Postural Orthostatic Tachycardia Syndrome is not just a mouthful, it’s a very serious blood circulation disorder that makes every aspect of life something that has to be analyzed for safety.
My symptoms are all invisible (racing heart, feeling sporadically unspeakably dizzy, heart palpitations, general feeling of weakness, etc.), so in many ways, I find myself just putting up with it rather than advocating for my own needs or even attempting to explain it to others.
That being said, most of the individuals I have bothered to open up my experiences with have a hard time understanding.
On the flip side, I’m sure they struggle with how best to ask about my chronic illness while also being respectful and understanding.
How do you talk about POTS—whether you have it or have someone in your life who has it?