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    Community Voices


    Lately I've had a lot of trouble getting anything done. I've had several health flares from lymphedema and fibromyalgia, as well as IBS. My thyroid is a little over-productive right now and it's hard to concentrate on much of anything for any length of time. I have a lot of things going unfinished around here, and I'm finding dishes scattered from room to room.

    The good news is, I'm keeping up a little better with my medications, and I've been going to a clinic which seems to really be looking after my best interests. I'm still scared that I'm going to run out of money before the next time I'm paid, but so far it's been okay.

    I'm very lonely and very frustrated, and I can't even think of anything I'd like to do. I don't have a vehicle after the wrecking the van (I think I was dissociating), so there isn't much I could manage anyhow. #Lymphedema #Fibromyalgia #thyroid #medications

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    #feelings are Real

    Hey Everyone.
    Today I looked at myself in the mirror and I about screamed. I feel bloated, feel fat, feel disgusted, and for some reason just plain emotional. It has not been a good experience today for me... even if all I did was just go grocery shopping with a little bit of cleaning. I did have a #Therapy appointment today, which was helpful. I do not think of myself as a person who has a weight problem. However, it has been a problem for me since I had been on psyche medicines, and my body changed. I am not 25 years old anymore. The past 10 years have been difficult for me as I have seen myself slowly gain weight! I am on new #medications that do not have studies showing that there is significant weight gains. However, I still feel struggling when it comes to body image.

    For those of you who take #psychemedicines - how do you feel?
    What do you do to handle this?
    Any advice will be greatly welcomed. Please respond.


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    If you knew before taking a medication that it would cause cataracts, would you still choose to take it?

    Have been on this medication, 6 months for my Sarcoidosis and now have cataracts in both eyes caused by the medication
    #Sarcoidosis ,#chronic pain, #Pain ,#Prednisone ,#medications ,
    #side effects,# cataracts,#why me

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    I keep making all these changes and nothing changes.

    I take my medications as prescribed by my psychiatrist. I don't smoke or drink. I eat healthy, I exercise and I volunteer. I mind my own business, I don't believe in punishing others for my insecurities. I don't allow my condition to reign over me or define me. My symptoms are intense but I still manage to keep my dignity. I am a very negative thinker but people tell me how encouraging I am to them.

    I'm doing all the right things, how come I don't feel right about any of it?

    I believe in keeping the peace but I never feel peaceful.

    In the past 19 years I've been on 10 different medications to manage my bipolar disorder. Where is this so-called recovery everyone keeps talking about?

    #BipolarDisorder #BorderlinePersonalityDisorder #dualdiagnoses #Depression #Sadness #biploarepisodes #moodswings #feelinghoplessandpurposeless #ifeeldefeated #Anxiety #Mania #visualhallucinations #suicidalideations #homicidalideations #Insomnia #delusional paranoia #extremeguilt #Psychiatrist #psychothreapy #medications #Idontknowwhattodo #icantkeeplivinglikethisitsabsolutetorture

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    I need a #bacation from #treatment

    #PersistentDepressiveDisorder I am taking 10 #medications for depression and anxiety, have tried #ketamine infusions, transmagnetic treatments, and have been on #ECT for more than a year. I feel better, but in the sense that I’m functioning, not crying all the time, sometimes almost happy. Am meeting with doc this afternoon to discuss my #treatmentplan . I’m so tired, feel like I need to not think about my #mentalillnesses for awhile.

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    For those of you who have taken it, what has your experience been taking Wellbutrin? I had Covid over Christmas and while my case was mild, it has messed with my mental health. I’ve had an anxiety diagnosis for years, but depression kicked in. My PCP prescribed Wellbutrin at my yearly physical in January to assist my Lexapro and boost my mood. It has had a polar opposite effect. I feel worse now than when I started it 3 weeks ago. Saturday night, I went down a deep rabbit hole. Thankfully, I didn’t hit the bottom. I had a telehealth session with my therapist this morning and she suggested I go ahead and let my PCP know how I’m feeling and not risk another Saturday night. #anxoety #Depression #medications #feellikeImdrowning

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    I feel that there is such an unnecessary stigma surrounding taking prescribed medication for your chronic illness/ illnesses! It does not make your journey any less valid than someone following a different method of relief. Please don’t feel ashamed or embarrassed for taking medication. I truly do not understand why there is such judgement surrounding medication, and why people feel the need to make unnecessary comments about someone else’s health journey.

    Finding relief for you chronic illness is such a personal journey. Whilst there are so many different options that are spoken about so highly, what is important is what works for you. The same method isn’t going to work the same for everyone, and so what if medication is the method which works best? The fact that you are getting the well deserved relief that you need is all that matters! It doesn’t matter if it’s not a method that is done by yourself. It doesn’t matter if it’s not through yoga, or a different diet. Taking medication should not be looked at any differently and really should not be judged. It is not a sign of defeat, and it does not mean that you are dealing with your illness ‘wrong’. Do what is best for your body!

    I too take quite a few medications - as you can probably tell from my second photo! I’m not ashamed of this, and do not feel that I’m dealing with my illness the wrong way. These medications relieve me of some of my symptoms across a number of my chronic FND my TICs the Fibromyalgia or AMPS in particular can cause a number of tricky symptoms which are difficult to find the treatments for. Ambilify, an Naltrexone are 2 that help provides me the relief of many symptoms surrounding my nerves, including twitching and nerve pain. Medication can be quite a lot of trial and error trying to find medication which provides more benefits than side effects, and upping the dosage when it loses effectiveness. This is how it is more of a personal journey, and thankfully, I have quite a good balance and I am pleased with the relief I’m getting.

    Please don’t feel ashamed or embarrassed for taking medication. I hope this helps to fight the stigma 🤍🖤🤍🖤🤍🖤

    Do you take any medication for your chronic illnesses? Let me know 👇

    #Fibro #FND #Autism #Disability #meds #medications #Stigma #Awareness #brainproblems #Spoonie

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