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#urology

Had an appointment with Urology yesterday, following my catheter removal a couple of months ago.

My flow rate was unusual and still had 300ml in my bladder when I thought I'd emptied it.
Now I'm waiting to have further tests and also been asked to self catheterise, keeping a chart of how much is frequently left behind.

Honestly thought I was going to get discharged from Urology yesterday but nevermind! Atleast they're doing something about it and not simply blaming #FunctionalNeurologicalDisorder

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Happy Holidays! - What can’t you wait to eat?

Food can be decisive during these times. I always feel guilty when I have to say “no” to someone’s dish at gatherings - and often like I have to explain that there are just simply things I cannot eat, or have contamination of. But, it’s important to remember, we owe no one an apology or explanation! My ‘go-to’, to smooth over holiday meals, is to bring a safe alternative for myself. My favorite? Twice baked potatoes! 🤤😍

#MoonlightLaughter #MoonlightLaughterProject #ReasonstoSmile #PlantingPeace #laughteristhebestmedicine #coping #ChronicIllness #ChronicPain #youarenotalone #autoimmune #AutoimmuneDisease #ImmuneDeficiency #neurology #NeurologicalDisorder #urology #GIDiseases #Undiagnosed

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‘Tis the Season

“‘Tis the season for cold weather, for colds & flus, for aches and pains, for balance issues, for stressful social situations, for wishing to belong, for wanting to start the new year strong.
But while this season can feel grim, it’s important to remember life’s little wins. Whether they’re big or small, one step at a time or them all.
A moment of laughter, a moment of fun, a second of a smile, and feeling like someone - can make a moment larger than you, seem more beautiful than the earth is blue.”

#MoonlightLaughterProject #ReasonstoSmile #PlantingPeace #laughteristhebestmedicine #coping #ChronicIllness #ChronicPain #youarenotalone #autoimmune #AutoimmuneDisease #RaynaudsPhenomenon #sjogrens #ImmuneDeficiency #neurology #NeurologicalDisorder #Migraine #Headache #Neuropathy #Fibromyalgia #urology #InterstitialCystitis #GIDiseases #CeliacDisease #IrritableBowelSyndromeIBS #RareDiseases #Undiagnosed #Cats #Holidays

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The Moonlight Laughter Project

Sometimes it’s hard to look past symptoms, pain, everyday stressers, bad news, and added self-care tasks. I often feel like a one-man-band managing at least two self-care task/homeopathic health habits from 10 different doctors/healthcare providers. And, though it feels daunting, I try to keep perspective - They’re are so many of you (Mighties) that have even grimmer circumstances and I’m sincerely in awe of your strengths. There is one thing I think connects all of our stories beyond diagnoses and treatment plans, for mental or physical health... we move forward. We move forward for love, for laughter, for life’s little moments, for all of our hopes, and for all of our pending questions.
I hope moving forward can be a brighter experience, filled with more seconds of smiles, laughter, and connections. I hope the happy tears somehow outweigh the sad tears. And, I hope that, if anything, this is a start to something that plants peace in more than my own mind.
I can’t promise this will be a perfect project, but it’ll be one done with love.
- Luna

#MoonlightLaughter #MoonlightLaughterProject #ReasonstoSmile #PlantingPeace #laughteristhebestmedicine #coping #ChronicIllness #ChronicPain #youarenotalone #autoimmune #AutoimmuneDisease #ImmuneDeficiency #neurology #NeurologicalDisorder #urology #GIDiseases #Undiagnosed

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Hi guys, can anyone help me with an IC related question?

I’ve had IC for around 4 years which started with a 3/4 week flare of frequency and urgency. Since then, it’s had it’s bad weeks but it’s been manageable but 16 days ago a bad flare of urgency and frequency started again like at the start of it ... I’m scared it won’t stop and my entire life has been put on hold and I’m exhausted from no sleep. I’m scared it won’t calm down and go back to being manageable ... does anyone know how long flares of urgency and frequency last?

I hope I’ve posted this right lol (: xx
interstitialcytitus#ic #frequency #urgency #help #flare #UK #urology #England #bladder