Idiopathic Pulmonary Fibrosis

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Idiopathic Pulmonary Fibrosis
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    Portable Oxygen Users Survival Tips

    How do you make using portable oxygen in public easier? I'm looking for ideas to help make returning to the office easier. #CysticFibrosis #ChronicObstructivePulmonaryDisease #MixedConnectiveTissueDiseaseMCTD #IdiopathicPulmonaryFibrosis #pulmonary

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    I'm new here!

    Hi, my name is Teante12. I’m new to The Mighty and look forward to sharing my story.

    I have had Severe Atopic dermatitis my whole life I have also had asthma my whole life and just recently was diagnosed with pulmonary fibrosis#MightyTogether After reading your factual perception of How much deeper Atopic Dermatitis goes with under lying conditions. You are absolutely right! There is so much more to it! Including the psychological impact it has! What works for one, may not work for another. I always wanted to help those who are new to it. My son, and his son also have several Atopic Dermatitis asthma etc. It’s Hereditary and not contagious. I’m now 70 years old. I’ve tried pretty much everything. Trial and error is the best learning curve. Yet, today’s medication is so much better than I had had. Which was Coal tar. And my parents tying my hands to the bed at night so I wouldn’t scratch.

    I look forward to meet other’s in the group. #IdiopathicPulmonaryFibrosis

    1 comment
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    I'm new here!

    Hi, my name is Tryan553. I’m new to The Mighty and look forward to sharing my story.

    #MightyTogether

    #parkinson 'sDisease

    #Dystonia

    #Dysautonomia

    #IdiopathicPulmonaryFibrosis

    #Dermatomyositis

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    23andMe has a new IPF study: ipf-study@23andme.com

    #IdiopathicPulmonaryFibrosis

    Post

    Which medications are you prescribed?


    My 83-year-old mother is diagnosed with #IdiopathicPulmonaryFibrosis. I’m her care giver. She’s been taking Brovana and Budesonide solutions via nebulizer since her diagnosis last March.
    Wondering if others are taking these, and their effectiveness? If not, would you share treatments? Mom is also with chronic asthma and Alzheimer’s
    Thank you! #brovana #Asthma #alzheimers

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    I would like to say that I dont have Pulmonary Fibrosis but I do have Chronic Pulmonary Obstructive Disease.


    #IdiopathicPulmonaryFibrosis

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    Post

    diarrhea


    #IdiopathicPulmonaryFibrosis
    I read on another board that taking #Ofev closer than 10 to 12 hour apart tends to increase the attacks of diarrhea. Has anybody found that this may be one solution to ease this side effect?

    Post

    anybody find a solution to the constant diarrhea from Ofev ? I have tried to slow it down with capsules and 1/2 dose of lomotil. #


    #IdiopathicPulmonaryFibrosis

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