A new nationwide resource for those with dysphagia
Some people living with MS experience swallowing difficulties (dysphagia). A new nationwide resource, the Dysphagia Outreach Project, offers help with dysphagia supplies for people of all ages.
Some people living with MS experience swallowing difficulties (dysphagia). A new nationwide resource, the Dysphagia Outreach Project, offers help with dysphagia supplies for people of all ages.
I was never in any danger, but couldn't clear my throat for 45 min. Afterward, I swear I could have taken a nap!
Eating and swallowing difficulties, called dysphagia, are common with people with multiple sclerosis. Therapy and mindfulness helped me.
Caution: Jagged water. Hydrate safely, my friends.
#MultipleSclerosis #MightyTogether #newlydiagnosed #Disability #Caregiving #autoimmune
The short summary is, January 19th I got choked on food and I ended up getting dysphagia from it and couldn’t swallow anything for weeks. I ate pudding and apple sauce, eventually I ended up passing out February 2nd, my first time ever passing out. They said it was just panic attacks and syncope and not a issue, so they sent me home but my blood pressure was terrible my boyfriend was leaving to go to bootcamp too so that was stress added onto it. February 20th around that I had a doctor appointment with a gynecologist and she told me my iron was low and my b12 was high which made no sense cause I wasn’t eating but 100-200 calories a day if that. But I eventually was able to eat, and slowly felt kind of better but not fully. I had issues of being fatigued, and tired even though I got 8 hours of sleep. It’s tmi but my last cycle was watery and light and wasn’t normal compared to how they usually are. I felt terrible on it, short of breath, weak, fatigued, blurry vision, it was bad. However I’ve had issues when I’m eating, everything will start going black and I struggle to breathe and it feels like my heart stops for a second, then it starts racing and I panic, which makes it worse, I feel like I’m going to pass out during that, my head feels weird too. That’s what happened again earlier today, but yesterday at work I was standing there ringing up a customer and everything started going black and I almost passed out then too. I’m just scared. I’ve never dealt with anything like this before. I was told I have insulin resistance PCOS and may be iron deficient from my doctor and maybe anemic, I’m waiting on blood results to come back but is this a blood sugar issue or is it something else. Please help.#Anemia #anemic #iron #IronDeficiency #insulin #PCOS #irondeficient #help #question
Hi friends. I’m new here. On January 19th I had a choking incident and ever since then I’ve had issues swallowing my food due to anxiety I’m guessing. My doctor told me it’s Dysphagia from anxiety and potentially acid reflux cause I have acid reflux. A lot is going on in my life right now. But the main thing that bothers me is my boyfriend leaving for bootcamp. I think that’s part of why I’m dealing with all of this panic. I also had an episode of syncope and passed out for a few seconds from severe panic. I have panic attacks when I go to eat, and it’s so bad I go light headed, can’t breathe, I go numb, I feel my soul “flooding out of my body” it’s an experience. Due to this I have only ate small bites for like 3 weeks now. I’m just confused on what to do and how to heal. If anyone has any recommendations I would seriously appreciate it. Much love to you all.
Hi, my name is kendrakern11. I'm here because I have been struggling with dysphasia for the last 3 months. I’ve been in and out of the doctor without finding any ways to cope with this illness. I have lost many friendships and feel super alone because it is making me depressed.
#MightyTogether #Anxiety #Depression #PTSD #Dysphasia #Dysphagia
MS can cause swallowing difficulties, but there is help out there.
momentummagazineonline.com/tips-for-handling-dysphagia
#multiplesclerosis #MightyTogether #ChronicIllness #newlydiagnosed #Disability #Caregiving
June 6, 2022. 18yo patient lost a total of 26 lb. Vommiting progressed to 6-7 times per day. She eventually underwent an endoscopy and was told she had reflux and eosinophilic esophagitis. She continues to have vomiting on a fairly regular basis. She also has heartburn. She is constipated. I get a hint of rumination.
August 16,2022. She had several other complaints today. She does feel bloating at times. She has also developed constipation. She has a good bit of difficulty having a bowel movement unless she takes a laxative. She does eosinophilic esophagitis although I am not sure it is producing a lot of symptoms. I still wonder if there might be a degree of rumination here. Constipation predominant IBS: I think she has this. I think she would do well with Linzess so will give that a try.
August 2022 Endoscopy showed (pay attention to this one). Upper endoscopy showed normal esophageal motility. Barium swallow showed some reflux but no stenosis.
June 15,2023. 19 y.o. female who presents to the GI Clinic today for a follow-up appointment regarding dysphagia and constipation. She also had concerns for constipation today. She still has reflux, that seems to be worsening. she would like to identify what the cause of her problem(s). She also noted that she had a bout of constipation alternating w/diarrhea. She also has other symptoms to include the migraines, joint/knee discomfort, and body aches. She is a consideration for rumination.
June 18,2023 Endoscopy results (look at 2022, compared to 2023).
LES/EGJ: low resting pressure
ESOPHAGEAL BODY: very weak. Only a few transmitted contractions
UES: normal pressure and normal relaxation
RESPONSE TO 5 RAPID SWALLOWS: very weak
SUMMARY: Ineffective esophageal motility
Esophageal body: Ineffective swallows, Not all swallows have failed peristalsis
90% of her swallows are ineffective
This study is positive for pathologic acid reflux with positive symptom correlation for cough, heartburn, and regurgitation.
June 3,2023. She presents reporting heartburn and bowel concerns. She continues to have heartburn even while on a regimen pantoprazole, and lots of tums. She also complains of bowel issues as she is not have a bowel movements on a daily basis if she does not take the Linzess.
August 24,2023. Her constipation continues, even when on Linzess and MiraLax. We discussed trying a different treatment since Linzess is not effective, I put her on amitizia.
September 14,2023. Patient advises of not having a BM in 3 weeks, so she tried amitizia and had a severe reaction. She saw an urgent care provider, who recommended she stop the medication, which I agree w/. She was on Linzess for the weeks prior and still didn't have adequate response.
so lately i just haven’t had an appetite for anything and i’ve been nauseous and puking when i do eat. i’ve noticed that even when i ate like two hours ago the food still appears undigested. does anyone know what that could be or how to stop this from happening? it would be appreciated.
#DisorderedEating #Dysphagia #RuminationSyndrome #GastrointestinalDiscomfort #Gastroparesis
Hi, my name is Varsha. I'm here because my son has TBCK Syndrome, there are less than 200 cases diagnosed worldwide. My son V has profound hypotonia, epilepsy and Dysphagia as symptoms.
I am here so I can connect with other families in similar situation.
#MightyTogether