Scoliosis

I’m not sure what my next move is. I’ve had chronic pain since I was a kid, the worst of which being spinal (back, neck, shoulder, pelvis). The last year and some change my wrists and hands. Sometimes other joints or body parts. I’ve always been “double jointed” in several places and flexible. I have a spinal curve that’s not technically scoliosis, but it abnormal. No doctor has ever given me a definitive answer about why everything hurts. But physical therapists have. Massage therapists have. Acupuncturists have. And the consensus among the ‘whole body’ type medical professionals is that I’m hyper mobile. So I get a referral to a rheumatologist - he asks a few questions, does a handful of mobility tests (not the full Beighton scale) and writes in my chart note “not true hyper mobility” and tells me it’s a mechanical issue with my posture. I was diagnosed with carpal tunnel syndrome (with no physical testing) about a year ago. Just yesterday, a PT specialized in hand and arm conditions did carpal tunnel tests and hyper mobile tests and eluded to the fact that carpal tunnel is sometimes just the easiest dx for doctors to give. The tests she did for carpal tunnel were negative. The tests she did to see if I was hypemrobile were positive. She is about the fifth PT I’ve had in the last decade tell me I’m be hyper mobile. I believe 5 PTs over the MDs that didn’t even see me move my body. So now the question is… what do I do about it? Tell my PCP I want a diagnosis? Switch to yet another PCP? See a different rheumatologist? I’ve had pain flares throughout my life including several that made me quit my degree job. So what do I have to do to get the diagnosis that gets me yeh treatment that gets me my life back. #Hypermobility #Misdiagnosis #PhysicalTherapy #ChronicPain

Hi, my name is BrandyWine1976. I'm here because

#MightyTogether #Anxiety #Dermatomyositis #pelvic obliquity #Scoliosis

Hi, my name is Cheryl and I'm here, because I would like to learn about my disorders, illnesses. 🤓Also I'm interested to see/hear/read how others live with them and maybe pick-up advice, recommandations, tips and tricks. 🙂

#MightyTogether #Anxiety #Depression #Fibromyalgia #PTSD #EatingDisorder #OCD #Grief #AnkylosingSpondylitis #IrritableBowelSyndromeIBS #Arthritis #SpinalStenosis #Scoliosis #PanicAttack #PanicDisorder

Hi, my name is Jess.

#MightyTogether #Anxiety #BipolarDisorder #Migraine #Asthma #Scoliosis #pots

Maturing (at least somewhat) as a mother of children who turned out to have some disabilities, I grew along with my children, and like almost all parents, I turned to “the experts” when I needed help with day to day life with my kids. Who doesn’t ask the experts? I found out in 2002 that our oldest son had Asperger’s syndrome, which is what would now be referred to as Level 1 autism spectrum disorder. I realized fairly quickly that I too had Asperger’s that had been missed, since in the 1970s and 80s nobody was looking for female children with autism because they were supposed to not exist.

As time passed, all my children were diagnosed with learning disabilities, and more were diagnosed with autism, in addition to mental health issues. These diagnoses led to participation in therapy, medication checks, social skills groups, occupational therapy, cranialsacral therapy and chiropractic care. Later, trials of ADD medication. The younger two also had multiple X-rays for supposed scoliosis. In the midst of these activities, we did actually have a life. I’m so glad we were able to homeschool!

In short, there were many challenges my children experienced that I did my best to help them with. Over time, with three children, I believe I am counting accurately when I state that in total they went through ten psychological and educational evaluations. Each of these found something that was causing problems.

Evaluations usually include the tests that were used, what the results mean, and the recommendations the clinician has for your child. Most of the time in the report, there is much information to take in. Recommendations often include more than one type of therapy, be it physical, speech, mental or occupational, socializing recommendations, a referral to a child psychiatrist for medication, and probably other guidance that you, as the parent, are supposed to follow. After all, you have just asked the expert! It would be a waste of time and money to not put the recommendations into action, right?

The message most parents get is that they should probably—just—panic.

Hi, my name is nanayaabizz. I'm here because I was looking for support groups and people who experience the same disabilites that I experience. just wanted new friends and some support.

#MightyTogether #Scoliosis #Anxiety #RheumatoidArthritis #BackPain

Feeling defeated again. As usual my health has the final say always winning. I have to take another semester off from school. My dad has to help me get dressed, in the bathroom, and every time I get up. I’m also using a walker and 38yrs old. My back is way worse. I’m very still with limited range of motion due to severe sharp shooting stabbing pain. Doc called in a steroid for me. If not helping I’m suppose to go to the ER.

I couldn’t take this class in the summer and can’t take it this fall. I have this class and 1 more to finish my program in child development online. Then I will finally have my bachelors degree. In 2010 I had to drop out for having emergency back surgery due to Cauda Equina Syndrome. Then 10 months later in 2011 I had a 2nd back surgery due to severe congenital #SpinalStenosis . 2013 went back to school at the local community college for early childhood education. Graduated with associates degree 2016 going part time and another medical leave. 2022 decided to finish my bachelors degree online. Now that I’m this close with only 2 classes left I have to take more medical leaves. If I can’t do these practicums I will need to switch majors again. I was looking so forward to graduating May 2026.

Now I’m not sure when I’ll be done with my bachelors degree. It’s been a long road. Even if I can complete these 2 practicums I’m not sure what I’ll be able to do in this field. Not only is my spinal stenosis worse, I have #DegenerativeDiscDisease #Arthritis and now #Scoliosis all in my lumbar region. My cervical spine is bad also but not as bad.

Hi, my name is Sumorg. I'm here because I have 3 spinal compression fractures, scoliosis, kyphosis, COPD and anxiety and depression

#MightyTogether #PTSD

I'm a medical researcher developing new screening tests for early cognitive impairment and new treatments for #Stroke rehab, #AlzheimersDisease / #Dementia

Casually interested in #Parenting sensitive kids #SensoryProcessingDisorder , #Neurodiversity #NeurodevelopmentalDisorders #Addiction #blacklivesmatter #Dyspraxia #PolycysticOvarySyndrome #Scoliosis

Hi, my name is eLSeth. I've been progressively getting diagnosed with different conditions, almost seems like I have my Pokemons of conditions, and I'm trying to find ways to better take care of myself to improve my quality of life.

#MightyTogether #ADHD #AutismSpectrumDisorder #Scoliosis #ehlers-DanlosSyndrome