Fibrofatigue

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    I had a really bad shift last night. I work in postpartum nursing and it was a really busy night. Lots of babies born and ppl in labor. I just couldn't get going. My executive functioning skills were MIA. My brainfog was so bad I felt kind of dissociated from everything going on. Not actual disassociation, just rly rly bad brain fog. I was completely off, like my instincts and knowledge were all jumbled. Didn't get a lot done and then the next girl who came on for night shift was rly upset w me bc she thought i hadn't done anything. I took my adderall and had caffeine but just couldn't get my brain on. This morning, I'm still exchausted & rly foggy. Im so sick of this.

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    Fixes for Fibro Fatigue

    I am feeling soooooooo fatigued today. This is one of the most frustrating symptoms for me. I feel like I can barely keep my head up and eyes open. To move feels like I am walking in a pool of water up to my neck. I don't want to give in to the fatigue and am open to suggestions. How do you combat fibromyalgia fatigue? #Fibrofatigue

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    Family outing and fibro crash

    Decided to go out with my mom and kids today, somewhere different, somewhere nice. So we went out, had lunch, kids played outside in a huge play area, we listened to the tourist entertainment, chatted, had frozen yoghurt. Was so lovely to just be dressed and out. However, the girls and I are now home and I am so beyond exhausted that I could just curl up and sleep. The TV is on now and we're all zoning out. I hate putting my kids in front of the TV but have made peace with the fact that sometimes, it's the one saving grace during big crashes.

    What I do feel low about is the fact that one outing has me completely buggered. All the sensory input, the walking, lots of people. I'm not sure how I'm going to do bath time, supper, bed routine. Just wish I could lie down in a quiet room and not move until work tomorrow. Praying this doesn't roll over into the next few

    #Fibromyalgia #Endometriosis #Fibrofatigue #Fatigue #Spoonie #fibroflare

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    Fibro flare, motivation lost.

    I'm fatigued, my joints are swollen, I've had food poisoning, my fibromyalgia is flaring and I'm finding it hard to keep motivated!
    I'm trying to rest but every time I go outside the cold bites me and leaves me in agony!

    I know I have to keep smiling, self caring and looking after myself as I need to keep stable for the police interviews..
    I think that is one thing that hangs over my head coming into the new year..
    The main focus of my life atm is giving the clearest interviews I can and putting an end to their free reign to abuse children!

    I'm sure the flare is also stress related.
    It's a lot to dig out and go through every detail of your childhood trauma, in the caring hands of a therapist let Alone at the hands an assertive and curt police officer.

    Having to deal with all this without any of my family or friends in the same county is hard.. it means I've got no one to hangout with or chat with after each interview and after that you really need someone who knows you well to help you decompress!!

    I have another interview in a week or two and atm my head is telling me I don't want to deal with/ do Anything in the meantime.. I know this is unhealthy and most likely Not the best use of my time..
    But I just don't have much more energy to give to life right now.

    my question is prosecuting the people that abused you as a child Enough of a goal??
    Is it ok to not put too many expectations on myself at this time?

    I also want to start running a writing group.. but I don't have much extra energy, the interview process is the most draining thing I've ever been through!

    #PTSD #CPTSD #fibroflare #Fibromyaliga #Survivor #reportingabuse #childhoodabusesurvivor #Depression #Fatigue #Fibrofatigue #MeToo #coping #tired

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    Community Voices

    Day 9 of the worst flare of my life

    I have never had a flare like this. I've had fibro for fifteen years. I am in agony. I've never had a flare last more than three days, and most last only one. I'm finishing up day nine. I have been in bed for the most part for nine days.

    I called my mum today and whined at her for two hours. I went to the doctor yesterday. I had to see the np because my doctor wasn't in. I don't like the np much, but I decided to give her the benefit of the doubt. She raised my lyrica and my citalopram, and when I asked what I was supposed to do while I'm waiting for that to kick in, she said "Just keep doing what you're doing, I guess."

    Um, okay... If what I was doing was working, I wouldn't be here...

    I'm having ice pick headaches, my skin burns, my muscles burn, my joints feel too heavy to move, my hands hurt, and my brain doesn't work.

    I'm very frustrated and I feel terrible for my husband, who busts ass at work all day, and then has to come home and do what I haven't been able to.

    I don't know what I'm looking for here, but I need something. Maybe I just need someone to understand.

    #Fibromyalgia #ChronicPain #fibroflare #Fibrofatigue #FibromyalgiaSucks #fibroproblems #Pain #ChronicIllness

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    Adulting Sucks Worse With Fibromyalgia

    I did too much around the house yesterday! & you know how far we get behind sometimes; so when we feel good, we over -do it. Yep, I did this to myself.

    #Fibrofatigue #fibroflare #Fibromyalgia #Depression #BPD #ChronicIllness #neuro-fatigue #Fatigue #damnpantsandresponsibilities #Adulting #adultingsucks #ChronicPain

    Here's my rant:

    Feeling guilty for not getting everything done. Feeling guilty for feeling good & seeing to my responsibilities. Feeling guilty for feeling guilty!
    To top it off I have to actually leave the house for my shrink appointment and then pharmacy for medication refills & head to the store to pick up some things... oh, the horrible errands! On the bright side, no one can read my facial expressions as well with a mask on... & thank goodness! I'm hurting & a scowl seems to have settled in for the day.

    I just want to change into my jammies & head back to bed! GRRRRR! Adulting sucks! All those hashtags above suck!

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    Unwell

    Changes in weather mess with my #Fibromyalgia . My #Fibrofatigue and #FibroFog are bringing me so low that my #Depression is feeding off it like an all you can eat buffet. And OF COURSE this has to happen in tandem with important self-work I've been trying to do & an important juncture at work!
    All I want to do is sleep. I force myself up, but my limbs feel like they way a ton & it takes several hours just to fully wake up. I've lost track of time during the day, not getting to things that are important; like showering, getting dressed, completing projects, etc. Truly, all I really want to do is go back to sleep until this phase of "bad days" just goes away.
    #ChronicIllness #BPD #HSP #MentalHealth

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    Napping # Fibromyalgia

    <p>Napping # <a href="https://themighty.com/topic/fibromyalgia/?label=Fibromyalgia" class="tm-embed-link  tm-autolink health-map" data-id="5b23ce7f00553f33fe992ab1" data-name="Fibromyalgia" title="Fibromyalgia" target="_blank">Fibromyalgia</a></p>
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    What meds do you have to treat this, and who prescribes it? I have the smallest dose of adderal from my psychiatrist and it helps, but to get it to go up, I'd have to see a neurologist or neuropsychologist.

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