NeurogenicBladder

I have officially scheduled the removal of the leads for my Interstim trial. My advice is thus: if your symptoms are not typically felt in your genital region but instead are more internal: you will probably fail it too.

I am in day four of the Interstim advanced trial and I’m not getting any relief so far. I only have the intensity set to 1 but I’ve been trying to set it .1 higher per day hoping that if I get up high enough I’ll get relief. What have you guys done to make Interstim work for you? Are there questions I should be asking the Medtronic representative?

This diagnosis came as a result of a 24 hour gastric emptying scan performed at the Mayo Clinic. I’ve tried looking it up on the internet but have found very little. Does it go by a different name? Do you have a site you rely on for information? Does anybody know of a blog on this topic? And most importantly, are there any books out there that include information about this condition?