Hello fellow mighty family. I honestly don't know where to start. Things started worsening yesterday after I washed my hair in the kitchen sink. For mobility reasons I don't trust myself with standing for over a period of a few minutes at a time, hence I can't shower safely. Still take bed baths. Anyway since finances are tight I washed my hair in the sink. After I finished, I had to sit in place for about twenty minutes. After getting up, I felt extremely sick. I feel very weak and just fatigued. I can't really pick up objects above five pounds. My appetite is very low. I don't know what to do. I'd rather suffer with these symptoms than be gaslighted by a provider. Help I'm stuck... thanks for listening.
#Disability #increasinglyfatigue #Fibromyaliga #Feelingsick #alone
After #sexual abuse and #Bullying growing up, I met someone #gentle and #Understanding to share my life with. Wonderful jobs, wonderful kids (until they were older, then one wonderful kid), and #autoimmune disease again and again and again. I believe my most recent #healthlist shows 8. At the time that was all I knew. I left a job I adored, I had #mentalissues , and it started to affect me. I had Elliot, my #ServiceDog , many of the #AutoimmuneDiseases affected me physically, too. Sometimes, I just felt sick. My husband had taken 2 jobs to
cover my #MedicalBills , #pharmaceuticals , my daughter was teaching, and at night taking classes for her masters.
The people closest to me, who best understood what was happening with me, were very busy.
I had been a writer once, and I intended to checkout online writing classes, but my computer was hacked. I even had proof, they were so comfortable in my space, they lived there/here for years. I would receive calls from all over the world. One bad day when I was #Feelingsick and fighting the hackers, I finally called the police. In your area this is your only option. I explained what I was calling about, so they would send computer knowledgeable police to my house. Three police were sent over, and the one in charge pulled out his gun on Elliot, when he was quickly standing next to me. I explained he was a #ServiceDog and showed him the cane in my right hand. He threatened to shoot him if I didn’t keep the dog away from him. While I was trying to get Elliot to stay in the family room, which went against his training, the same guy wanted to know what was wrong with me. Who’s still in a robe at noon? I entered the room with my laptop, he jumped. He had no idea why he was called to my address.
I tried to explain why, #WhichMadeMeSoundCrazy ! Hackers? Out of the country? He nodded to one of his men, and that man asked to use my phone while the “Boss” kept questioning about my robe and threatening my #ServiceDog . #IWasInTears ! An ambulance pulled up to the house, and they try to talk me into going with them
where people could help me. I refused. One of the EMT’s watching #TheCrazyLady weeping, in a robe, asked me if I was not going. I said no, which was fine by him, I just needed to release them and he could leave. I signed the paperwork without a glance and tried to throw out the police, too. But they laughed and picked me up and put me in the ambulance. “Bossman” explained I had just committed myself. I heard the 3 police laugh until they closed the ambulance doors.
Absolutely, the police can use some redevelopment.
It really hurts when loved ones don’t believe you.
My blood pressure seems to be going crazy. When I stand or walk it goes up to 145-160/109-110. When I am on bed rest it normalizes to my normal (125/75). I’m lightheaded and have a headache unless I’m laying down. I almost pass out when I’m standing or walking too long.
Went to the ER again on Saturday night. They told me I had had a panic attack and that my blood pressure was up. I could be transported to the hospital as non-emergency. After falling twice to get to the car with EMT help, I finally said I would go in their ambulance. The panic attack subsided and they took my blood pressure again. It was still high but still not emergency. However, every time I stand I get up and try to walk my blood pressure gets out of hand.
And then my beats per minute can vary greatly. Sometimes I am at 82 when lying down/seated and then I stand up and it’s like 100. It might normalize down to 95 or so. Then it might be what it was yesterday: 69 laying down and rising to 99 when I get up. And then sometimes it seems normal.
The ER doc is having me get tested for heart related issues (echocardiogram and 24 hour heart monitor), as well as having me monitor my blood sugar to see if there is a connection in drop in blood sugar to episodes.