Idiopathic Pulmonary Fibrosis

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Idiopathic Pulmonary Fibrosis
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I'm new here!

Hi, my name is ReedtamS. I'm here because I want to learn more about my diseases and conditions. Like many people with rare diseases, I accumulated over 30 diagnoses before I was diagnosed with Pulmonary Arterial Hypertension, and a few more since then. Along with all of those diagnoses are the medications to treat them. I take over 35 medications every day. I am trying to live my best life, and educate myself so that I can advocate for myself.

#MightyTogether #Anxiety #Depression #Fibromyalgia #PulmonaryArterialHypertension #MixedConnectiveTissueDiseaseMCTD #IdiopathicPulmonaryFibrosis #Arthritis #AntiphospholipidSyndrome #Hypertension #HypothyroidismUnderactiveThyroidDisease

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I’m new here!

Hi, my name is emptinessterbymyself. I'm here because life is getting a lot harder and I feel like I’m alone because people are tired of hearing about my illnesses.

#MightyTogether #Anxiety #Depression #RheumatoidArthritis #Grief #IdiopathicPulmonaryFibrosis

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I'm new here!

Hi, my name is Teante12. I’m new to The Mighty and look forward to sharing my story.

I have had Severe Atopic dermatitis my whole life I have also had asthma my whole life and just recently was diagnosed with pulmonary fibrosis#MightyTogether After reading your factual perception of How much deeper Atopic Dermatitis goes with under lying conditions. You are absolutely right! There is so much more to it! Including the psychological impact it has! What works for one, may not work for another. I always wanted to help those who are new to it. My son, and his son also have several Atopic Dermatitis asthma etc. It’s Hereditary and not contagious. I’m now 70 years old. I’ve tried pretty much everything. Trial and error is the best learning curve. Yet, today’s medication is so much better than I had had. Which was Coal tar. And my parents tying my hands to the bed at night so I wouldn’t scratch.

I look forward to meet other’s in the group. #IdiopathicPulmonaryFibrosis

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Which medications are you prescribed?

My 83-year-old mother is diagnosed with #IdiopathicPulmonaryFibrosis. I’m her care giver. She’s been taking Brovana and Budesonide solutions via nebulizer since her diagnosis last March.
Wondering if others are taking these, and their effectiveness? If not, would you share treatments? Mom is also with chronic asthma and Alzheimer’s
Thank you! #brovana #Asthma #alzheimers

1 comment