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I had a port placed in the late fall to help manage hydration at home! Before I consented to the port I went over the pros and cons and decided that for me, a port was the best way to manage my high output #Stoma with severe #Dehydration .

I have been pleased with my decision and have found it to be way easier to manage dehydration at home than with outpatient IV appointments. I also am appreciating the break from repeated attempts to get an IV placed. Have any of you had a similar experience?


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Quick Tip Thursday: Hydrate Before, During And After Exercise

Aim to start an exercise session fully hydrated. Thirst is not an accurate indicator of hydration status.

During exercise, drink enough fluid to limit losses as sweat. Drinking small volumes often will minimize gastric discomfort.

After exercise, fluid balance must be restored completely. Fluid replacement will depend on how much fluid was lost during exercise.

#DiabetesType2 #Diabetes #DiabetesType1 #ChronicIllness #water #Dehydration #Exercise

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Wellness Wednesday: Diabetes and Dehydration

The risk of dehydration increases for individuals with diabetes since high blood glucose levels decrease hydration in the body.

Drinking water helps keep your hydration and blood sugar levels in check. Besides fighting dehydration, it can also help remove excess glucose.

People with diabetes should drink plenty of fluids - 1.6 liters (L) or 6.5 cups a day for women; and 2 L or 8.5 glasses of water per day for men.

In addition to water, there are a number of other drinks that are also effective for preventing dehydration and increasing fluid intake. Examples include caffeine-free herbal teas, sugar-free sparkling water, almond milk, and sugar-free coffee.

Drinking sodas, energy drinks, fruit juices, and sweetened drinks is not recommended since they contain a lot of sugar and will increase your blood sugar levels.

What does your water/liquid intake look like?

A. 8 or more cups
B. 6-7 cups
C. 5-4 cups
D. 3 or less

What is your drink of choice?

Share your answers below in the comments!

#DiabetesType2 #Diabetes #DiabetesType1 #ChronicIllness #water #Dehydration

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Summer Heat

I am melting in this summer heat and drinking so much water (yes, that is me using an empty OJ container for my water intake)! I also try to prevent fluid loss by staying cool with ice popsicles and even placing ice packs on my neck at times.

How do you all stay cool in high temps and humidity?

#Dehydration #InflammatoryBowelDiseaseIBD


Anyone else have issues staying hydrated? I've had issues ever since my bowel obstruction a year ago and and I'm constantly exhausted. #Ugh



A short guide to CSID #csid   #EatingIssues

What is CSID?

Congenital sucrase-isomaltase deficiency (CSID) is a genetic disorder that affects a person’s ability to digest certain sugars.

What sugars?

Sucrose (a sugar found in fruits, and also known as table sugar) and maltose (the sugar found in grains)

What happens if you eat foods with high levels of starch/sugars?

After ingestion of sucrose or maltose, an affected person will typically experience:

Bloating, abdominal pain ("stomach ache"), and malabsorption of other nutrients. Other symptoms may include nausea, vomiting, or reflux-like symptoms.

In some children, these digestive problems can lead to failure to gain weight and grow at the expected rate (failure to thrive) and malnutrition.

(In others with CSID the symptoms may mistakenly be thought due to something else, such as functional GI disorders like irritable bowel syndrome with diarrhea (IBS-D) or dyspepsia.)

How common is it?

“The prevalence of CSID is still unknown and a subject of study and debate. Estimates of prevalence in people of European descent generally range from 1 in 500 to 1 in 2,000, and fewer African Americans are thought to be affected. The condition is much more prevalent in the indigenous populations of Greenland, Alaska, and Canada, whereas many as 1 in 10 to 1 in 30 people may be affected.

Nevertheless, more recent studies suggest that CSID may be more common than currently estimated. It is possible that some people remain undiagnosed and that the incidence is higher.”

What don’t you have?

Basically two types of enzymes that break down sugars (+starch.) This enzyme is found in the small intestine and is involved in the digestion of sugar and starch. It is responsible for breaking down sucrose and maltose into their simple sugar components. These simple sugars are then absorbed by the small intestine.

 “Gastrointestinal symptoms may differ among infants, children, and adults affected by this enzyme deficiency.” Keep this in mind if you look at the links at the end, I do not have all of the symptoms even some of the most common ones I do not have, but I do have a lot.

 Eating foods I’m not supposed to can lead to:


Abdominal Pains




Slowing down both physically and mentally (takes longer to think about things)

Mood Swings (mostly negative, irritability is high)

Dry Skin

Even More Serious Issues Include:

Eventual Cancer

Kidney Stones

I have personally been hospitalized as a baby/toddler because I was dehydrated because I was eating foods high in starch and sucrose (sugar). We were not aware of this (CSID) at the time. 

Also in elementary school I got super sick from it and ended up with really bad upper respiratory problems for a while.

#csid #IrritableBowelSyndromeIBS #RareDisease  #Dehydration #FoodRestrictions

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Chronic dehydration

Dehydration is one of the worst feelings ever! And it doesn't help when people say "just drink water!". Dont you think I'm trying lol?!😂🥤 #EhlersDanlosSyndrome #chronic #Dehydration



Today felt dizzy from the moment I woke up. My dad had to help me downstairs and pour my cereal. Then he helped me into the living room. I kept doing my shaking thing where it resembles a seizure but I’m conscious the entire time. It got so bad I kept doing it all afternoon. Not sure if but my tongue or not but it went numb. I had such a hard time talking and swallowing. I couldn’t feel it at all. Couldn’t stick it out either. My vision got worse also. Saw spots with tunnel vision besides everything blurry. I could barely eat dinner. Had really hard time focusing as well. Finally I tried to tell my dad to take me to the Er. Ct scan normal. Bloodwork normal. Had fever and gave me saline fluids. After couple hours I was able to walk out and go home. Never had my tongue go numb before. Has anyone else experienced this while having a fever and being dehydrated? #Dysautonomia #Anxiety #EmergencyRoom #Dehydration #Fever


Dehydration can mimic anxiety

I’ve spoken about this a lot on my Instagram page and my YouTube channel but seeing as today’s #52SmallThings challenge is to hydrate more I thought I’d share it here too.
Dehydration can mimic the symptoms of an anxiety attack, which can in itself provoke an actual anxiety attack. That sucks so makes sense to drink more water.
I find drinking a large glass of water upon waking most beneficial for rehydrating as we fast through the night.

Thanks for listening to my thoughts #hydration #Anxiety #Dehydration