idiopathic neuropathy

Join the Conversation on
idiopathic neuropathy
165 people
0 stories
6 posts
  • Explore Our Newsletters
  • What's New in idiopathic neuropathy
    All
    Stories
    Posts
    Videos
    Latest
    Trending
    Post
    See full photo

    Tips and Tricks for keeping the mind active and not letting boredom overcome you while on bed rest .

    Please share some tips and tricks you use to help keep yourself pleasantly distracted and keep boredom at bay! It may help someone else 😊. For me, one thing is Netflix on my phone. I love several of their shows and there are some great movies to watch! #ChronicIllness #ChronicDepression #ChronicPain #BackPain #AutonomicDysfunction #DiabeticNeuropathy #IdiopathicNeuropathy #Neuropathy #Disability #TheMighty #alwaysinbed #GastrointestinalDiscomfort #Gastroparesis #GastroesophagealRefluxDisease #Disabled #Fibromyalgia #ChronicFatigue #EpsteinbarrVirus #InvisibleIllness

    7 comments
    Post

    Do you find your neuropathy gets worse when you have a cold? IdiopathicNeuropathy


    #IdiopathicNeuropathy

    1 comment
    Post

    The struggle is real... #Gastroparesis #Migraine #POTS #IdiopathicNeuropathy #ChronicPain #Depression

    I struggle every single day... I rarely find the energy to even get out of bed most days. I used to do things without having to think twice... now i have this internal dialog constantly fighting every single thought and hope that tomorrow will be that elusive “good day”. I make promises to myself that I cannot keep...tomorrow I will get out of bed, I will shower, I will participate in life. I disappoint my family and friends a lot...yet, my own disappointment is far greater than theirs could ever be. I am unreliable to my friends and family but even more so to myself! My body has betrayed me leaving a reflection in the mirror that is unrecognizable...a stranger. Every. Single. Day. Is. A. Struggle...with no end in sight. I ask myself, “Is showering really worth the effort today?” And the answer, most often is, “NO!”. I am not alone in this...yet the loneliness is overwhelming most days. This is chronic illness...living with gastroparesis, migraines, pots, neuropathy, chronic pain, depression - a lifelong sentence with no end in sight...

    4 comments