Post procedure mess
I had an exploratory procedure on my bladder under general anaesthetic on Tuesday. It seems they didn’t find anything untoward, which is good, but I’m still left with challenges that have no answers as yet.
The other problem from the procedure is that they had to intubate me during it due to really bad acid reflux. They also gave me a drug to completely dry out my saliva which meant I could barely chew or swallow anything for the first 24 hours. It seems that they very very slightly chipped a tooth too.
It has also messed me up quite a bit & inflamed things in my throat and oesophagus. To my body, the intubation was a trauma. 48 hours later & the acid is quite bad & Ive got quite a lot of discomfort in my throat & chest & swallowing is not quite right. It’s actually pretty uncomfortable to swallow. I really hope it calms down because it’s quite distressing & fatiguing (I have fibromyalgia & M.E. amongst other things, so my body is probably responding a little bit more acutely). It’s triggering a lot of anxiety because I had a massive massive flair like this coupled with jackhammer spasms and a tremor all the way down my oesophagus for months during the lockdown in 2020. It’s not quite that bad, but there is a lot of apprehension that it could go that way. I was in such a terrible state then crying on the floor in agony & in and out of the emergency room, having to have IV paracetamol (they wouldn’t give anything stronger - mainly due to contraindications with other health problems of mine).
Over the last 2 to 3 years I was on medication for the reflux (but eventually weaned off due to worries about B12 deficiency) and a special diet which did help calm everything down. I gradually went back to eating more as I was before, but have greatly reduced a lot of triggering foods. I’m just really tired out and upset that this has all flared up. I have a follow-up in about 4 to 6 weeks regarding the procedure and my condition and I’m uncertain what the next steps might be.
This is all on top of lots of other medical and neurological things that I’m needing to deal with. I’m not even quite sure my partner quite understands the nuance & multiple layers that I’m having to manage in my life as a “spoonie” and a neurodivergent mum parenting neurodivergent young adults and how fatigued it all makes me on so many levels. I’ve been burnt out for the last few years due to a huge life change and this all adds another notch up.