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    I hate this country #PTSD #Disability #ChronicIlless #treatmentresistant #HealthInsurance #Poor

    I want to bash my head in. I want to scream on the top of my lungs. I am so angry and I don’t want to fall back into behaviors that slowly kill me.

    I can’t do this.

    Any appointment I’m ABLE to get, is so complex I don’t understand. Referals, we don’t take your insurance.

    No one takes my insurance!!! Medicaid doesn’t cover medications!!! Are you over 18? Then we need a million prior authorizations!! But wait!! Never mind because you’re too old for the medication, per us insurance!!

    Your sick?! Need meds?! YOU GOT IT!


    Have no job because you can barely keep yourself safe?!?! TRY OUR MEDICAID AND GET NO MEDICATIONS OR SERVICES YOU NEED!!



    It’s just a big FU to anyone who can’t take care of themselves, the way the country wants.

    I fucking hate it here. Why do I try? Why do I fight so hard when there’s 10,000 roadblocks in the way.

    Fighting for disability, with a lawyer, who told me I’m going to get denied again. I WENT AND GOT ALL MY RECORDS BECAUSE THEY DIDNT.

    I get told by my lawyer, THAT THE STATE ISNT GOING TO READ EVERY PAGE.


    6 reactions 3 comments

    United Health Care Pushing Opioids Instead of Covering Procedures

    Now let me start by saying I'm not adverse to opioids in the right circumstances, but we all know what a mess Purdue Pharma and others have made. Anyhow, my partner's back conditions continue to worsen. He's tried every single treatment available to him. Nothing works except a Radio Frequency Ablation which has to be done every 6 months. At the end of the 6 months period last time he had a job change which of course means a change of health insurance. He went from BCBS which was amazing for him to United Health Care and Oxford. They have basically tried to kill him over and over again.
    Their latest idea was to put him through unnecessary test injections before the RFA which they openly approved as medically necessary. Then even though he had over 80 percent reduction in pain, they denied it as not medically necessary. They did it all through the appeals process and it is abhorrent.
    Then the other day we get a call from one of the insurance reps asking about his conditions and openly pushing opioids as an alternative to the surgery when he first off can't take them because the interactions with his medications (which he had just finished confirming his med list with the rep) would be catastrophic. It is just beyond horrific honestly. And after the first no I'm good on Opioids, that should have been the end of it. In fact it shouldn't have even been brought up by them as a suggestion. It was terrifying honestly to think that this is still happening despite court cases and the amount of public backlash and everything. Direct from the of course publically traded United Health Care (and of course the whole Optum Pharmacy management branch who they own). I am appalled. I am disgusted. I am beyond enraged.
    #opiod #medications #AnkylosingSpondylitis #MentalHealth #Fibromyalgia #CPTSD #ChronicIllness #Migraine #UnitedHealthCare #HealthInsurance #ADHD

    14 reactions 6 comments

    My insurance company has stopped carrying my incontinence briefs! I have Lupus, and have bowel/bladder loss, especially when I’m in a flare. I also have IBS and often just can’t get to the toilet on time. I’ve had tremendous luck with the company that’s been supplying my briefs for more than two years, but when I tried to make my usual Rapid Repeat Order, I was sent to a customer service agent. They no longer carry my briefs! They are phasing out their plastic backed briefs for breathable briefs. They sent me a sample to try; it was flimsy and it leaked. They are sending a different sample to try. I found my preferred briefs on Amazon, but my insurance pays for them and it was not an easy process. Does anyone know if different incontinence companies carry different products? Are all plastic backed briefs being phased out?
    #Incontinence #IncontinceBriefs #HealthInsurance

    3 reactions
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    Wellness Wednesday: Health Insurance Coverage

    Do you plan on upgrading your health insurance this year or getting new coverage altogether?

    My fellow advocate from Beyond Type 1 & 2, Julia, wrote a fantastic guide on selecting health insurance coverage:


    ❓What challenges you’ve experienced in selecting health insurance?

    ❓What was one takeaway from the article that you will use in selecting health insurance coverage?

    Share your thoughts in the comments?

    #Diabetes #DiabetesType1 #DiabetesType2 #Diabetestype3 #lada #mody #prediabetes #GestationalDiabetes #JuvenileDiabetesType1 #ChronicIllness #AutoimmuneDisease #Lifestyle #HealthCare #HealthInsurance #Support #SupportGroups #MightyTogether


    Funny interaction

    Dealing with the medicaid office can be stressful. I had to call them for the first time in my life but certainly won't be the last, but I thought I would share a little snippet of the conversation to bring a little bit of joy, cause I sure giggled about it later:

    Worker: are you disabled?

    Me: yes.

    Worker: How long have you been disabled?

    Me: since birth.

    Worker: *shocked* excuse me? Since birth?

