Rare Disease

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When Your Child With a Rare Disease Doesn’t Feel Brave

Have you ever done something that you knew was the right thing to do, but you were scared to do it? Or maybe you did something that looked hard, but you decided to try it. That is courage in action and you probably felt very good about what you did. And you should! Courage shows [...]

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Glenda McCoy

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Rare Disease

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How My Daughter's Rare Disease Opened My Eyes

When my daughter was first (mis)diagnosed with a rare disease in 2013, not only was I utterly devastated by the news that she had a progressive disease, but I was also shocked beyond reason by the realization that such a disease even existed in the first place. That moment was reality-altering. In fact, I remember very little from that day, except [...]

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OCD 20h

I'm so overwhelmed

You can talk yourself down from most situations because you know there might be an end to it. With intractable pain associated with muscular dystrophy there is no end except for death. I know I have posted on this before but my defense against this horrible affliction is weakening and with no cure or treatment I find myself crying in the morning from excruciating pain. Real men don't cry is what I was brought up on so sucking it up and moving forward is the only path . I have my heathy distractions music, nature spending time with my dog and of course light gardening this year we even have a lemon tree. Sometimes in life we just need to express ourselves to people who understand like the Mighty 😀#OCD #Anxiety #MuscularDystrophy #DegenerativeDiscDisease #PeripheralNeuropathy #MDD #RareDisease #Disability #ChronicPain

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Take a Mighty Minute

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@takeamightyminute

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I’m planning to treat myself to _ and trick myself into _. 🍬

Happy Friday, Halloween (for the spooky fans), and end of the month, Mighty friends! 🎃

Inspired by today’s holiday, we’re brewing up some weekend plans with a twist. Here’s how it works — fill in the blanks for today’s prompt by sharing:

🍬 One Treat: Something fun, adventurous, or exciting you’re planning, a self-care moment you’ll indulge in, or even a snack or comfort you’re looking forward to enjoying.

🔮 One Trick: Something new you’d like to try that benefits your health or well-being, a perspective shift to help you through a challenge, or a postponed task you’re ready to tackle.

Drop your tricks and treats below! 👇

#MightyMinute #CheckInWithMe #ChronicPain #ChronicIllness #Disability #RareDisease #MentalHealth #Anxiety #Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #ObsessiveCompulsiveDisorder #EatingDisorders #Depression #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

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52 Small Things Accountability Buddy

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@52smallthingsaccountabilitybuddy

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Share a positive experience of when you asked for help and received it.

Sometimes we just need to hear some happy stories, so let’s share a few of the positive experiences we’ve had when it comes to reaching out for help and actually receiving it.

Following an unpleasant experience in college, Mighty staffer @sparklywartanks started therapy in 2019 after not seeking help for her mental health for over three years. She was really happy she made the step to ask for help because she then found a really kind and empathetic therapist in return!

Note: It’s totally OK if you feel you haven’t received the help you deserve and needed in the past. We’re here with you and extend our support in any capacity we can. 🌟

#52SmallThings #CheckInWithMe #Selfcare #MentalHealth #Disability #ChronicIllness #ChronicPain #RareDisease #Anxiety #Depression
#Autism #Parenting #PTSD #BorderlinePersonalityDisorder #BipolarDisorder #Fibromyalgia #Lupus #MultipleSclerosis #Migraine #Spoonie

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Thomas Ousterhout PhD

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@thomas_of_copenhagen

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Your past may have shaped you, but it doesn’t have the right to limit you.

When you’ve lived through pain, your mind can get stuck replaying old moments.

Old mistakes.

Old losses.

Old identities.

Depression often pulls you backward, convincing you that the past defines you — that what happened then is who you still are now.

But the past only has power when we keep feeding it.

When we carry yesterday’s wounds into today, we block ourselves from healing, from opportunity, from becoming someone new.

Let the past be a chapter, not a prison.

You deserve a life that isn’t decided by old pain, old stories, or old versions of you.

