Rare Disease

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When Your Child With a Rare Disease Doesn’t Feel Brave

Have you ever done something that you knew was the right thing to do, but you were scared to do it? Or maybe you did something that looked hard, but you decided to try it. That is courage in action and you probably felt very good about what you did. And you should! Courage shows [...]

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Glenda McCoy

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Rare Disease

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How My Daughter's Rare Disease Opened My Eyes

When my daughter was first (mis)diagnosed with a rare disease in 2013, not only was I utterly devastated by the news that she had a progressive disease, but I was also shocked beyond reason by the realization that such a disease even existed in the first place. That moment was reality-altering. In fact, I remember very little from that day, except [...]

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MightyTogether 4h

I'm new here!

Hi, my name is Ann (bewhoyouwannabe). I'm here because I want to find a community who can understand the mind-body struggle and still enjoy life.
#MightyTogether #CPTSD #Anxiety #AutoimmuneDisease #RareDisease

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Tazman1967

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@tazman

MentalHealth 1d

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Bonus Flowers

It's the end of the season of course but these flowers don't know. We decided to hold off on more plants but it's funny how unintentional beauty can show up in a crack in the cement makes us wonder how we can find beauty in almost all things. This is the kind of natural distraction that gives me joy. We should have a nature picture week on this forum would be fun. Anyways just thought I'd share.#MentalHealth #MuscularDystrophy #DegenerativeDiscDisease #Fibromyalgia #RareDisease #etc

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Take a Mighty Minute

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@takeamightyminute

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Share about something you love using emojis.

Hi Mighties! 🦋

Let's share about people, places, things, and ideas that we love using emojis today.

Here's Mighty staffer @sparklywartanks emojis:
🗣️📖: Sharing her recovery journey
🫖👩‍🏫: Learning about new herbs and teas
🏡💌: Spending time at home with her family

#MightyMinute #CheckInWithMe #ChronicPain #ChronicIllness #Disability #RareDisease #MentalHealth #Anxiety #Autism #Parenting #PTSD #ADHD #BorderlinePersonalityDisorder #BipolarDisorder #ObsessiveCompulsiveDisorder #EatingDisorders #Depression #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

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52 Small Things Accountability Buddy

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@52smallthingsaccountabilitybuddy

52 Small Things 1d

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I’d like to improve my communication skills by…

Friday has come at last, Mighties! Great job with this week's self-care challenge .👏

Our final activity will be to reflect and share about how we can improve our own communication skills.

Mighty staffer @sparklywartanks would like to improve her communication skills by being more confident in her own voice and speaking up more.

Share how you would like to improve in the comments below 👇

#52SmallThings #CheckInWithMe #Selfcare #MentalHealth #Disability #ChronicIllness #ChronicPain #RareDisease #Anxiety #Depression
#Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

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Thomas Ousterhout PhD

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@thomas_of_copenhagen

Conquer Your Mind 2d

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Depression can make life feel like something that starts later. Later, when you feel stronger. Later, when you’re more healed. Later, when you’ve caught up, figured things out, or become the version of yourself you think you’re supposed to be. But if you keep postponing your life until you feel better, you can end up missing the small moments that are part of healing too.

Recovery is not only about getting to a better future. It is also about learning how to be present for the life you still have right now. You do not need to wait until everything feels okay before you let yourself rest, connect, notice something beautiful, or care for yourself. Your life is still here, even while you are healing.

What helps you come back to the present when your mind keeps telling you life begins later?

Also, if you're going through a tough time right now, I want you to know that I post mental health videos about how to deal with painful thoughts. So if you or anyone you know is struggling and wants help, click on one of the links below or write me if you have any questions you want me to answer:

www.instagram.com/thomas_of_copenhagen

www.tiktok.com/@thomas_of_copenhagen

~ Thanks to all. Thanks for all. ~

#MentalHealth #MentalHealth #Depression #Anxiety #BipolarDisorder #BorderlinePersonalityDisorder #Addiction #dissociativedisorders #ObsessiveCompulsiveDisorder #ADHD #Fibromyalgia #EhlersDanlosSyndrome #PTSD #Cancer #RareDisease #Disability #Autism #Diabetes #EatingDisorders #ChronicIllness #ChronicPain #RheumatoidArthritis #Suicide #MightyTogether

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52 Small Things Accountability Buddy

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@52smallthingsaccountabilitybuddy

52 Small Things 2d

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What are some situations where you struggle to communicate effectively?

No matter how long you've known someone or been in a situation or circumstance, sometimes it's still super challenging to communicate effectively. No judgment here, we totally get it. 🙋

@sparklywartanks says she struggles to communicate effectively when she feels uncomfortable, anxious, or around someone she hasn't spoken to in a long time.

What about you? In what situations is it challenging for you to communicate effectively?

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Thomas Ousterhout PhD

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@thomas_of_copenhagen

Conquer Your Mind 3d

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When you’re struggling with depression, other people’s opinions can feel much louder than they should. You may start questioning whether you’re healing fast enough, whether you’re making the right choices, or whether you need to explain yourself so everyone else feels comfortable with your recovery.

But not every opinion deserves equal weight. You can listen to people you trust without carrying every judgment, expectation, or misunderstanding with you. Protecting your peace does not mean ignoring everyone. It means learning which voices help you heal and which ones only make you doubt yourself.

Part of recovery is learning to trust yourself again.

What is one opinion you’re trying to stop carrying with you?

www.instagram.com/thomas_of_copenhagen

www.tiktok.com/@thomas_of_copenhagen

~ Thanks to all. Thanks for all. ~

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52 Small Things Accountability Buddy

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@52smallthingsaccountabilitybuddy

52 Small Things 3d

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Who in your life do you communicate most effectively with?

Whether it’s with strangers, ourselves, or with people we know, we are constantly communicating with those around us. And, like many things in life, practice, familiarity, trust, and other factors can influence how accustomed and comfortable we are with that communication (some more than others).

Who do you communicate most effectively with in your life?

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Rare Disease

Related Conditions?

When Your Child With a Rare Disease Doesn’t Feel Brave

How My Daughter's Rare Disease Opened My Eyes

I'm new here!

Bonus Flowers

Share about something you love using emojis.

I’d like to improve my communication skills by…

What are some situations where you struggle to communicate effectively?

Who in your life do you communicate most effectively with?

Feed for Rare Disease