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Doctors not listening #gastro #WeightLoss

I have been in and out of hospital for over a year with extreme unintentional weight loss from chronic vomiting and backend problems alongside very high heart rates at times. August 2023 I was diagnosed with combined adhd, then diagnosed with POTs and HEDs (traumatic experience to get to that in the first place) my biggest issue is my gastro issues. I have dropped from 55kgs to 42kgs so my BMI is 17 at the moment. I have had so many tests now and they're all clear. But today I spoke to a gastroenterologist who reviewed my file and found all my tests were essentially done to the lowest standard possible so she's reordered all of them. She wanted to admit me to hospital for how poorly I am and I won't go in because the last admission genuinely made me too scared to go in again. I was told constantly that I had anxiety or was stressed and ignored and isolated for 48 hours at one point. I know I need fluids and possibly tube feeding but I can't go in there after the last experience.

*photo was from a while ago when I was about 5kgs heavier*
I'm too embarrassed by my body now

73 reactions 19 comments

TW: Struggling to lose wieght

I really need some advice. Ive been trying hard to lose weight for months and months and it would budge. I lose and gain the same 3 pounds over and over again wnd its really messing with my mental health. I also want to lose weight to hopefully help some of my pain. Any advice before I go to the doctor? Ive tried weight watchers, slimming world and Im currently counting calories. Im just under 14 stone/192 pounds and 5’5 so I do have quite a bit to lose. #WeightLoss #MECFS #Fibromyalgia #MyalgicEncephalomyelitis #POTS #PosturalOrthostaticTachycardiaSyndrome

20 reactions 9 comments

I need to eat but

I need to eat but, I cannot bring myself to do so. My weight loss is going well. If only I was losing weight healthily. I don't want to worry anyone. I ate last night and ended up getting sick because I hated it. No one believes me except my amazing girlfriend and two of my best friends. My own parents think I'm lying. I take metformin for my PCOS which is what everyone who does not believe thinks is the culprit. I have tried explaining that I fast and make myself throw up on PURPOSE, but I get shut down. I don't know what else to do. I'm not even sure if my therapist believes me.

#BulimiaNervosa #EatingDisorders #PolycysticOvarySyndrome #WeightLoss

22 reactions 14 comments

Weight loss

I’ve been at the GI dr off and on since February for appetite loss, reflux, etc. I’ve had all the routine scopes- they found gastritis (not H. Pylori) and a tortuous colon. I cut out dairy for the past 2 months, because it made me worse… and I’ve lost almost 30 lbs. Are there any other bendy folk out there who struggle with unintended weight loss? I was always really thin as a kid, too. #Hypermobility #WeightLoss #POTS #Gastritis

6 reactions 6 comments
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10,000 steps in one day!

It has been many, many years since I last managed to take over ten thousand steps in a single day! But, I’m very pleased I managed it.

With the help of my little sister, I’m walking more and more and my stamina is slowly increasing! As is my strength. The weight that I’ve so desperately wanted lose is now practically falling off!

I’ve got this! 💪

#chronicillnesswarrior #ChronicPain #PosturalOrthostaticTachycardiaSyndrome #AutonomicDysfunction #EhlersDanlosSyndrome #EDS #jointhypermobility #Jointpain #BPD #EUPD #NAFLD #LiverDisease #Diabetes #WeightLoss #InterstitialCysitis #Epxercise #Fitbit #happy

28 reactions 5 comments

I’m really quite pleased with myself.

Over the Christmas period there was a LOT of family drama that seriously upset me, which led to me comfort eating quite a bit.

In my last post, after my weight check and diabetes review, I proudly told you lovely people that not only was my diabetes unaffected, but that I’d also lost 19lbs.

Well. This morning I came across a couple of pairs of size 16 skinny jeans I bought myself just before the pandemic began. When I bought them at the time, I was really pissed because I couldn’t even pull them up past my knees/lower thighs. I threw them to the back of my chest of drawers and sulked.

So, I stared at the jeans, a bit disgruntled. Before finally deciding to give them a go…

And… They fit me PERFECTLY. I am ecstatic! I was once a size 20-22, and now? A 16! You can bet your ass I did a victory dance in my room. 😂

#chronicillnesswarrior #ChronicPain #POTS #EDS #NAFLD #InterstitialCystitis #Diabetes #Migraines #IBS #PosturalOrthostaticTachycardiaSyndrome #EhlersDanlosSyndrome #BPD #BorderlinePersonalityDisorder #WeightLoss #SoHappy

13 reactions 3 comments

Good news! (And a rant).

Hey, everyone. How was your Christmas? Mine was pretty awful, honestly. I'll try and explain it as best as I can.

Around 4 years ago, my mum was talking to my big sister (her name is Dawn), and she told her about my health conditions/problems. Dawn then proceeded to accuse me of faking my health issues. Despite the many scans and test results clearly showing they are real. And then, shortly afterwards, she said that any gifts or presents I buy for people for birthdays/christmas (and everything else) are worthless because the money comes from a 'government handout' (disability benefits). After learning this, I refused to talk to her unless she apologises. So, we didn't talk for several years.

My little sister (Jess) gave birth to my nephew in 2021, and I love him very much. Since Dawn doesn't live near us, she was only able to visit this passed Christmas, and she stayed at Jess's house for two weeks.

Originally, before Dawn announced she would be coming, the whole family was going to go to Jess's house for Christmas dinner and whatnot... But once she booked her tickets and everything, Jess said that I wasn't allowed to go to the event. I wasn't allowed to spend time with the whole family. Which REALLY upset me. So much so, that I seriously comfort-ate for a couple of weeks. I was binge-eating whatever I could get my hands on. And I spent the entire of Christmas day curled up in bed watching stuff on my laptop. It was my first Christmas alone and I hated it.

Anyway, that leads up to the good news. I was really expecting my diabetes to be so much worse, and I was expecting to have put on a lot of weight. So, I reluctantly went for my weight and diabetes check last week. After they recorded my weight, they told me that since last July, I've lost 20lbs! And my HBA1C blood test came back yesterday - it's not worse! In July it was 63, and as of yesterday, it was 62. Admittedly, it's not much progress, but considering I was expecting it to be a disaster, I feel pretty good.

Anyway - I'm sorry for this rant, I guess. I just needed to get it out. Thank you for getting this far, though. Have a great day!

#chronicillnesswarrior #chronichealth #ChronicPain #POTS #POTSUK #EhlersDanlosSyndrome #EDS #NAFLD #InterstitialCystitis #BladderPain #BPD #BorderlinePersonalityDisorder #Familydrama #Depression #PTSD #Migraines #Diabetes #diabetic #WeightLoss

54 reactions 10 comments
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Being bipolar…

I’ve learned to accept I’m bipolar. I’m on a lot of meds. I’d rather not be on meds because of all their side effects, but I’m learning to accept that I might need them. I don’t want to relapse and end up back in the hospital. I never want to be hospitalized again. It’s been a year since I was last in the hospital. I wish I was normal. I also used to be in great shape, but put on a lot of weight from prescription pills and depression. I have to realize I didn’t gain the weight overnight. It’s been a few years of gaining weight. I need to remind myself it’s going to take time to lose the weight. My psychiatrist said I can lose the weight while still on medication. I’m hoping I can. I just need to be patient. I need to stop wishing I can change the past and stop wanting instant gratification. #Bipolar #Depression #Anxiety #WeightLoss

20 reactions 6 comments