Idiopathic Pulmonary Fibrosis

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Idiopathic Pulmonary Fibrosis
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    I'm new here!

    Hi, my name is Teante12. I’m new to The Mighty and look forward to sharing my story.

    I have had Severe Atopic dermatitis my whole life I have also had asthma my whole life and just recently was diagnosed with pulmonary fibrosis#MightyTogether After reading your factual perception of How much deeper Atopic Dermatitis goes with under lying conditions. You are absolutely right! There is so much more to it! Including the psychological impact it has! What works for one, may not work for another. I always wanted to help those who are new to it. My son, and his son also have several Atopic Dermatitis asthma etc. It’s Hereditary and not contagious. I’m now 70 years old. I’ve tried pretty much everything. Trial and error is the best learning curve. Yet, today’s medication is so much better than I had had. Which was Coal tar. And my parents tying my hands to the bed at night so I wouldn’t scratch.

    I look forward to meet other’s in the group. #IdiopathicPulmonaryFibrosis

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    Community Voices
    Community Voices

    😂this one hits too close to home😂

    <p>😂this one hits too close to home😂</p>
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    What You Should Know About Pulmonary Fibrosis

    Have you heard of pulmonary fibrosis? If you answered no, you are not alone. Pulmonary fibrosis (PF) is a progressive and debilitating disease that leads to scarring of the lungs, which has no known cure and affects both men and women. More than 200,000 Americans are living with the disease and, unfortunately, there are many myths and misconceptions surrounding the causes, treatments, diagnosis and more. PF is a largely unknown lung disease: While over 50,000 new cases are diagnosed annually, awareness of PF remains very low. According to a recent survey conducted by the Pulmonary Fibrosis Foundation (PFF), 86% of Americans do not know the symptoms of PF, which include shortness of breath, fatigue and a dry, persistent cough. Even though PF has been mentioned in the news lately as a complication of COVID-19, many remain unaware of PF as a distinct disease entity or of PF signs and symptoms. If patients are better educated on specific PF symptoms, a diagnosis can occur sooner, which may lead to improved outcomes. PF is difficult to diagnose: It can be hard to diagnose PF because the symptoms of persistent cough, fatigue and shortness of breath are similar to those of other illnesses and can appear mild or absent early in the disease stage. Other common symptoms of PF include: ● Weakness● Discomfort in the chest● Loss of appetite● Unexplained weight loss Awareness of these early warning signs is vital to prompt diagnosis. If you are experiencing symptoms, keep a list of them and consult your doctor. There are many types of PF that have known causes: While there are types of PF that don’t have a known cause, such as idiopathic pulmonary fibrosis (IPF), many do. PF with known causes include: ● Those related to autoimmune diseases, such as rheumatoid arthritis or scleroderma.● Those related to occupational exposures, such as asbestos.● Those related to environmental exposures, such as molds and birds, referred to as hypersensitivity pneumonitis.● Those directly related to smoking.● Certain medications and radiation therapy can also cause PF. Other factors that put millions of Americans at higher risk for PF include being over the age of 60 and people with a family history of interstitial lung disease. There are treatments for PF: While it is true that there is no known cure for PF, there are a number of effective treatments. ● Supportive care treatments such as supplemental oxygen, medication and pulmonary rehabilitation, can lessen symptoms of cough, shortness of breath or fatigue.● For some types of PF, there are medications called “antifibrotics” that can slow down disease progression by about 50% on average.● Lung transplantation is a treatment option for advanced PF and is considered on a case-by-case basis. Although a treatment is not a cure, these treatments can be very helpful for PF patients. Finding a cure continues to be the ultimate goal for the PFF and banding together to raise awareness for PF is a piece of the puzzle to finally finding it. Knowing the facts about PF will help promote understanding of this devastating disease, raise funds for vital research, lead to better treatments and ultimately to find a cure. For more information about pulmonary fibrosis, please visit www.AboutPF.org.

    Community Voices
    Community Voices

    Which medications are you prescribed?


    My 83-year-old mother is diagnosed with #IdiopathicPulmonaryFibrosis. I’m her care giver. She’s been taking Brovana and Budesonide solutions via nebulizer since her diagnosis last March.
    Wondering if others are taking these, and their effectiveness? If not, would you share treatments? Mom is also with chronic asthma and Alzheimer’s
    Thank you! #brovana #Asthma #alzheimers

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    Community Voices

    I would like to say that I dont have Pulmonary Fibrosis but I do have Chronic Pulmonary Obstructive Disease.

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    Community Voices

    diarrhea


    #IdiopathicPulmonaryFibrosis
    I read on another board that taking #Ofev closer than 10 to 12 hour apart tends to increase the attacks of diarrhea. Has anybody found that this may be one solution to ease this side effect?

    Community Voices

    anybody find a solution to the constant diarrhea from Ofev ? I have tried to slow it down with capsules and 1/2 dose of lomotil. #

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    Community Voices

    What is the first thing you did after being diagnosed with Pulmonary Fibrosis ?

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