Inflammatory Bowel Disease (IBD)

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Inflammatory Bowel Disease (IBD)
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The Mighty's Crohn's Disease community is 76,000+ people strong, but there's always room for more. Follow along or join in today—whatever is comfortable for you!
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What is something you wish people knew about living with Crohn's?

What is something you wish people knew about living with Crohn's?

Your response may be used in an article or video on The Mighty.

#CrohnsDisease #ChronicIllness

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Hi all , thank you for accepting me to this page ..

My name is Katrin or Kat , i suffer with Fibromyalgia , Rheumatoid arthritis , Hashimoto thyroiditis , Psoriasis , Inflammatory bowel disease , I.B.S ...and 25 years with severe M.E/CFS , Postural Orthostatic Tachycardia Syndrome (POTS). ... just to name a few . Also suffer with major depression , anxiety and panic dissorder , C.P.T.S.D , OCD ... a lot of trauma and S.A abuse from childhood , i truly beleive so many of these chronich illness come from childhood trauma if anyone has done the '' ace score test '' it is in no way a marker for all cases of adult illness but in some it is very interesting to see how our body can react to tramatic childhoods ... just in some cases ... I am Australian and am bedbound now , with other illnesses just to add to the mix , i am sure many here will understand this , and may be in the same boat ... and my heart goes out to you all ..

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February 12th, 2024 Review

For an update on the situation with the intense nose bleed, throwing up blood, and feeling like I’m going to pass out, my parents are calling me dramatic and are mad at me but I convinced one of them enough to email a doctor tomorrow.
With my eating, I managed to eat just a bit, it’s not a meal but it’s better than nothing.
I was still nauseous but not as much,
but is it concerning that I’ve lost 14lbs in two weeks without trying at all?
I was at a healthy weight to begin with before I lost that much weight.
I have struggled with eating in the past but nothing like this has happened before to me.
It’s unintentional,
I just get so full even with just one bite or sip and I get so nauseous and sick to my stomach.
I plan to tell a doctor about this when I can just to be safe,
I have been told (by family members) to ‘just eat’ or ‘you have to eat something’ but I feel they don’t understand the issue.
It’s terrible for my mental health.
#MentalHealth #CrohnsDisease #InflammatoryBowelDiseaseIBD #GeneralizedAnxietyDisorder #MajorDepressiveDisorder

20 reactions 7 comments
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ALL MY LIFE MEDICAL TEST SUBJECT

Burnt-out from the ignorance that comes from the mouths of so called trained medical professionals whom attended society's schools to acquire a stamp of approval that they specialize in whatever 🙄 and obtained A DEGREE.

#Allergies #SpinalMuscularAtrophy #Anxiety #GastroesophagealRefluxDisease #SpinalStenosis #ChronicFatigueSyndrome #BrainInjury #MentalHealth #CardiovascularDisease #RheumatoidArthritis #Osteoporosis #Peripheral #InflammatoryBowelDiseaseIBD #InflammatoryArthritis #CrohnsDisease

34 reactions 9 comments
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February 3rd, 2024 Review

Not feeling well at the moment, not physically in the way I’m sick with something like a fever, just my on going physical symptoms that are just getting worse.
I also don’t feel well mentally due to the symptoms severity. I’m not eating enough, I know that, but I can’t bring myself to have full meals.
I keep calling myself lazy but it might not be the case, there’s a lot going on with me physically and mentally.
I’m just really nauseous and keep having hot flashes recently.
I think I’m just exhausted and overwhelmed by my unpredictable health, not knowing where else I’m going to experience pain or how severe it will be, what is causing it.
So many medical concerns, treatments, and tests.
But what’s being tested for and attempted treats are for medical concerns I feel are less necessary than others.
I understand that they want to manage what I’m already diagnosed with but my left knee has been hurting for more than 2 years and nothing has been done.
And it’s not like the pain is mild, today was an 8 on my 1-10 pain scale and it’s causing significant distress.
Over the counter medication does nothing.
It’s so hard to have any hope when your body is constantly attacking itself and is in significant pain that it feels nobody cares about.
Like it’s never going to get better.
#MajorDepressiveDisorder #CrohnsDisease #InflammatoryBowelDiseaseIBD #ChronicIllness #Undiagnosed

6 reactions 3 comments
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February 2nd, 2024 Review

I post these reviews so late at night at times but I suppose it makes sense because it’s the end of the day and I can explain everything fully.
My knee pain has been high today, 7.9 on my 1-10 scale, I can be pretty specific with the number at times.
I managed to be responsible and took my medicine on time instead of being too late.
I didn’t really do much today since the pain wasn’t something I could push through this time and it was very evident when I tried to go upstairs.
My fatigue is more stable but still weighing down on me quite a lot .
Though this is unrelated, I kept being suggested to get hearing aids by family members because I am constantly turning up volumes that seem upsurd to most and sometimes I just give up and turn the subtitles on because everything is so muffled and unclear, everyone always sounds like their mumbling or speaking softly, asking others to repeat themselves or just giving up on the conversation or just pretending I know what they’re saying because I don’t want to be an inconvenience. This still happens when I’m close to someone physically even, it’s why I prefer to be in the middle of the people I’m with.
I don’t believe it’s that bad though because I am still young, 18.
But there has been something bothering me a bit, am I the only person who doesn’t hear rain at all even when it’s thundering?
I only seem to realize the rain when it’s extremely loud, louder than normal.
Most thunderstorms I have no clue is happening until I visibly see the rain coming down even when it’s heavy rain.
It’s probably nothing but it’s just something I noticed and was wondering if anyone else experienced that.
#MentalHealth #CrohnsDisease #InflammatoryBowelDiseaseIBD #ChronicIllness

8 reactions 3 comments
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February 1st, 2024 Review

My day was fairly eventful, been to a few places today so I finally went out.
The day started with me waking up at a decent time finally and not sleeping in past the time I should, so for the first time in a long time, I got out of bed before twelve.
It’s more difficult than it sounds, I know most people wouldn’t consider it a win but I do because it is difficult for me due to fatigue, pain, and depression all causing me to be chained to my bed in a way.
I also finally took a walk, it was nice but also very painful because I couldn’t stop to rest since I was with people, it made my mental health improve some I believe even though it really hurt my knee and stomach.
I know I shouldn’t push myself too far but I just wanted to finally move some, I guess I just felt the need to do something beside rest, prove that I’m trying.
#MentalHealth #CrohnsDisease #InflammatoryBowelDiseaseIBD #ChronicIllness

21 reactions 10 comments