Today isn’t asking you to rewrite everything.

It’s simply asking you to show up.

To breathe.

To take one step forward — no matter how small.

Your future isn’t built from what happened yesterday.

It starts with what you choose right now.

What small choice will you make today that your future self will thank you for?

Also, if you're going through a tough time right now, I want you to know that I post daily mental health videos about how to deal with painful thoughts. So if you or anyone you know is struggling and wants help, click on one of the links below or write me if you have any questions you want me to answer

www.instagram.com/thomas_of_copenhagen

www.tiktok.com/@thomas_of_copenhagen

~ Thanks to all. Thanks for all. ~

#MentalHealth #MentalHealth #Depression #Anxiety #BipolarDisorder #BorderlinePersonalityDisorder #Addiction #dissociativedisorders #ObsessiveCompulsiveDisorder #ADHD #Fibromyalgia #EhlersDanlosSyndrome #PTSD #Cancer #RareDisease #Disability #Autism #Diabetes #EatingDisorders #ChronicIllness #ChronicPain #RheumatoidArthritis #Suicide #MightyTogether

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52 Small Things Accountability Buddy

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@52smallthingsaccountabilitybuddy

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TRUE or FALSE: It’s easier for me to help others than to ask others for help.

In the poll we asked earlier in the week, 58% of the group said that you ask for help sometimes but would rather do things on your own and 25% said that you only ask for help when it's an emergency, so we’re curious what your experience is when helping others. Do you find it easier? How come?

P.S. We’ve heard so many community members share that they enjoy helping out those around them, especially those on The Mighty who are struggling. We applaud and commend all who have made The Mighty what it is today.🏅

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Take a Mighty Minute

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@takeamightyminute

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What’s something you’re appreciative or grateful for experiencing this year?

Whether it’s a valuable lesson learned, a boundary firmly in place, the end of a cycle, time spent with loved ones, an outdoor activity, a resource or diagnosis that’s been life-changing, progress where you once felt stuck, a completed project (or one still in progress), or simply making it to this very moment — what’s something you’re grateful for experiencing this year?

♥️ It’s been a long one, Mighty fam, but as we near November, we’re especially grateful for you and this community.

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52 Small Things Accountability Buddy

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@52smallthingsaccountabilitybuddy

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What advice would you give to someone who finds it challenging to reach out for support when they need it?

For some, reaching out for help and support can be really challenging and even exhausting sometimes, especially if they're used to relying on only themselves. We totally get that!

What advice would you give to someone who experiences that challenge, but wants to seek support from others?

Mighty staffer @sparklywartanks shared that it took her years to ask for help and found it really challenging to open up to others. Although it took her awhile, practicing smaller gestures — like asking her mom for water when anxious or to go on a walk with her — allowed Nina to gather up the courage that made asking for support a more regular habit.

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Take a Mighty Minute

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@takeamightyminute

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Your health condition or disability just dropped a mixtape — what’s it called? 💽🎙️

Mighties, we’re professionals when it comes to our own lived experiences, right? Now imagine we’re all dropping a series of Mighty mixtapes — what would yours be titled?

Mighty staffer @sparklywartanks mixtape is called “The Weight of the World at Home on My Shoulders.”

What’s yours? 🎧

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Rare Disease

Related Conditions?

When Your Child With a Rare Disease Doesn’t Feel Brave

How My Daughter's Rare Disease Opened My Eyes

I'm so overwhelmed

I’m planning to treat myself to _______ and trick myself into _______. 🍬

Share a positive experience of when you asked for help and received it.

Your past may have shaped you, but it doesn’t have the right to limit you.

TRUE or FALSE: It’s easier for me to help others than to ask others for help.

What’s something you’re appreciative or grateful for experiencing this year?

What advice would you give to someone who finds it challenging to reach out for support when they need it?

Your health condition or disability just dropped a mixtape — what’s it called? 💽🎙️

Feed for Rare Disease

I’m planning to treat myself to _ and trick myself into _. 🍬