Join the Conversation on
63 people
0 stories
169 posts
Explore Our Newsletters
What's New in Fitbit
See full photo

10,000 steps in one day!

It has been many, many years since I last managed to take over ten thousand steps in a single day! But, I’m very pleased I managed it.

With the help of my little sister, I’m walking more and more and my stamina is slowly increasing! As is my strength. The weight that I’ve so desperately wanted lose is now practically falling off!

I’ve got this! 💪

#chronicillnesswarrior #ChronicPain #PosturalOrthostaticTachycardiaSyndrome #AutonomicDysfunction #EhlersDanlosSyndrome #EDS #jointhypermobility #Jointpain #BPD #EUPD #NAFLD #LiverDisease #Diabetes #WeightLoss #InterstitialCysitis #Epxercise #Fitbit #happy

28 reactions 5 comments

#PosturalOrthostaticTachycardiaSyndrome and #Fitbit sense

Idk if anyone else has had such a bad experience as me, but if youre looking for a smart watch to help keep up w your HR. I definitely dont recommend getting a Fitbit Sense watch even if they say its the best on the market, it isnt.

Mine has let me down time and time again and has caused me to put myself in dangerous situations unknowingly.

i dont think ill trust fitbit again, after spending $200 on this watch for christmas i had to turn around and buy a $500 one so i know im safe.

I have POTS and it affects my day to day but i dont feel it as much when it get dangerously high so my fitbit is supposed to notify me when it gets high but never has. At times it's told me my HR is 90bpm but when looking at my PulseOX it's been 180-210 so thats great....

-1000/10 #FitbitSense #Fitbit #POTS #PosturalOrthostaticTachycardiaSyndrome #LivingWithPOTS

See full photo

Fitbit for Fatigue: using data in my chronic illness journey

As you may know, I was just diagnosed with #MyalgicEncephalomyelitis and #Fibromyalgia (among other things) with chronic fatigue (read: exhaustion) being my most severe symptom.

As I deal with paperwork, try to start all the medications and suppliments, and work on figuring out how in the world I’m going to manage this, I have take one step that I’m really pleased with. I got a Fitbit.

Okay, I admit it, I’m cheap- I talked a friend into giving me their old Fitbit, but the point remains!

I’ve been getting data on my movement (not exactly “steps”, as I spend so little time walking that half of the “steps” counted happen while I’m lounging in bed or on the couch). But it is still data on how much I move. I’ve been gathering data for a week.

Here’s what I’ve learned:
- I take less than 500 (actual) steps each day. Closer to 400.
- I average (about) 700 “step” movements a day.
- I move significantly less when I have a migraine and more when I’m anxious.

How does this help?
- I have a baseline. I can objectively see if I am getting better with all the treatment things I try.
- I can help myself avoid “boom and bust” I told my Fitbit that my fitness goal was 650 steps. That will warn me if I am moving a lot more than on an average day so I can be mindful and slow down (and not be as sick the next day).
- I can step it up on down days and try to hit 600 steps even on bad days.
- I have data. When people ask “how tired are you?” I can give them numbers.
- I can also track my heartrate, which helps with other issues.

It’s not perfect, but it’s something.

What steps do you take on your chronic illness journey?

#ChronicIllness #Disability #spoonielifehack #exhaustion #Fitbit #orthostaticintolerance #Anxiety #MentalHealth #SocialAnxiety

See full photo

Does anyone with #POTS or vasovagal syncope think that fitbit counts their episodes as flights of stairs?

I havent done any stairs today but have had several episodes from standing up too quickly on accident... noticed the stairs. Weird coincidence? #POTS #Spoonie #Fitbit #Tachycardia #vvs #VasovagalSyncope


#52 SmallThings Getting my needs met.

Today I got up and let myself rest a few hours. I realized that my #Fitbit was warning me that my cycle was about to start. I had already started over planning and thinking about what I might need. I went out to the store because well I planned out that today I would find out which bus routes would get me to on the job training that I have tomorrow. Thankfully on the first, I got laundry done. I mentioned that I over plan things. I am sure its part of my #Anxiety and ADD. I get super nervous and wonder if I have what I need. At the first store I had looked up online was supposed to have information about day passes or what I would need. This was the second time and place that I had found. The first one only had monthly passes and not as much information. This one wasn't any more help. He only had a weekly pass which was not going to be any help since it was just a one-day thing. He estimated that the cost would be $5 the round trip. I was feeling discouraged because I knew from the first time it was at least $4. Come to think about it he probably thought I was a student. Not the first time nor the last time someone though that. I browsed through the aisles looking for some of my personal care needs that were on my list. Not much variety and prices were not great. "Oh well", I thought and went to the next place that I was more familiar with. It was a lot better and after closely looking at the labels trying to figure out my needs I found what I wanted. All under $10 for 3 things. I was content and ready to head home. In midst of my anxiety about crossing the street at the zebra/lined crosswalk, I decided after the adrenaline finally pushed off. I normally wait until all the cars are clear before I crossed the street. When someone honks at you when you are on the opposite side (I am sure he was trying to help) what he didn't see was the bus coming from the other direction. I did make it to the other side (as the bus was coming up close). I decided then I would take the light even if it took that extra few minutes. I came home tired and extra startled. I was annoyed that I got so scared. I mean they probably wouldn't see me again. I think its the small things that can terrify someone. I am glad though to put on the Calm app and some mediation sounds to help me destress. I have to say living with #SocialAnxiety and  #Depression can be a pain.  That's for another post.  On a positive note I posted on my Instagram profile the start of my new year. I try not to let my #Anxiety get the best of me when it comes to using social media.