Hi, my name is eLSeth. I've been progressively getting diagnosed with different conditions, almost seems like I have my Pokemons of conditions, and I'm trying to find ways to better take care of myself to improve my quality of life.
#MightyTogether #ADHD #AutismSpectrumDisorder #Scoliosis #ehlers-DanlosSyndrome
Hi, my name is laughingguts. I am a Michigander by birth, PNW at heart, global citizen, and Christian.
1 reaction Hi, my name is IonaOldroyd, I have diagnosed Autism, ADHD, ARFID (Avoident restrictive food intake disorder), Anxiety, and Scoliosis, I haven't been formally diagnosed with depression or OCD yet, and have an undiagnosed chronic illness (I'm being investigated for Ehlers-danlos syndrome), And I'm looking to learn how to live as normal and a fulfilling life as i can with all these things
#MightyTogether #Anxiety #Depression #AutismSpectrumDisorder #ADHD #EatingDisorder #OCD
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Recently , I discovered that my scoliosis symptoms that I've been dealing with for a whole year isn't even existing physically, but it's psychological.. honestly I felt like I've been hit in the gut when I self discovered such a thing , knowing that the severe pain in my jaw , shoulders, neck and back is chronic stress due to my childhood trauma and years of tension , pain also neglect hit me hard
I'm a girl who faced SA for straight 8 years ; since I was 8 this started with a complete stranger who was actually a neighbour.. parents divorce didn't help either while having such a big tensioned house environment , I decided from the bottom of my heart recently to start listening to my body and soul , taking the first baby steps into healing but I know that my trauma wasn't easy and it still affects me with daily life basic communications , and I know that healing is also a pattern full of ups and downs that need support and understanding.. I hope I could build a community, a safe one to guide me we could help and support eachother ❤️ spreading love and kindness 🫶🏻
#PTSD #Anxiety #PostTraumaticStressDisorder #ChildhoodDisorders #AnorexiaNervosa #MentalHealth #CheerMeOn #Depression #Scoliosis #CheckInWithMe
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I’m 47 and have been living with chronic pain and profound fatigue for years now. I rely on a wheelchair for things like shopping or walking the dog. I can’t stand for long or walk very far. Everyday things—things I used to take for granted—are now major obstacles.
Despite countless tests, appointments, and even private consultations, I still don’t have a clear diagnosis. Most recently, a private doctor suggested possible hEDS (hypermobile Ehlers-Danlos Syndrome) or POTS (Postural Orthostatic Tachycardia Syndrome), but also said that “even if it is one of those, there’s not much we can do.” He encouraged me to just accept things.
But I can’t accept the idea that I’m just stuck like this without even a name for what I’m going through.
I’ve heard “medically unexplained symptoms” more times than I can count—and every time, no matter how gently it’s said, it feels like I’m being dismissed. Like I’m too complicated, too messy, too inconvenient. Like my pain is a mystery no one wants to solve.
And the thing is, I do have documented conditions: a hypermobile coccyx, Bertolotti’s syndrome, stage 4 endometriosis, scoliosis, and spinal nerve compression that required surgery. These aren’t theoretical. They’re real. They’re in my records and in my body. I understand how central sensitization and the nervous system can amplify pain—but I also know what’s happening to me is not just in my head.
I work, and I fight to keep working, because it gives me structure and identity. But the effort it takes is immense. I use pain relief sparingly so I can’t be told I’m psychologically dependent on it—if anything, I avoid it unless absolutely necessary. Yet when pain relief is discouraged without alternatives, it feels like I’m being asked to endure without tools or support.
What I want—what so many of us want—is not a cure. It’s a name. Something that says: Yes, you are seen. You are believed. What’s happening to you is real. A name opens doors. A name brings access. A name brings peace.
If you’ve ever felt dismissed or invisible because your symptoms didn’t come with a neat label, I want you to know—you’re not alone. I see you. And I’d love to hear from others who are walking this same uncertain, exhausting road.
Thank you for reading.
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Hi, my name is bixby7352. I'm here because
#MightyTogether #Anxiety #Depression #BipolarDisorder #BorderlinePersonalityDisorder #Migraine #AutismSpectrumDisorder #ADHD #PTSD #Grief #ComplexRegionalPainSyndrome #DiabetesType2 #TraumaticBrainInjury #ChronicPain #DegenerativeDiscDisease #Scoliosis #Insomnia
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° " So Thing's Have Changed At Work I Now Will Be Working 12 Hour Shift's.. Last Night Was My 1st Try... Came In At 2pm And Left At 2A.M. The Day Was Busy Later At Night Peaceful. But My Sleep Is Messed Up Now.. But Everyone Keep's Telling Me To Think About The $$$... And I'm Like Thing More About My Body Handling This... I Have Cerebral Palsy & Scoliosis,Chronic Pain.... So We Will See These People Just Would Rather Overwork Me More Than Give Me A Proper Raise. They Think That I Would Stop Coming Into To Work If I Have Gotten A Raise... Sigh... I Will Keep U All Updated On This New Adventure... Until Then I Love You My Mighty Family...." ° Sincerely, ● Skaoi Kvitravn ● #Workaholic
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Hi! I am diagnosed with ME/CFS and my connective tissue kinda sucks (I could probably get diagnosed with HSD if not heds, but I haven’t pursued that atp)
I was lying flat on the floor the other day (as one does) and noticed my entire ribcage is crooked, as in the left side sticks out noticeably more. So then I started researching and it said it could be an indicator of scoliosis. So I did some wacky maneuvering to try to get my spine on camera to look at, and it looks a bit curved to the left in the upper part of my back in the picture. But maybe that’s the lighting?
I plan on probably making a doctors appointment regardless, but would love to hear what other people think who know more about this than I would lol
#MyalgicEncephalomyelitis
#Scoliosis ?
#ChronicFatigue
#Dysautonomia
#HypermobilitySyndrome
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Hi, my name is Dannieb. I've been diagnosed with anxiety n clinical depression aside from that I have scoliosis
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I'm new here, I have dysautonomia and suspect I have POTS, and I also have scoliosis and chronic pain. I'm struggling with my health right now and just trying to get through high school so I can go to university. I love baking, DnD, and learning (I'm very excited about English and History) and I'm looking for some community online as there aren't a lot of disabled teens in my area. Nice to find a place to give and get advice!
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