    Me: *confused by reaction* yes. Since birth

    This was genuine shock, the worker wasn't trying to be mean or judgemental. You would have thought that she never met someone that was born with their disability... Maybe she hadn't. Maybe she was surprised how calm and matter of fact I was and not shy about it. I don't shy away from facts. Still, the experience of it was so funny to me. I hope it brought a little bit of a smile to your face
    #CentersForMedicareAndMedicaid #Disability #MentalHealth #HealthInsurance #funny #cerebalpalsy #Stroke #PediatricStroke


    Paying for an MRI/MRA

    Hello Mighty Community! Does anyone have any advice on how to pay for an MRI/MRA? My roommate needs them. She’s on her parents’ insurance still but no one in her family has been sick this year so there’s been no movement on their deductible. It will cost her 6 months of our rent to get these done, which she can’t afford #ChronicIlless #MRI #Finances #Insurance #Health #Brain #HealthInsurance

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    Wellness Wednesday: Medicine Adherence & Diabetes

    Medication adherence means how well patients follow their doctors' prescriptions and taking medications correctly. According to Cecelia Health, this includes:

    💊 Getting prescriptions filled
    💊 Understanding the medications’ directions
    💊 Taking the correct dosage
    💊 Taking medication at the right frequency
    💊 Being persistent and consistent with taking medication

    Non-adherence isn't just about patients not taking their medicine. The health care system, socioeconomic factors, and medical comorbidities all affect adherence. According to Cecelia Health, non-adherence comes in a lot of forms:

    💊 Initiation: the individual fails to fill their prescription or begin their treatment
    💊 Implementation: the patient doesn’t take the medication as prescribed (delayed or incorrect dosages), making the medication then appear ineffective
    💊 Persistence: The individual starts out taking their medication, but eventually discontinues their treatment

    There are several barriers or causes to medication adherence that patients experience, including:

    💊 Lack of acceptance of the diagnosis
    💊 Feeling fearful or overwhelmed
    💊 Incorrect perceptions of condition or medication
    💊 Struggling with financial resources
    💊 Literacy or language barrier
    💊 Challenges with lifestyle changes
    💊 Access to care

    Ultimately, maintaining medication adherence is key to managing diabetes and living a healthier life.

    Read Diane Talbert's story about overcoming medication non-adherence:

    ❓How have you dealt with medication non-adherence?
    ❓What was the cause of it?

    Share your experiences in the comments 👇🏾

    Source: Cecelia Health

    #Diabetes #DiabetesType1 #DiabetesType2 #lada #mody #prediabetes #GestationalDiabetes #JuvenileDiabetesType1 #ChronicIllness #AutoimmuneDisease #Lifestyle #Medicine #HealthCare #Health #HealthInsurance #Stress #MentalHealth #Support #SupportGroups #MightyTogether

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    Tonight, my heart is heavy.

    This feeling just sits there. It just sits, like a dark shadow, in my stomach. I can’t name it, only feel it.

    And it doesn’t feel nice.

    Insurance. Doctors. Therapies. Advocating. Forms. Worrying.

    How is there supposed to be room for cooking? Cleaning? Fixing?

    Self care? Ha. I’m lucky to have time to shower.

    It’s midnight. And, tonight, I’m heavy with a burden no one should have to carry.

    #medicalmom #Rare #PID #HealthInsurance #Apraxia #AirwayDisorder #chronic


    Help with doctors

    I’m new here and diagnosed bipolar 1. Last week I ran completely out of the lamictal I take. I have my psych a weeks heads up that I needed a refil but they never got back with me and never responded to any messages at all. My thoughts is it’s not the dr herself but her staff as she’s never the one who answers the phone when you call(nobody does, you leave a message and hope they get back to you in a timely manner if at all). She’s part of a huge corporation that I think has just gotten too big for their own britches. I don’t really want to switch dr. but I don’t feel I’ve been given much of a choice. They have me on quite the cocktail but I’m not complaining about that because it works. Vraylar, lamictal, topamax, cymbalta. I know psych drs are a breed of their own. My family dr doesn’t want to take over my meds because they weren’t the ones to prescribe them however they did give me a 30 day supply of lamictal to get me by. This however just ticks my insurance off as they want me to fill in 90 day supplies. Any suggestions? Also if I’m going to switch I’m stuck waiting for an appointment as well as trying to find a dr that takes my insurance. #BipolarDisorder #HealthInsurance

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    Quick Tip Thursday: Ask Your Healthcare Provider About Using A Professional CGM If You Can't Access A CGM

    In the event you cannot afford a continuous glucose monitor (CGM), ask your healthcare provider about using a professional CGM. CGM devices are provided by healthcare providers, placed during office visits, and worn for a week or two at a time. The cost of these devices is usually covered by insurance.

    #Diabetes #DiabetesType1 #DiabetesType2 #lada #mody #prediabetes #GestationalDiabetes #JuvenileDiabetesType1 #ChronicIllness #AutoimmuneDisease #Lifestyle #HealthCare #Health #HealthInsurance #Support #Caregiving #SupportGroups #MightyTogether