Rare Disease

Create a new post for topic
Join the Conversation on
Rare Disease
236K people
0 stories
11.3K posts
About Rare Disease Show topic details
Explore Our Newsletters
What's New in Rare Disease
All
Stories
Posts
Videos
Latest
Trending
Post
See full photo

The truth about depression no one wants to say

When you're deep in depression, it feels like you're waiting.
Waiting for something to change.
For someone to show up.
For a reason to get out of bed.

And it’s understandable. That pain is real.

But here's the truth.

No one is coming to save you.

And before that breaks your heart, hear the rest:
No one needs to.

You don’t need a hero. You need belief.
Not in everything. Not all at once.
Just in yourself. Enough to begin.

That belief starts small.

Getting out of bed.
Drinking water.
Answering that message.
Doing the one thing you’ve been avoiding.

Because the less you believe in yourself, the more that belief fades.
But the moment you try, you begin to prove to yourself that you can.
And the more you try, the more you become.

You are the solution you’ve been waiting for.

What’s one small act of belief you can show yourself today?

Also, if you're going through a tough time right now, I want you to know that I post daily mental health videos about how I recovered from depression and suicide back when I was a teen. So if you or anyone you know is struggling with these issues and wants help, click on one of the links below or write me if you have any questions:

www.instagram.com/thomas_of_copenhagen

www.tiktok.com/@thomas_of_copenhagen

#MentalHealth #MentalHealth #Depression #Anxiety #BipolarDisorder #BorderlinePersonalityDisorder #Addiction #dissociativedisorders #ObsessiveCompulsiveDisorder #ADHD #Fibromyalgia #EhlersDanlosSyndrome #PTSD #Cancer #RareDisease #Disability #Autism #Diabetes #EatingDisorders #ChronicIllness #ChronicPain #RheumatoidArthritis #Suicide #MightyTogether

Most common user reactions 17 reactions 6 comments
Post
See full photo

Mid-Month Check-In: How would you describe your September so far?

Mighties, how has your September been treating you so far? What words, images, or metaphors capture what this month has felt like for you?

💡Inspiration tip: Here are some creative ways you could describe your month. Feel free to pick one and share it in the comments below:

a. A food dish 🍲

b. A weather forecast ⛅

c. A song 🎵

d. A color 🎨

e. A movie title 🎬

f. A type of plant or flower 🌱🌻

g. A season of the year 🍂☀️❄️🌸

h. A mode of transportation 🚲🚂✈️

i. A book genre 📚

j. An animal 🦉🦋🐢

How would you sum up September so far?

#MightyMinute #CheckInWithMe #ChronicPain #ChronicIllness #Disability #RareDisease #MentalHealth #Anxiety #Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #ObsessiveCompulsiveDisorder #EatingDisorders #Depression #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

Most common user reactionsMost common user reactions 20 reactions 12 comments
Post
See full photo

How can you fuel your sense of adventure without ever leaving home?

When you live with a mental and/or physical health condition, it can be tough to seek adventure outside of your home… but that doesn’t have to stop you from fulfilling your sense of adventure entirely. 💭🤔

Mighty staffer @sparklywartanks feeds her sense of adventure by having "family days" and planning out creative activities and games to play with them, all from the comfort of home.

What are some ways you can feed your sense of adventure without ever stepping foot outside your front door?

#52SmallThings #CheckInWithMe #Selfcare #MentalHealth #Disability #ChronicIllness #ChronicPain #RareDisease #Anxiety #Depression
#Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

Most common user reactions 6 reactions 3 comments
Post
See full photo

Your thoughts don’t define you.

Your thoughts don’t define you. Neither do your emotions or your past experiences.

They come and go, and sometimes they’re heavy. But underneath them all, there’s you. The part of you that notices, chooses, and keeps going.

When you start seeing your thoughts as just thoughts, they lose their power. They’re not facts. They’re not destiny. They’re just passing through.

You are not the noise in your head. You are the one strong enough to witness it and keep moving forward.

What’s one thought you’ve learned to stop believing?

Also, if you're going through a tough time right now, I want you to know that I post daily mental health videos about how I recovered from depression and suicide back when I was a teen. So if you or anyone you know is struggling with these issues and wants help, click on one of the links below or write me if you have any questions:

www.instagram.com/thomas_of_copenhagen

www.tiktok.com/@thomas_of_copenhagen

#MentalHealth #MentalHealth #Depression #Anxiety #BipolarDisorder #BorderlinePersonalityDisorder #Addiction #dissociativedisorders #ObsessiveCompulsiveDisorder #ADHD #Fibromyalgia #EhlersDanlosSyndrome #PTSD #Cancer #RareDisease #Disability #Autism #Diabetes #EatingDisorders #ChronicIllness #ChronicPain #RheumatoidArthritis #Suicide #MightyTogether

Most common user reactions 47 reactions 19 comments
Post
See full photo

Tell us about the best adventure you’ve ever been on.

Happy Monday, Mighties!

This week we'll be delving into the world of adventure! 🧭

Let's start by sharing what you feel is the best adventure you've ever been on. This adventure doesn't only have to be traveling or going on vacation, it can also be your career, being a parent, getting a degree, moving, or even embarking on your healing or health journey.

Mighty staffer @sparklywartanks shared that the best adventure she's ever been on is learning how to love herself better.

Share yours with us in the comments below! ⬇️

#52SmallThings #CheckInWithMe #Selfcare #MentalHealth #Disability #ChronicIllness #ChronicPain #RareDisease #Anxiety #Depression
#Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

Most common user reactionsMost common user reactions 33 reactions 14 comments
Post

Don't remember what my body looked like

I was never one for vanity trying to look my best for the world around me. I do wear clean clothes and shower daily hygiene being the goal. Now my hands and feet are contorting as my muscle disease attacks the intrinsic muscles as well. I don't like the way my foot is shrinking and my toes point in different directions and I'm sad because I don't remember what it used to look like. Deformity that effects your daily tasks and activity is disheartening I don't even remember what my hands look like.##ChronicIllness #ChronicPain #OCD #MDD #DegenerativeDiscDisease #Anxiety #PeripheralNeuropathy #Disabled #RareDisease

Most common user reactionsMost common user reactions 7 reactions 7 comments