Woke up with my eyes and head hurting (it feels like the start of a migraine) and POTS symptoms. Really needed to see this. #Headache #Migraine #IdiopathicIntracranialHypertension #PosturalOrthostaticTachycardiaSyndrome #POTS #affirmation
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Woke up with a migraine today, needed to see this. #Migraine #IIH #IdiopathicIntracranialHypertension #ChronicPain #affirmation #MentalHealth #MightyTogether
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I'm new to this app and I'm hoping to get some help with my multiple chronic illness. I have Endometriosis, idiopathic intracranial hypertension, migraines, and fibromyalgia. I've had a hysterectomy and have had two rounds of botox for the migraines. I just learned that Endometriosis can travel throughout the body and I'm hoping someone here has had experience learning where / how to find Endometriosis in other parts of their bodies. As all efforts to stop my daily headache/migraines have been nearly useless I'm hoping to rule out Endometriosis in my brain.
Any help or knowledge will be greatly appreciated.
Thank you!
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Hi, my name is InterstellarPuffin. I've been diagnosed with ASD and I'm just trying to adjust to life.
#MightyTogether #AutismSpectrumDisorder #ADHD #IronDeficiencyAnemia #Asthma #Eczema #Migraine #PolycysticOvarySyndrome #PosturalOrthostaticTachycardiaSyndrome
#HidradenitisSuppurativa
#IdiopathicIntracranialHypertension #raynauds
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Hi, my name is If_I_Can_You_Can_2. I'm here because
I had found out after all the symptoms I was having, that I have IIH and other issues and I am scared what might happen next and I am interested on researching about it!#MightyTogether #Anxiety #Depression #BipolarDisorder #Migraine #IdiopathicIntracranialHypertension
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You held on-
to life’s puzzle pieces
when you didn’t know where to start.
One piece at a time,
could finally see-
through pain and the tears in your heart.
Each piece of His wonder,
the pieces of you-
Great Love in the darkest of skies.
No, you didn’t stumble,
brought healing from Father
when puzzled in pieces of life.
You rounded the corners,
when jagged and cornered;
they started to fit perfectly.
Each piece in it’s place,
God’s guidance and grace
with beauty of Psalm 17.
🧩❤️🩹✨💪🏻🙏🧬
#MitochondrialDisease #ChronicIllness #Gastroparesis #IrritableBowelSyndromeIBS #HypothyroidismUnderactiveThyroidDisease #HashimotosThyroiditis #RheumatoidArthritis #RareDisease #IdiopathicIntracranialHypertension #ChronicPain #ComplexRegionalPainSyndrome
3 reactions Ever found yourself struggling to manage energy levels amidst the rollercoaster of chronic illness? It's a journey filled with ups and downs, but within those challenges lies hope, resilience, and a path to reclaiming control.
In my latest blog post, I've gathered insights and practical tips for navigating these hurdles with grace and empowerment. From riding the highs to finding peace amidst the lows, we're exploring how to thrive despite life's obstacles.
Join me on this journey of discovery and support as we navigate the complexities of chronic illness together. Together, we can empower each other to reclaim vitality and find strength in our shared experiences. Ready to take the next step? Head over to the blog at the link below and let's embrace this journey with determination and resilience.
3 Ways to Manage Energy Fluctuations with Chronic Illness
#ChronicFatigue #ChronicFatigueSyndrome #IntracranialHypertension #Anxiety #IdiopathicIntracranialHypertension
2 reactions 
Stripes & Stars of Rare Disease
By Melanie R.
Our faith as our anchor.
Our hope’s guiding light!
Amidst all the struggle,
we share in our plight.
Bringing awareness;
to comfort and guide.
To face rare disease
locked arms-
side-by-side.
A journey set forth,
uneven terrain.
Traveling on suffering,
forged purpose in pain.
A chorus of voices
uniting in song-
ring out together,
but battles go on…
Our trials and triumphs,
resilience and strength,
brought us all here
on rare disease day!
So join us in chorus,
wear stripes to support-
our healing begins,
it starts in our heart.
For stripes shine like stars,
by stripes we are healed,
Restoral by scars
Our voices they hear.
Remember Rare Disease Day is February 29th, 2024!
We share in the suffering and the glory!
Stay strong and God bless you all in a mighty, mighty way!
#ChronicIllness #ChronicPain #IrritableBowelSyndromeIBS #ComplexRegionalPainSyndrome #AxonalNeuronalNeuropathies #InsideTheMighty #MightyPoets #MightyTogether #christiansonmighty
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Rare disease indiscriminately strikes, and understanding life’s plan through the complexities can be overwhelmingly challenging; but also an opportunity beyond the suffering.
Although medical technology has advanced and new treatments have been discovered; rare disease often times have no cure, are misunderstood, difficult to diagnose, and be provided effective treatment for.
Many rare diseases involve multiple organ system dysfunction infiltrating the genetic blue print, which wreaks havoc throughout the entire body.
It’s a long, arduous diagnostic journey for not only the rare disease patient, but also for the dedicated medical professionals, friends/family standing by them, and supporting the rare disease sufferer through the great unknown of rare chronic illness.
Thank you for prayers, caring & sharing!
I wear my stripes in support of Rare Disease!
Wear Your Stripes in Support of Rare Disease Day February 29th, 2024!
Thank you Jesus!
…and by His stripes we are healed!
🙏💪🏻✨❤️🩹
God Bless!
#RareDisease #MitochondrialDisease #SjogrensSyndrome #sjogrens #IrritableBowelSyndromeIBS #RheumatoidArthritis #ComplexRegionalPainSyndrome #ChronicIllness #ChronicPain #IdiopathicIntracranialHypertension #PeripheralNeuropathy
10 reactions 
#RareDisease #MitochondrialDisease #sjogrens #IrritableBowelSyndromeIBS #ChronicIllness #ChronicFatigueSyndrome #ChronicPain #HashimotosThyroiditis #HypothyroidismUnderactiveThyroidDisease #Gastroparesis #IdiopathicIntracranialHypertension #MultipleSclerosis
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