heart defect

First off, ever since I had my heart surgery when I was 16 I’ve been scared getting into a relationship because I really don’t know when my heart is going to stop. On top of that I have Klinefelter syndrome which I cannot father a child. Also I’m afraid that I might get cheated on and won’t accept me because of my health conditions.
#aaoca #Relationships #ChronicIllness #CHD #chdwarriors #KlinefelterSyndrome #HeartDefect #CongestiveHeartFailure #chf #heartfailure

Hello, i'm still alive. I think I failed my oral English exam or something like that. I got too nervous and couldn't say anything right. I could feel a frantic heartbeat, cold in shaking hands and a lump in my throat. I almost died. D*** it! I don’t know whether I am glad that I am alive or sad because I have not died. 😫😫😫

- #idkwhattodo 😩
- #DontWorry, idn what to do too. ☺️
Thank you #HeartDefect . 🙃
#ifeellikemylifeisover every time I fail exam. 😅
#Headache, you are doing great 🤹‍♂️

For some reason my whole group felt that they were going to be executed...

I hope you are having a good time. That makes me happy for some reason. 🤔

#MixedConnectiveTissueDiseaseMCTD #Gastroparesis #Lupus #PosturalOrthostaticTachycardiaSyndrome #HeartDefect #EhlersDanlosSyndrome

I’ve been wanting a tattoo for awhile now and ai just brought it up to my Mom, and she said I really shouldn’t because I have a implanted device and I can get a infection in my heart. After doing some research I found that it is recommended to take the antibiotics you take when you go too the dentist but she thinks it wont be good enough. Any thoughts? Or do you have tattoos and a pacemaker or implant? #Pacemaker #heart #HeartDefect #CongenitalHeartDefectDisease #Doctors

Somewhere...someplace...today
A family is waiting to hear
Is something wrong with their baby?
The answers aren't quite clear.
This family has entered an unwanted world
And they just don't know what to expect
Somewhere...someplace... today
They first heard the words: heart defect.
And how they hoped it wasn't true
And thought this cannot be
I too know, just how this feels
For one day...this was me.

Somewhere...someplace...today
A man and a woman embrace
Their baby is in surgery
They long to see her face
They haven't got to hold her yet
Without a cord or line
They pace the room awaiting news
And hope she'll be just fine.
Prayers fill this busy waiting room
And mom and dad are scared
Somewhere...someplace...today
The tiniest hearts are repaired.

Somewhere...someplace...today
A child's growing fast
Smiling, laughing, thriving
His mom thinks...can this last?
It's almost easy to forget
That anything is wrong
Somewhere...someplace...today
Her child seems so strong.
Somewhere...someplace... today
A little boy fights...just to live
A father holds his tiny hand
His love...all he can give
The doctor's are all baffled
They fear that he might die
Somewhere...someplace...today
A family says goodbye.

Somewhere...someplace...each year
Numerous families will see...
What it means when something's wrong
They'll face a CHD.
Today...for just a moment
Stop...remember...reflect
Make time to tell someone you know
"I've been changed by a heart defect".

~Stephanie Husted

My outpatient program had a party today, there were a lot of people different part of NJ came together to celebrate mental health. The party was very loud with music, then my heart starts to beat faster than normal. I walked out of the room and a nurse helped by taking vital.