Inflammatory Bowel Disease (IBD)

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What is something you wish people knew about living with Crohn's?

What is something you wish people knew about living with Crohn's?

Your response may be used in an article or video on The Mighty.

#CrohnsDisease #ChronicIllness

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Update; Letter To My Butterflies 🦋 May 31st, 2024

Hello fellow Mightys,
hope you are all doing well and managing through this transition into the next month.

If you know me then you know I usually post everyday how my day went or anything of the sorts medically related to help people feel less alone.

With that being said; I haven’t posted in a while and probably won’t be for some time unfortunately as my health is not the best at the moment, currently in a bad flare due to my infusions being late and likely overworking myself.

I would have said something sooner but I was in tremendous pain, so much that I couldn’t move for a while.

It was awful; I was so nauseous I almost threw up, drinking anything put me in severe pain, eating was out of the question, very dizzy, sweaty, and shaking like a leaf.

This eventually went away but came back just as quickly; today was better but I’m still feeling pain and I know it’s likely going to come back so I need to rest a little;

which is hard to admit but pushing myself so much was not a good idea.

I will be okay but I am taking a bit of a break from my usual posting though I will try to comment as much as my health allows. 🦋

#InflammatoryBowelDiseaseIBD #CrohnsDisease #ChronicIllness

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May 27th, 2024 Review + Thoughts

Sorry, forgot to post yesterday!
No post tomorrow; infusions.

I make reminders and alarms for things but recently I fail to hear them.

For example;
I’ll create an alarm but won’t hear the sound I set for the alarm though I put it on a loud alert half the time.

I figure setting it to include vibration might work but I’m not sure what to do if it doesn’t since I have things going on and will need to be setting alarms for them.

Besides that, stomach pain is becoming more frequent likely due to needing to get my infusions as it always acts up after some time without them.

Knee pain still there, there’s not a day where it isn’t and the severity is still the same so not anything new

I will be sleepy for the rest of the day and sometimes I will fell sleepy for a few days so I might be too worn out to post.

I took quite a few naps today as I was feeling fatigued pretty heavily today but not the worst;

I am doing well mentally though. 🦋

#InflammatoryBowelDiseaseIBD #CrohnsDisease #ChronicIllness #ChronicPain #PTSD #MajorDepressiveDisorder #GeneralizedAnxietyDisorder

9 reactions 1 comment
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May 24th, 2024 Review + Thoughts

Yesterday was so much, so today had to be a bit small in terms of what I could do; energy levels being low and all.

I slept in a lot, feeling exhausted so I didn’t get up until really late but I did manage to get up from bed and take my medication.

Today was quiet; not much happened but writing a little.

Stomach hurt some.

I can’t really recall anything else worth mentioning that isn’t a blurry haze besides feeling out of breath randomly again even though I was just sitting and having this annoying ringing in my left ear.

That isn’t that uncommon for me as my ears ring occasionally mostly in my left but sometimes both and rarely only in my right.

On a different note,
I can make some paintings now as I can afford the supplies!

Really looking forward to painting! 🦋

#MentalHealth #PTSD #ADHD #ADHDInGirls #CrohnsDisease #ChronicPain #ChronicIllness #InflammatoryBowelDiseaseIBD

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May 23rd 2024 Review + Thoughts

No post tomorrow,
but not for a bad reason.

I will be officially graduating from high school tomorrow! I don’t know wether to feel excited or anxious; I feel a bit of both!

There were times in my life I never thought I’d get this far; when at my lowest I didn’t see a future for me like I was stuck at the bottom of a cliff I felt I couldn’t climb.

But those who supported me gave me their hand and helped me up that cliff that seemed so long and steep.

Soon enough the metaphorical climb lead me to a beautiful view I could look over and see how far I’ve come; despite my physical and mental health challenges I still am here.

I made it through things I never thought I could! 🦋

#MentalHealth #InflammatoryBowelDiseaseIBD #CrohnsDisease #ChronicIllness #ChronicPain #GeneralizedAnxietyDisorder #MajorDepressiveDisorder #ADHD #ADHDInGirls #AutismSpectrumDisorder #PTSD

26 reactions 5 comments
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May 20th, 2024 Review + Thoughts

Late, but late is better than never I suppose.

Today was fairly interesting; I managed to get out in the world and leave the solitude of my room.

I finally had the energy to get up and walk around to go shopping which is something that is very hard for me and a lot of us.

Though it caused me pain and I needed to take breaks; it really helped the restlessness I was experiencing from my ADHD in some way.

I don’t know if that makes sense since as I’m typing this it’s very late at night because my day was so busy!

Good news being I will be able to paint soon and I think I’m going to paint some pretty clouds or maybe even a butterfly! 🦋

#MentalHealth #ChronicPain #ChronicIllness #InflammatoryBowelDiseaseIBD #CrohnsDisease #ADHD #ADHDInGirls

18 reactions 3 comments
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May 19th, 2024 Review + Thoughts

Sorry for no post again,
This week I am fairly busy but I’m also feeling a bit unwell.

No fever from what I’m aware of but the constant nausea and lack of appetite has just been doing a lot to me.

Not to mention the pain.

I have a big event coming up and it’s supposed to be a celebration but I’m just struggling lately.

I’ve had days I ate nothing at all, it’s a good day if I eat one meal.

This is not voluntary starvation, but it’s just that I feel so sick to stomach I can’t eat.

If I manage to have a meal or just half of it I will get so nauseous I can’t have anything else.

It’s odd, I’ve never struggled with this so much in a long time though it has been going on for a few months now.

I’ve also unintentionally lost so much weight.

It could be my Crohn’s but I’m not sure.

Hopefully things get better.

#InflammatoryBowelDiseaseIBD #CrohnsDisease #ChronicIllness #ChronicPain #MajorDepressiveDisorder #GeneralizedAnxietyDisorder

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