year. I had surgery to remove the cancer and went through six years of treatment but a cancer free and doing well in that regard. My gastroparesis though seems to totally change every time I have Covid or any major illnesss. I also have developed diabetes. One of the hardest things is people not accepting the fact that this illness is not going to suddenly go away. It is a permanent issue and there will be good days and bad. I’ve gradually come to accept this and am thankful that I am still able to eat most days although I use a liquid supplement almost daily and never eat like a normal person. Please accept me and my disease(s) for what they are. I’m doing my best.#MightyTogether #Gastroparesis

Stem cell therapy is completely cost prohibitive in the USA, where I've been quoted treatments cost around $5000 dollars each from two different sources. I've been told by my CFIDS specialist that the treatment should be done every 3 months.

So I have a Christian holistic doctor with an MD educational background that amazingly offered me Chinese stem cell therapy at her cost, which was quite cheap since she had it shipped over with an order combined from a total of 3 doctors. I started it just over 2 months ago. I have autoimmune thyroiditis and immune deficiency. What I can tell you is that I felt a decrease in pain in my neck, where I have the most pain, but the effect was strongest right after I got the shot in both elbows, and it doesn't completely remove the pain. I still have to do my neck exercises and stretches and get adjusted by a chiropractor every three weeks so it doesn't become too painful for me and turn into headaches. I didn't notice an effect on my energy levels, but I got COVID-19 four or five weeks after the treatment, which hasn't helped me determine the results very well.

My doctor also has access to placenta stem cell therapy, which I would have preferred, but she wanted to try Chinese stem cell therapy on me first.

Thanks to keepontruckin at phoenixrising.me for showing us even better news on the current research for improvement on stem cell therapy for autoimmune treatment at Mayo Clinic here Scientists pioneer immunotherapy technique for autoimmune diseases

Will this new modified treatment turn out to be a less expensive option?

To understand the differences between Chinese and placenta stem cell therapy, here is an article entitled Development and regulation of stem cell‐based therapies in China and another article entitled Placental-derived stem cells: Culture, differentiation and challenges

#ChronicFatigueSyndrome #MyalgicEncephalomyelitis #AutoimmuneImmunodeficiency #HashimotosThyroiditis