neuropathy

I'm Matt, and I just started the SFN Foundation to help people with small fiber neuropathy. This condition causes real pain and makes daily life hard, but many patients can't find good information or connect with others who understand.

I know how hard it is to feel alone when dealing with a rare condition as I have small fiber neuropathy. That's why we created our foundation to give patients and families the clear, helpful resources they need and to support research that could lead to better treatments.

Please help spread the word if you feel inclined and feel free to check out the website here: sfn-foundation.org

#ChronicPain #AutonomicDysfunction #Neuropathy #SmallFiberNeuropathy #Dysautonomia #MultipleSclerosis #POTS #Lupus #SjogrensSyndrome #MentalHealth #MastCellActivationDisorder

There can be a range of reasons why we may feel physical discomfort, pain, and fatigue while spending our days in bed—from health symptoms and muscle tension to stiffness, even stress. Finding relief and some level of comfort can be a constant challenge, but it’s also essential for maintaining a sense of balance.

For some, it may involve using supportive pillows or cushions to adjust their body alignment and alleviate pressure points. Others may find relief through gentle stretches or movement, when possible, or by using heating pads or cold compresses to soothe sore muscles. Breathing exercises or practicing regular hobbies can also help reduce stress and ease the mind, which in turn can ease physical discomfort.

Sometimes, it’s about creating a comfortable environment—adjusting room temperature or dimming lights to promote relaxation. And for many, reaching out to loved ones or healthcare providers for advice or support can provide both physical and emotional comfort.

What helps you manage physical discomfort, pain, or fatigue while you’re in bed?

#ChronicIllness #Disability #ChronicPain #Pain #BackPain #Spoonie #ChronicFatigue #Fibromyalgia #Neuropathy #MyalgicEncephalomyelitis
#Lupus #Cancers #Gastroparesis #MultipleSclerosis #RheumatoidArthritis #InflammatoryBowelDiseaseIBD #ChronicEpsteinBarrVirus #MentalHealth #ChronicDepression #Anxiety #PanicAttacks #InvisibleIllness
#alwaysinbed

I have fallen twice in three days, and the third isn't over yet. Fell in my trailer Wednesday night. Yesterday my balance was horrible and I was on a bus trip. Had to load my own luggage, turned around, caught the curb and hit side of my head on the bus. I should have taken the offer of an ambulance because I now believe I had a concussion. I also did damage to my ankle. Has anyone had this hard of a time with nalance? N #Neuropathy #accidentalfall #weaknessin legs and feet "#recap your week

Let's think about accessibility and comfort today.

Spending a lot of time in bed makes your bedroom or other living space a very important place. Making sure those places are comfortable, accessible, and tailored to your specific needs can be a big help in managing symptoms or getting around more effortlessly.

What's one thing you can add to your living space to improve your quality of life? What's something you already have that you would recommend to someone else?

Let us know in the comments below! ⬇️

#ChronicIllness #Disability #ChronicPain #Pain #BackPain #Spoonie #Fibromyalgia #Neuropathy #MyalgicEncephalomyelitis
#Lupus #Cancer #Gastroparesis #MultipleSclerosis #RheumatoidArthritis #InflammatoryBowelDiseaseIBD #ChronicEpsteinBarrVirus #MentalHealth #ChronicDepression #Anxiety #PanicAttacks #InvisibleIllness
#alwaysinbed

Yesterday was a bit cold but beautiful sunshine! Nice day for a walk on the beach. No one in sight, the calm beauty, serenity, the warmth of the sun on my face......what a great way to rejuvenate the mind and soul❤️ #Fibromyalgia , #ChronicPain , #ChronicFatigue , #Anxiety , #Seizures , #Depression , #Migraines , #Neuropathy , #DegenerativeDiscDisease .