NeurogenicBladder

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    State of Unbelief… #FND ? #nowayihavethat !

    Hi! 😃💜💜
    I’m new to the group!

    Hope all of you are having a good day today! 😊💟

    As the title states… I did NOT believe it when I received the #FNDdiagnosis !

    I’m still having trouble grasping my neuros assessment of all my conditions & symptoms!….

    Since I’ve been dealing with ALL my NEURO health issues since 2013 & she just met me last year!

    — Can’t stand narrow minded tunnel vision non proactive & non helpful doctors! — #timetochangeneuros
    #sotiredofthiscrap

    Anybody else try to “forget” all their diagnosis ON THE DAILY??!!
    — because it’s just too overwhelming & creates anxiety?

    Anyway…
    I try most days to push myself beyond the EXTREME pain & numerous symptoms & focus on ANYTHING ELSE to take my mind off my daily struggles & I’m sure you ALL do some of the same things!

    — That’s it! lol 😜😎🥰

    I hope each of you find JOY in your lives DAILY!😁😘

    #timetorest
    #HEDS #POTS #IIH #RheumatoidArthritis #DevicsDisease #wheelchairbound4x #OpticNeuritis #DoubleVision
    #triplevision
    #PCOS
    #temporalpallorandscotomas
    #GERD
    #gastreoparesisSUCKS !! #PituitaryTumor #Diabetes #HBP #Asthma #COPD
    #Anxiety #Depression #NeurogenicBladder #chronicUTIS #KidneyStones #toomanypillstotake !
    #toomanydiagnosis !
    #FOCUSONLIVINGLIFE !

    GOD BLESS AND HELP US ALL!!💜❤️💗😇

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    Failed Interstim advanced trial #InterstitialCystitis #NeurogenicBladder

    I have officially scheduled the removal of the leads for my Interstim trial. My advice is thus: if your symptoms are not typically felt in your genital region but instead are more internal: you will probably fail it too.

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    Interesting advanced trial in progress #InterstitialCystitis #NeurogenicBladder

    I am in day four of the Interstim advanced trial and I’m not getting any relief so far. I only have the intensity set to 1 but I’ve been trying to set it .1 higher per day hoping that if I get up high enough I’ll get relief. What have you guys done to make Interstim work for you? Are there questions I should be asking the Medtronic representative?

    3 comments
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    I received my intestinal/intestinoparesis diagnosis yesterday and I’d love to learn more about it: websites, books, blogs, tips, tricks? I’ll take it all. #Gastroparesis #IrritableBowelSyndromeIBS #GastroesophagealRefluxDisease #PosturalOrthostaticTachycardiaSyndrome #NeurogenicBladder #InterstitialCystitis #CeliacDisease

    This diagnosis came as a result of a 24 hour gastric emptying scan performed at the Mayo Clinic. I’ve tried looking it up on the internet but have found very little. Does it go by a different name? Do you have a site you rely on for information? Does anybody know of a blog on this topic? And most importantly, are there any books out there that include information about this condition?

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